Friday, August 01, 2008

msb-0334 Being There

msb-0334 Being There

You Oughta Know


Disclaimer! Disclaimer! Disclaimer!

MSBPodcast is "not" any kind of a medical podcast.

It is by and for MSers.

Its purpose is to keep us entertained, to explain our symptoms, to remark on our discoveries, and to raise the general consciousness about our disease.

The path to illness is shadowy, murky and rough strewn.

The path to wellness is lit by the lamp of knowledge.


I have a quick and easy, painless and not too figgin' nosy customer survey that I really, really, really need you to go and fill out.

You can go to my podcast "page" [ ], click on the button on the left hand side of the page and anonymously answer a few simple questions.

I really need this.


Feedback comes first, so...

The MSIF (Multiple Sclerosis International Federation) is working with the World Health Organization (WHO) to promote the publication of a world-wide "Atlas of MS." [ ].

As you know if you've gone to the "site" [ ] I have a map of the world with dots representing the cities where my listeners come from.

Its unfortunate but I have listeners all over the planet. MS is a world-wide phenomenon.

I am glad to say that the Atlas will focus on the availability of treatments as well as on the geographic distribution of the disease.

---- "Being There" by: "Blake Ian"

Feed Forward comes next, so...

This is "your" segment.

Say "your" piece on this segment.

Share with other MSers whatever "you" want to share.

Drop us an email: "charles at"

---- "Sugarite" by: "Abra Moore"

Feed Me comes third, so...

Do you have a therapy, product, good or service that is of interest to MSers?

Consider advertising on this podcast.

Reminders on this segment only cost $0.03 per reminder per download of an episode. (A $30CPM targeted at MSers.)

It can/should lead to a full ad, in text, audio or video, which costs $3.00 per download.

That sounds expensive until you do the math and realize that if nobody downloads it it costs you nothing, unlike print, where you often can't even get an ad in to the specialized journals, or radio or TV where you'd just be wasting your money with the 0.0833% MSers rate of return. (That's about six times "below" the level of "statistical noise".)

But MSBPodcast is 100% in your market, and you only pay per download of your material.

No play, no pay.

Reach the MSers who would buy your therapy, product, good or service, with-out having to waste your advertising money on anyone who is "not" interested...

Send us an email at: "charles (at)"

---- "Glue" by: "Cantaloop"


"This" [ ] article in the New York Times sort of says it all.

Being there is essential for somethings, and irrelevant for others.

---- "Rather Stay Alone" by: "Geordie Keitt"


For people like me who are mobility challenged by MS the rise of the use of tele-presence is the world of work is a wonderful thing and its increased acceptance, and co-evolving lower cost alternatives to "being here", is a blessing that I can't tell you enough about.

Once again, I'm ahead of the curve on this one, having most recently worked form an off-shore out-sourcing firm. They handled things with the less satisfactory medium of the conference call but it was still adequate for the purposes of providing status updates (Though the use of Twitter would have been more immediate, rapid and concise.)

Where I first encountered a telepresence room however was at a branch of a multi-national company located in Kansas City which had some constant interaction with and in the rest of the United States.

The project I was on was associated with others within the company, would have necessitated hundred of thousands of dollars of travel expenses and that would have slowed the pace of work, bogging everybody down in a mire of customs, with some workers, airports, traffic and conflicting schedules. (Not to mention that while they were on-site, they weren't being "productive"; they were being "expensive," [there's "no" R.O.I.])

The use of tele-presence rooms was a great thing and the extension of the group through its use in other branches allowed us all to reach some goals much more quickly, and, as Ben Franklin said, "Time is money" [ ].

At the time it was enough money that it was worth several hundred thousand dollars a room to equip several locations with telepresence hardware and to pay for the communication costs. (This was "before" the internet, and all of that bandwidth, became a cheap, ubiquitous presence in all of our lives.)

---- "Ironbound" by: "katiesawicki"


The reason I'm so glad that telepresence is becoming more widely accepted is that it more sharply focuses the costs and importance of "Being There" [ ] and of "not" being there.

By dint of having this damn disease, there are lots of times when having to go there means a lot of fuss, unneessary work and botheration.

The capacity of not having to actually be there to, uh, be there, is wonderful.

That said, there "are" things where you actual presence is required.

What we do there, well I don't wanna "go there", so there... :-)

---- "Restless" by: "Campbells Transfer Company"


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