msb-0302 Locus and Nexus

msb-0302 Locus and Nexus

intro

Disclaimer! Disclaimer! Disclaimer!

MSBPodcast is "not" any kind of a medical podcast.

It is by and for MSers.

Its purpose is to keep us entertained, to explain our symptoms, to remark on our discoveries, and to raise the general consciousness about our disease.

The path to illness is shadowy, murky and rough strewn.

The path to wellness is lit by the lamp of knowledge.

----

Feedback comes first, so...

This is likely going to be a strange posting/podcast. (This is me. When "don't" I do strange? :-)

This episode was caused by something I read on C|Net called "How Valuable Are You On Twitter"? [ http://www.news.com/8301-13772_3-9942297-52.html?tag=nefd.lede ]

As it turns out, they miss the point entirely... :-)

And I can still tell when some people join through iTunes and have it set to "download all episodes" because my downloads stats go a bit crazy for a few hours.

But welcome anyway.

My friend the SysAdmin's mom is sick and that's why the wiki's hasn't been updated.

That points out on advantage of Twitter over email.

Just a short Tweet to that effect would have served me a lot better than the weeks of me sending emails asking for status updates that never seemed to be coming with no explanation why not.

Now that I know, I understand... There is no rush for the updates.

I will be in beta for a while longer while I try to install them myself.

When I was feeling like I was just left hanging, I was getting a little cross.

---- "Our Place Among" by: "Out Of The Cold" http://www.myspace.com/outofthecold

Feed Forward comes next, so...

This is "your" segment.

Say "your" piece on this segment.

Share with other MSers whatever "you" want to share.

Drop me an email: "charles at MSBPodcast.com"

I am inviting you to log into the "wiki" [at http://wage.packet.org/ ] and help flesh it out, rather much like I am, and to add things as you discover them.

---- "My Place" by: "Amy Ayres" http://www.amyayres.net/

Feed Me comes third, so...

Do you have a therapy, product, good or service that is of interest to MSers?

Consider advertising on this podcast.

Reminders on this segment only cost $0.03 per reminder per download of an episode. (A $30CPM targeted at MSers.)

It can/should lead to a full ad, in text, audio or video, which costs $3.00 per download.

That sounds expensive until you do the math and realize that if nobody downloads it it costs you nothing, unlike print, where you often can't even get an ad in to the specialized journals, or radio or TV where you'd just be wasting your money with the 0.0833% MSers rate of return. (That's about six times "below" the level of "statistical noise".)

But MSBPodcast is 100% in your market, and you only pay per download of your material.

No play, no pay.

Reach the MSers who would buy your therapy, product, good or service, with-out having to waste your advertising money on anyone who is "not" interested...

Send me an email at: "charles (at) MSBPodcast.com"

---- "A Better Place" by: "tony vani and debbie hoskin" http://www.soulretrieval-cd.com/

"Thesis:"

Well the Wiki beta is off to, ahem, a rousing start.

(You're still very shy about leaving stuff.

And yes, you have to register and make your updates after responding to an initial email.

Its so far the only effective way to staunch the Niagara of "Viagara."

You would not "believe" some of the spam I capture everyday, as these scum try to infest the blog and podcast rolls.)

And how is this supposed to tie in to "Twitter" [ http://twitter.com/ ] exactly?

The latter is a "stream" of consciousness (a "nexus" [ http://www.thefreedictionary.com/nexus ]) while the former is a "pool" of consciousness (a "locus" [ http://www.thefreedictionary.com/locus ]).

Both are repositories of perceptions and information.

Because of the majority of its users being desperate to say something in response the the question "What are you doing?", "Twitter" is a stream of mere babble instead of being status updates. "Doing" is the point. Very little thought seems to be given to "why" and you doing what ever it is that you're doing.

Wikis on the other hand are repositories of data, most which is meaningless, except that it is valuable to a select few who need it.

---- "Take me to this place" by: "Josh Lopez" http://www.joshlopez.com/

"Synthesis:"

Twitter and wiki represent "nexi" and "loci" in the sphere of social networking.

Wikis represent destinations in the communal collective collaborative brain while Tweets represent the "corpus callosum" [ http://en.wikipedia.org/wiki/Corpus_callosum ] of activities required to get from one idea to the next.

Both are indispensable and both are complimentary in the same way that the "Eisenberg Uncertainty principle" [ http://en.wikipedia.org/wiki/Uncertainty_principle ] is essential to quantum mechanics. (You can know the position or the momentum of a particle but never both simultaneously because knowledge of one removes knowledge of the other.)

I hope that MSers use twitter to weave themselves into a wide social network and use the wiki as a destination for all of the information they care to share.

I am of course aware of the "impedance mismatch" [ http://www.bluejeanscable.com/articles/impedance.htm ] between myself, as a for profit, (eventually, some day, I hope, please, :-) and the various associations out there, who have a lot riding on their "not" making any money.

Now they have their own limited advertising, carried by their affiliated or associated publications, but they tend to be extremely constrained. Some of the state and local ones can't (not "wont" but "can't") carry any ads for stuff that their state or chapter local merchants make or carry to help out their own members.

That's why the wiki is an indispensable resource because anybody can join in and because its a destination, a sense of place, a "locus" in the myriad conversations, the "nexi" that we MSers carry on in the process of living out lives.

Here's an example of a question that "all" of you could answer in the wiki "if" you already know the answer but that "none" of you can answer if you don't; if you haven't already had to walk that walk:

"Where and when is the self-help group meeting in your neck of the woods?"

Its a simple question ... but if you don't know, like the newly diagnosed, you need to know.

Likewise when do they meet?

Who all showed up?

What did they talk about last month, the month before that, the month before that, who did they have as a speaker, (yaddah, yaddah, yadah...)

Check out the "wiki". [ http://wage.packet.org/ ]

Its got the self help groups for my town in there because I put it in there.

Now how about you put yours in there?

There's also calendars of events etcetera, etcetera, etcetera. :-)


---- "Replaced By Robots" by: "Lejeune" http://www.lejeunemusic.com/

"Conclusion:"

I hope MSers start using Twitter to keep in touch and using the wiki for whatever the heck they want to, just keeping in mind what each is best at doing for communication.

---- "A Better Place" by: "garyseven" http://music.podshow.com/music/listeners/artistdetails.php?BandHash=a17e9684a7336d4e9b3fa4012b8fa81b


Outro

msb-fr-0012 Trésor

msb-fr-0012 Trésor

intro

Désaveu! Désaveu! Désaveu!

MSBPodcast n'est pas aucune sorte de podcast médical.

Il est produit par et pour des SP'cimens.

Son but est de nous garder divertis, d'expliquer nos symptômes, de remarquer à propos de nos découvertes et d'élever la conscience générale envers notre maladie.

Le sentier à la maladie est ombragé, glauque et parsemé de rugueur.

Le sentier à la pleine forme est allumé par la lampe des connaissances.

----

À Moi oûvre le programme...

Je construis un Wiki pour les SPcimens. It est encore en "béta" (a http://wage.packet.org ) et je dois admettre que j'apprend encore comment my prendre pour supporter les diffferent languages.

---- "Treasure" par: "Alyssa Hendrix" http://web.mac.com/hxquarter/iweb

À Vous suit...

Ceci est votre segment.

Dite ce que vous voulez sur ce segment.

Faites part avec d'autre SPcimens n'importe quoi que vous voulez parteger.

Envoyez moi un courriel: "charles à MSBPodcast.com"

---- "Where Your Treasure Is" par: "Canopy" http://www.canopymusic.net/

À L'aide est en troisième...

Avez-vous une thérapie, un produit, un bien ou un service qui est d'intérêt aux SP'cimen?

Considérez la publicité sur ce podcast.

Les mémentos sur ce segment coûtent seulement $0.03 par mémento par téléchargement d'une épisode. (Un $30CPM visé à SP'cimen.)

Il peut / devrait causer une annonce complète, en texte, audio ou vidéo, qui coûte $3.00 par téléchargement.

Cela semble cher jusqu'à ce que vous fassiez le calcul et vous vous rendiez compte que si personne ne le télécharge il ne vous coûte rien, à la différence de la presse, où vous ne pouvez pas souvent même placer une annonce dans aux journaux spécialisés, ou la radio ou la TV où vous gaspilleriez votre argent avec un taux de retour de 0.0833% de SP'cimen. (C'est environ six fois "au-dessous" du niveau "de bruit statistique".)

Mais MSBPodcast est 100 % dans votre marché et vous payez seulement par téléchargement de votre matériel.

L'enjeu en vaut la chandelle.

Atteignez les SP'cimens qui achèterait votre thérapie, produit, bien ou service, sans gaspiller votre argent de publicité sur quelqu'un qui n'est "pas" intéressé...

Envoyez moi un courriel: "charles à MSBPodcast.com"

---- "Treasure Trauma" par: "Dormitious" http://www.myspace.com/dormitious

"Thèse:"

J'essai toujour de fonder une communautée de SPcimen comme un anodin envers l'ignorance pénible de tous les media envers nous, et de quel on souffre tous les jours.

L'idée est de devenir visible, de se libérer des tenèbres et do pouvoir commencer a respirer.

---- "Hidden Treasure" par: "Jonny Kaplan And The Lazy Stars" http://www.jonnykaplan.com/

"Synthèse:"

L'idée n'est pas d'alleger nos soufrances, c'est franchement aux docteurs et aux chercheurs de decouvrir le necessaire, mais l'idée est de rendre tous les efforts par toutes ces personnes et d'autre encore, plus visible.

Nous avons des besoins, nous les Spcimens, et il a du monde qui font leur metier, leur besogne, a prendre soin de nous ... si on connais déja d'eux.

Mais la sclérose en plaques c'est une maladie relativement rare (seulement one personne sur douze cent en est affligée,) et le grand mégaphone des media, des magazines, de la radio et de la télévision, se fiche de nous. Nous sommes pas suffisament nombreux, et donc trop pauvres collectivement, pour mériter de leur attention.

Mais sur l'internet, il est possible de connecter n'importe quelles deux personnes ensemble mais seulement si elle connaissait déja.

Podcasting est le moyen de faire ces connaissances, ces rencontres, pour introduire ces individus, l'un à l'autre.

Et les programmes du MSBPodcast ne son't pas des programmes médicaux pour la mème raison que la majeure portion des programes dans les médias ne son't pas des programmes médicaux, nous ne somme pas des docteurs, nos sommes les affligés et nous avons d'autres choses a l'idée que la maladie, la médecine et tout le tra-la-la medical.

Nous sommes plus que notre maladie.

Nous sommes plus mais nous serions très interressé a avoir des nouvellles de ce qui nous concerne en plus de de ce qu'on peut decouvrir quotidiennement dans les médias réguliers.

---- "Treasured Times" par: "Michael McGinty" http://myspace.com/mikemcgintyofficial

"Conclusion:"

MSBPodcast.com est un service adjoin pour découvrir et disseminer de l'information, bien sur; mais on est aussi ici parcequ'un peut de musique, c'est plaisant.

---- "Anathema" par: "Treasure Junkie" http://www.treasurejunkieband.com/

Outro

msb-0301 The Inequitable Distribution of Luck

msb-0301 The Inequitable Distribution of Luck

..

intro

Disclaimer! Disclaimer! Disclaimer!

MSBPodcast is "not" any kind of a medical podcast.

It is by and for MSers.

Its purpose is to keep us entertained, to explain our symptoms, to remark on our discoveries, and to raise the general consciousness about our disease.

The path to illness is shadowy, murky and rough strewn.

The path to wellness is lit by the lamp of knowledge.

----

Feedback comes first, so...

I just saw a video on "YouTube" [ http://youtube.com/watch?v=LHtNFZ6K0pE ] which I am featuring at the front of these posts. Its an hour long so sit in front of your computers on a comfy chair with a drinkable and your favorite munchable at hand because it is well worth watching.

In it I found the phrase "The Inequitable Distribution of Luck", 24 minutes into it, which describes our situation to a tee.

---- "stuck in an office" by: "Edmund's Crown" http://edmundscrown.com/

Feed Forward comes next, so...

This is "your" segment.

Say "your" piece on this segment.

Share with other MSers whatever "you" want to share.

Drop me an email: "charles at MSBPodcast.com"

----

The wiki is out in beta on my "home server" [at http://wage.packet.org/ ] (I will eventually give it a real name, [ www.msbwiki.com, unless somebody sweeps in and steals it. {It doesn't matter if anyone does because we'll all be able to Google it, or get to it through links. (so I could call it by its IP address and it wouldn't matter,)}] we'll get some real bandwidth from an industrial strength server, and I'll put in any and all of the missing multi-media, Google and Amazon apps features. (I've even got myself a "Flip video" [ http://www.theflip.com/products.shtml ] to try out the multimedia portions. [Yup, you'll get to see my ugly mug.])

You're invited to come and hammer at it, make any changes you feel are required and have fun. (And don't worry. Every version of a page is kept, so I can always go back to an older version.)

You will all be required to login and the verification will be done through email so we can eliminate all the spammers and other nasties.

----

I've been tasked by my "self-help group" [ http://wage.packet.org/mediawiki/index.php/UsaNewJerseyHudsonCountySelfHelpGroup ] of the local chapter of the "NMSS (National Multiple Sclerosis Society)" [ http://www.nationalmssociety.org/index.aspx ] to handle the notification of the media about the society's meetings. Press releases.

They handed me a few sheets of paper stapled together. What the Hell do you want me to do with that? I immediately put them on the wiki, with hot-links to the local newspaper's and peoples' email addresses, (which I am still gathering, and adding in.)

The press releases will be going out by email from now on and be a whole lot easier for the papers to handle and make "camera ready" [ http://en.wikipedia.org/wiki/Camera_ready ] for printing.

----

Maybe you will want to create your own pages, fill in your own calendars, guide people to your events through Google maps, take pictures or shoot videos of your own events.

That's what the wiki's for...

----

And, just so's you don't think that I'm all talk and no action, I'm giving a lecture to the group in September about the web and the disabled, (and going to give away one of my old computers to help one person get connected.)

I see the "OLPC" [ http://laptop.org/ ] (One Laptop Per Child) initiative as needing some expansion to OLPD (One Laptop Per Disabled) because the disabled need the internet every bit as much as, (and arguably they need it much more than,) the heathy. (In fact they need it to make the "differences" between differently abled people irrelevant, [just like the internet makes distance and time irrelevant.])

There is nothing quite as useless as information printed out on a piece of paper. Its all unlinked; devoid of context and, like us, quite pathetic when alone.

But together, in a network, it (and we,) becomes part of a nexus of revelations, of relationships and connections.

---- "Post Office Jesus" by: "Little Fish Big Pond" http://myspace.com/littlefishbigpond

Feed Me comes third, so...

Do you have a therapy, product, good or service that is of interest to MSers?

Consider advertising on this podcast.

Reminders on this segment only cost $0.03 per reminder per download of an episode. (A $30CPM targeted at MSers.)

It can/should lead to a full ad, in text, audio or video, which costs $3.00 per download.

That sounds expensive until you do the math and realize that if nobody downloads it it costs you nothing, unlike print, where you often can't even get an ad in to the specialized journals, or radio or TV where you'd just be wasting your money with the 0.0833% MSers rate of return. (That's about six times "below" the level of "statistical noise".)

But MSBPodcast is 100% in your market, and you only pay per download of your material.

No play, no pay.

Reach the MSers who would buy your therapy, product, good or service, with-out having to waste your advertising money on anyone who is "not" interested...

Send me an email at: "charles (at) MSBPodcast.com"

---- "Officer Downe" by: "Matt Mays" http://mattmays.com/

"Thesis:"

"The Inequitable Distribution of Luck" is such a good phrase that I wish I had thought of it. (Or maybe I did as I was shlepping around Metropolitan College with my red cane studying Vilfredo Pareto and the "principles of economic efficiency" [ http://en.wikipedia.org/wiki/Pareto_efficiency ] but never thought I ever use it again. :-)

Getting MS is due not to the tyranny of place referred to in the video, but it is due to something far more random than that.

Through sheer happenstance, I just got blindsided by a bus with the license plate "MS."


---- "Officer Barry" by: "Rich and Royal" http://www.richandroyal.com/

"Synthesis:"

The inequitable distribution of luck tell us that, no matter well how one plans, strives, works for and even achieves in this life, the sad fact of it is that the odds are that 15% of the time, he (or she, [lets not be sexist here,]) is S.O.L.

Now, if you're a captain of industry, you wish you cloud just jettison the burden of taking care of your employees and be able to focus on the bottom line. This burden is fiduciary and its interfering with your fiduciary responsibilities to your share holders.

That's just an unfair legacy from the days of "Tricky Dick" [ http://en.wikipedia.org/wiki/Richard_Nixon ] when he was making a deal for "pals" he never knew he had, over at "Humana." [ http://en.wikipedia.org/wiki/Humana ]

Now that the HMOs aren't growing anymore and starting to pay out they're becoming an unacceptable burden on the corporations who aren't in the business of doing anything for people.

So who's going to pay for health care?

Well, if companies and corporations aren't going to take write the checks, I guess if falls to the same people who write the checks for most of defense, most of transportation and most of the legal system.

"Congratulations!"

You've just arrived at a single payer national health care policy, by default.

Unless you "want" to go back to the social situation of the sixties, where Kennedy and Johnson were struggling with forces that were just about revolutionary and people were dying left and right, once their life's savings had been wiped out, (and in this the "richest nation on earth", [we certainly weren't supposed to die like bloody bushmen living in bloody Papua-New bloody Guinea, {after being cannibalized.}])

Nah. I think a single payer system would streamline things and get rid of enough frau... uh, sorry, redundant, confusing, and error-prone systems, to leverage a great many more benefits from the system and rationalize the benefits for the current and for the future generations.

(After all, once you've got everybody, there's nobody left, is there? [Well, there are always those outside the United States, like in the North American Union, the OAS, and South America, later you can go after some sort of harmonization with Europe and then there's ... well you get the idea. here's an entire planet to organize. No one should feel his ambitions are being thwarted...])

This new gummin agency doesn't make decisions except at a kind of macro level.

Either it falls on one side of an overall cost/benefit analysis razor or it doesn't.

Hey ... "Everybody" dies.

Deal with it. (If you can't deal with it, I just hope you're rich enough to buy the few extra days, weeks or months that it would buy. ["Joe DiMaggio" died anyway and you know his estate got stuck with the bill.])

---- "Office Suite, Part I" by: "the matthew show" http://www.thematthewshow.com/

"Conclusion:"

I won't bemoan my fate (I could have been born a hundred years ago, in "Papua-New Guinea",) [ http://en.wikipedia.org/wiki/Papua_New_Guinea ] but getting MS is still a bitchin' turn of events.

"The Inequitable Distribution of Luck" isn't totally working ag'in' me though.

I live "here", [ http://en.wikipedia.org/wiki/United_States ] instead of in Papua-New Guinea, now, instead of then, and you "are" reading/listening to my words.

Lets build on what we've got, with what we've got.

---- "The Loneliest Boy In Toyland" by: "the matthew show" http://www.thematthewshow.com/

Outro

msb-0300 Third Time Around The Century Dial

msb-0300 Third Time Around The Century Dial

intro

Disclaimer! Disclaimer! Disclaimer!

MSBPodcast is "not" any kind of a medical podcast.

It is by and for MSers.

Its purpose is to keep us entertained, to explain our symptoms, to remark on our discoveries, and to raise the general consciousness about our disease.

The path to illness is shadowy, murky and rough strewn.

The path to wellness is lit by the lamp of knowledge.

----

Feedback comes first, so...

Well here we are, watching the Century Dial roll over for a third time.

But I am not doing it alone, Shauna's here to regale us with an apt numeric review of "The 300"

This Friday, I promise that I'll have an announcement to make that we can all join in.

The stuff with Mevio didn't work. Sucks to be them.

---- "In my dreams" by: "Strangers in Wonderland" http://www.strangersinwonderland.com/

Feed Forward comes next, so...

This is "your" segment.

Say "your" piece on this segment.

Share with other MSers whatever "you" want to share.

Drop me an email: "charles at MSBPodcast.com"

---- "Still standing" by: "Strangers in Wonderland" http://www.strangersinwonderland.com/

Feed Me comes third, so...

Do you have a therapy, product, good or service that is of interest to MSers?

Consider advertising on this podcast.

Reminders on this segment only cost $0.03 per reminder per download of an episode. (A $30CPM targeted at MSers.)

It can/should lead to a full ad, in text, audio or video, which costs $3.00 per download.

That sounds expensive until you do the math and realize that if nobody downloads it it costs you nothing, unlike print, where you often can't even get an ad in to the specialized journals, or radio or TV where you'd just be wasting your money with the 0.0833% MSers rate of return. (That's about six times "below" the level of "statistical noise".)

But MSBPodcast is 100% in your market, and you only pay per download of your material.

No play, no pay.

Reach the MSers who would buy your therapy, product, good or service, with-out having to waste your advertising money on anyone who is "not" interested...

Send me an email at: "charles (at) MSBPodcast.com"

---- "Behind The Mask" by: "Strangers in Wonderland" http://www.strangersinwonderland.com/

"Thesis:"

We've got something unusual from Shauna this time, a movie review.

In keeping with the number of the show episode, it about the movie "300" [ http://www.imdb.com/find?s=all&q=300&x=0&y=0 ]

(Which was a remake of "The 300 Spartans" [ http://www.imdb.com/title/tt0055719/ ] which I actually saw at the local "Bijou" theater in "Ville LaSalle" while it was descending into "kitch", "Sci-Fi", "Horror" and eventually a "porno theater" before being being put to a merciful death by a developer who turned it into a strip mall...

"Sic Transit Gloria Mundi" (Which means "So passes away the glory of the world", [ not "You don't wanna get in a car with Gloria".])

---- "As long as I dont cry" by: "Strangers in Wonderland" http://www.strangersinwonderland.com/

"Synthesis:"

I'm not a movie reviewer. I have to admit to having tried my hand at it a couple of times over the years, but Charles asked me to review 300 in celebration of his 300th MSB Podcast, so I consented.

Full disclosure: my family doctor is of Greek descent and I lived in Montreal, where the movie was filmed. OK. so that wasn't really necessary, but I had to make mention of the Canadian connection and that was the only way I could do that.

This is Sparta! So says King Leonidas to Xerxes' messengers. Imagine, those foreigners coming to Sparta and suggesting that King Leonidas submit to Xerxes. Well, Leo wanted nothing to do with that and since Xerxes was threatening to move in, he consulted with the Ephors (supposedly wise councillors), who in turn consult the Oracle. She tells everyone that Leo must stay home.

Of course he doesn't. You don't threaten this man, his people, and his land. With 300 Spartan soldiers he marches to Thermopolye, the hot Gates. And that's where he takes his stand. He holds out for a couple of days, but in the end superior numbers and an angry hunchback defeat Leo and his 300 Spartans.

There's a lot of gore, bloodshed, infidelity (though that was coerced), and a couple of traitors thrown into the mix.

And the movie, though made with real actors, has the look and feel of a comic book, which was the intent. If you like comic books or you enjoyed Sin City, then you'll like 300. I enjoyed both Sin City and 300.

Of course, the movie isn't entirely historically correct. But that's not the point. I believe the point was taking a stand for what you believe in and backing it up. Leo did that for sure. And here's where the parallels wih MS come in.

This is my brain! That should be our rallying cry as MSers. As we begin to endure symptoms like numbness, tingling, paralysis, and vision disturbance, we don't want to submit to Xerxes-like invaders in our central nervous system. We consult our Ephors, our neurologists. They in turn consult the Oracle. Well, actually, they don't. But sometimes it seems like they do. The neuros suggest a course of treatment to keep Xerxes...I mean MS, at bay. And for some of us, we can make a stand for a long time. We may have to acquiesce to the symptoms from time to time, but there's no reason why we can't sand up to Xerxes for the rest of our lives. There's still a lot of fun and frivolity to be had. Rally the fun and frivolity like 300 Spartans to keep Xerxes' Persians from getting through the Hot Gates to your brain.

---- "House Of Dreams" by: "Strangers in Wonderland" http://www.strangersinwonderland.com/

"Conclusion:"

Well, when I told Shauna that she was doing show #300, she certainly took the number to heart.

And we're going to end with one more tune by "Strangers in Wonderland" who are a group from Sweden that I found while scavenging (which it sometimes feels like,) or panning for gold on the PMN (the Podsafe Music Network.)

---- "I like it" by: "Strangers in Wonderland" http://www.strangersinwonderland.com/

Outro

msb-0299 On the verge of a deal

msb-0299 On the verge of a deal

intro

..

I'm trying something to see if embeds from mevio can work with Blogger and LibSyn.

This guy looks like I did (well my hair used to hang down "a lot" further,) but its the same sort of playing I loved to do.

Lots of flash and finger play, but its not really that hard.

My guitar was also a classical, a "Framus" [ http://en.wikipedia.org/wiki/Framus ], but built of white spruce, probably by "Silvio DeLellis" [ http://en.wikipedia.org/wiki/De_Lellis ] (whom I had apprenticed for. [I know I'm getting old. He passed away in 1998. And the man was so big, he seemed like a veritable force of nature.])

Disclaimer! Disclaimer! Disclaimer!

MSBPodcast is "not" any kind of a medical podcast.

It is by and for MSers.

Its purpose is to keep us entertained, to explain our symptoms, to remark on our discoveries, and to raise the general consciousness about our disease.

The path to illness is shadowy, murky and rough strewn.

The path to wellness is lit by the lamp of knowledge.

----

Feedback comes first, so...

I'm still waiting on some people and until that happens, I won't know whether to put whatever I'd say in the "Feedback" or the "Feed Forward" (and in at least one case the "Feed Me" segment of the show. [My fingers "are" crossed.])

My ad ran in the Summer issue of "Momentum." "Sweet!" The results were immediate and I noticed enough more downloads to make me think "we've got something here."

I've bought a "Flip Video camera" [ http://www.bhphotovideo.com/c/product/547310-DEMO/Pure_Digital_F260B_DEMO_Flip_Video_Ultra.html ] (I don't "do" video so, rest assured, there's method to my madness. [I'll reveal more on the Friday episode... :-])

My friend the SysAdmin and I went to see "IronMan" [ http://ironmanmovie.marvel.com/ ].

I'm no "Gene Shalit" [ http://en.wikipedia.org/wiki/Gene_Shalit ] so go or don't go, I don't have any opinion worth sharing on the subject. But it "was" filled with cool CGI.

---- "Detox" by: "Millencolin" http://music.podshow.com/music/artists/photos/00004195/millencoilin.jpg

Feed Forward comes next, so...

This is "your" segment.

Say "your" piece on this segment.

Share with other MSers whatever "you" want to share.

Drop me an email: "charles at MSBPodcast.com"

---- "DeToX" by: "Intrabyte" http://www.myspace.com/intrabyte

Feed Me comes third, so...

Do you have a therapy, product, good or service that is of interest to MSers?

Consider advertising on this podcast.

Reminders on this segment only cost $0.03 per reminder per download of an episode. (A $30CPM targeted at MSers.)

It can/should lead to a full ad, in text, audio or video, which costs $3.00 per download.

That sounds expensive until you do the math and realize that if nobody downloads it it costs you nothing, unlike print, where you often can't even get an ad in to the specialized journals, or radio or TV where you'd just be wasting your money with the 0.0833% MSers rate of return. (That's about six times "below" the level of "statistical noise".)

But MSBPodcast is 100% in your market, and you only pay per download of your material.

No play, no pay.

Reach the MSers who would buy your therapy, product, good or service, with-out having to waste your advertising money on anyone who is "not" interested...

Send me an email at: "charles (at) MSBPodcast.com"

---- "Girl From Detox" by: "Chaz Matthews" http://www.fullbreach77.com/kicks/s_chazmatthews.html

"Thesis:"

One of the problems with seeing things before anybody else does is that I have to be patient, very, very, patient.

One of the things about MS is that, amongst the circuits that have been fried in my brain and covered in non-conductive scars, are things called repressor or inhibitory circuits a.k.a. neurological pathways, which means that I really don't have a lot of patience left.

As "Elvis" [ http://en.wikipedia.org/wiki/Elvis_Presley ] sang so ably all those decades ago: "I'm itching like a man on a fuzzy tree. I'm in love (with an idea). I'm all shook up... Unh, unh uhn ... yea yea..."

---- "Intoxicated" by: "Keith Varon" http://www.keithvaron.com/

"Synthesis:"

We are on the cusp of an evolution in media, in content production and in advertising. We are at an inflection point there.

I like what was inadvertently pointed out in "this" [ http://www.nytimes.com/2008/05/03/business/media/03nocera.html ] article in the New York Times.

Radio is a competition for air time as much as, or perhaps even more than, it is a competition for your audience's attention.

The competitiveness in the television industry is the stuff of "legend". [ http://www.imdb.com/find?s=all&q=network&x=0&y=0 ]

The "dog eat dog" nature of the competition for a scarce resource, in this case its the transmission tower, produces or elicits certain behavior which may not be in the best interest of the competitors.

The interference of the intrusion of ads into the content which is carried over the air waves is also the stuff of "legend" [ http://www.clearchanneloutdoor.com/corporate/history.htm ] and the subject of many rants, both mine and those early ones of "Mark Yashimoto Nemcoff", [ http://www.markyoshimotonemcoff.com/pch/ ] (before he teamed up with somebody else and got all nice on us. :-).

What I saw in a flash as I sat there listening to "Adam Curry's "Daily Source Code" one morning, (or was it in the evening, with podcasting, it no longer matters,) as he was running a promotion for [name deleted by common sense, but it was a car company,] was an extremely efficient means of getting across a short message capable of getting people in the audience who would be interested in getting more information, in any media, of any duration, and that could be charged for.

The justification for my charging for this content would be based on its commercial nature.

Basically I was asking "Qui bono?" And that was who I was going to charge for access. ("Follow the money".)

I am in an extremely limited market of people who don't have any money to waste on any superfluous things, like ad campaigns.

What these people need is an extremely efficient way to get information across if, and only if, and when, but every time, its asked for.

The "podcast ad" model allows the ad to become larger, to answer more questions, to in effect become content and to use the internet to podcast itself anywhere and at anytime. (I agree with "This Week In Media" [ http://www.pixelcorps.tv/this_week_in_media ] about making the ads the content of their own shows.)

The "reminder ad" model, is roughly the same as exists now, except it has to be altered to allow for the long-tail of podcasting. A campaign can be run from a date to a date and its only function is to inform the audience of the "podcast ad".

Its so much more efficient, I just want to strangle people who just don't "get it." ("Doh dee doh... Oh no... We'll just keep on wasting our money trying to hit a bullseye, on a receding target, with a dart, while blindfolded, tied to a spinning office chair, that's rolling down hill, towards the edge of a precipice.")

(I'd get to watch an entire episode of "Numb3rs" without all the damn commercials.)

---- "Toxic To The Good Times" by: "Instar" http://www.instarmusic.com/

"Conclusion:"

So I have to practice patience (and try to let people not see that I'm practically squirming in my seat.)

People will eventually see that what was broken and unsatisfactory about the broadcast model on both sides of the transmitter (the ceaseless cacophony of shouting at those who will not hear because they aren't interested,) is fixed through the use of a ka-jillion podcatches whispering their messages into the ears of the ears of those people who are so interested that they've asked for and downloaded it.

But its taking so "long", that I'm just going to jack up the price to what I feel I "should" have been charging and it'll cost about 10 times more. (Bet we never thought of ourselves as a valuable commodity, but that's exactly what we are, valuable, and if I'm going to be ignored, it might be for some real dough. :-)

Its either that or abandoning the MS market to its own comfortable little oblivion.

---- "Intoxicated" by: "Mission 5" http://www.mission5.net/

Outro

msb-fr-0011 Jongle

msb-fr-0011 Jongle

intro

Désaveu! Désaveu! Désaveu!

MSBPodcast n'est pas aucune sorte de podcast médical.

Il est produit par et pour des SP'cimens.

Son but est de nous garder divertis, d'expliquer nos symptômes, de remarquer à propos de nos découvertes et d'élever la conscience générale envers notre maladie.

Le sentier à la maladie est ombragé, glauque et parsemé de rugueur.

Le sentier à la pleine forme est allumé par la lampe des connaissances.

----

À Moi oûvre le programme...

Je n'ai rien a dire.

Je suis très occupé par la construction d'un Wiki pour les SPcimens.

---- "Patience" par: "Amy Sawers" http://www.fathippyrecords.co.uk/

À Vous suit...

Ceci est votre segment.

Dite ce que vous voulez sur ce segment.

Faites part avec d'autre SPcimens n'importe quoi que vous voulez parteger.

Envoyez moi un courriel: "charles à MSBPodcast.com"

---- "Patience" par: "Guitarshop Asshole" http://www.guitarshopasshole.de/

À L'aide est en troisième...

Avez-vous une thérapie, un produit, un bien ou un service qui est d'intérêt aux SP'cimen?

Considérez la publicité sur ce podcast.

Les mémentos sur ce segment coûtent seulement $0.03 par mémento par téléchargement d'une épisode. (Un $30CPM visé à SP'cimen.)

Il peut / devrait causer une annonce complète, en texte, audio ou vidéo, qui coûte $3.00 par téléchargement.

Cela semble cher jusqu'à ce que vous fassiez le calcul et vous vous rendiez compte que si personne ne le télécharge il ne vous coûte rien, à la différence de la presse, où vous ne pouvez pas souvent même placer une annonce dans aux journaux spécialisés, ou la radio ou la TV où vous gaspilleriez votre argent avec un taux de retour de 0.0833% de SP'cimen. (C'est environ six fois "au-dessous" du niveau "de bruit statistique".)

Mais MSBPodcast est 100 % dans votre marché et vous payez seulement par téléchargement de votre matériel.

L'enjeu en vaut la chandelle.

Atteignez les SP'cimens qui achèterait votre thérapie, produit, bien ou service, sans gaspiller votre argent de publicité sur quelqu'un qui n'est "pas" intéressé...

Envoyez moi un courriel: "charles à MSBPodcast.com"

---- "Crash Course in Patience" by: "Juan R Leon" http://juanrleon.tripod.com/

"Thèse:"

Des fois, il me semble que je suis un jongleur.

Je tiens les boules d'une vocation, d'un violon d'Ingres et de ma sclerose en plaque, tous en l'air.

J'essaie de combiner le tout en un seul podcast sur la sclerose en plaque et de me faire quelques sous en vous emportant de la musique, un peu de nouvelles et mes opinions, aussi loufoque q'elle soit.

---- "Waiting Patient" par: "Fred" http://www.thebandfred.com/

"Synthèse:"

One des choses que j'assaie do jongler est ce podcast.

J'ai beaucoups de boules en l'air et cette fin de semaine je doit m'en aller voir mes relations.

Donc cette episode apparait quelque jours en avances.

---- "Outpatient" par: "Mister Vague" http://www.myspace.com/mistervague

"Conclusion:"

Donc me voici encore en train de jongler les demandes de tous le monde et de vous faire parvenir un peu de musique en meme temps.

---- "The rush" par: "the windupdeads" http://www.thewindupdeads.com/

Outro

msb-0298 Not This Again

msb-0298 Not This Again

intro

Disclaimer! Disclaimer! Disclaimer!

MSBPodcast is "not" any kind of a medical podcast.

It is by and for MSers.

Its purpose is to keep us entertained, to explain our symptoms, to remark on our discoveries, and to raise the general consciousness about our disease.

The path to illness is shadowy, murky and rough strewn.

The path to wellness is lit by the lamp of knowledge.

----

Feedback comes first, so...

Pity me, I don't have time to really say anything, except that Jeff of the band Sol3 which I featured on Monday's podcast agrees with me on the lamentable state of music videos nowadays.

If only I was busy with something that pays.

---- "Going Down Again" by: "Paul Collins" http://www.myspace.com/paulcollins

Feed Forward comes next, so...

This is "your" segment.

Say "your" piece on this segment.

Share with other MSers whatever "you" want to share.

Drop me an email: "charles at MSBPodcast.com"

Hot of the web (no, I don't know how it got discovered:) "Who should MDs let die in a pandemic? Report offers answers" [ http://www.physorg.com/news129180991.html ]

I agree, the list won't have the names of anybody who's not rich and/or powerful.

MSers are a resource bunch, aren't we. Its either that or we're out of luck in "any" emergency.

---- "Back At It Again" by: "Anthony Stauffer and Holy Smoke" http://www.holysmokeblues.com/

Feed Me comes third, so...

Do you have a therapy, product, good or service that is of interest to MSers?

Consider advertising on this podcast.

Reminders on this segment only cost $0.03 per reminder per download of an episode. (A $30CPM targeted at MSers.)

It can/should lead to a full ad, in text, audio or video, which costs $3.00 per download.

That sounds expensive until you do the math and realize that if nobody downloads it it costs you nothing, unlike print, where you often can't even get an ad in to the specialized journals, or radio or TV where you'd just be wasting your money with the 0.0833% MSers rate of return. (That's about six times "below" the level of "statistical noise".)

But MSBPodcast is 100% in your market, and you only pay per download of your material.

No play, no pay.

Reach the MSers who would buy your therapy, product, good or service, with-out having to waste your advertising money on anyone who is "not" interested...

Send me an email at: "charles (at) MSBPodcast.com"

---- "I cleaned up my act but now it's dirty again" by: "Molly and Sonny Boy" http://mollyandsonnyboy.com/

"Thesis:"

I have relapsing/remitting MS.

I live in the strange land where I can hope that how I felt when I got up is actually better than when I went to bed the night before. (Yeah... Sure...)

Of course, I could be worse off too, but that usually takes longer to develop and gives me a period of "noisy skin" (Its the only way I can describe it. I lose definition in my tactile sense.)

---- "alone again version alone" by: "celine mastrorelli" http://www.myspace.com/mastrorelliceline

"Synthesis:"

One of the most commonly reported symptoms is an impaired vestibular sense (screwed up balance,) combined with difficulty accelerating the leg muscles so they respond in time to the demands of walking... (Why do you think MSers have so much trouble getting around? Hey they would sell a lot of canes if only they could a make cool looking canes [mine is painted "traditional Chinese red") and took a look at their hands when holding a cane. (See your fingers, see the cane, bending in an arc in the opposite direction? I use a plastic pommel handle so my hand can grip and rest on the cane properly.)

Another common symptom is phantom pain, where the sensation is felt where it isn't (sometimes, there is no sensation, so you end up going nuts trying not only to scratch where you don't itch but you don't even itch anywhere.)

Then there are the loss of the fine motor coordination (that didn't stop me from learning to play the guitar, [and damn well too,] or to type, [but hand me a pencil and I'll give you such a look,]) the increased spasticity (which means that I have learned better than to carry a full anything,) the increased sensitivity to heat, (I don't fog up the bathroom mirror when I take a shower because I take cold or at best lukewarm showers. [That pretty much nixes, uh, conserving water, if you know what I mean. ;-])

Anything else is such a minor annoyance that I don't even notice.

(So what gets under "your" skins?

Drop me an email. "charles at msbpodcast.com".

We can crab, bitch, moan and engage in the ol' "Four Yorkshiremen" [ http://www.phespirit.info/montypython/four_yorkshiremen.htm ] [One of the best "Monty Python" skits ever.])

---- "You Must Be Born Again" by: "Jacques Grant" http://myspace.com/jacquesgrant

"Conclusion:"

Yup, it sure is a strange world, living with this MS.

You're going along fine for months, years or even decades, and all of sudden your world is tipped over like a sleeping cow.

---- "Wrong Again" by: "The Creamsicles" http://www.thecreamsicles.com/

Outro

msb-0297 Salamander's Ash and Embers

msb-0297 Salamander's Ash and Embers

intro

Disclaimer! Disclaimer! Disclaimer!

MSBPodcast is "not" any kind of a medical podcast.

It is by and for MSers.

Its purpose is to keep us entertained, to explain our symptoms, to remark on our discoveries, and to raise the general consciousness about our disease.

The path to illness is shadowy, murky and rough strewn.

The path to wellness is lit by the lamp of knowledge.

----

Feedback comes first, so...

Don't have time to say anything...

---- "Logic Kills The Fire" by: "amplifico" http://www.amplifico.net/

Feed Forward comes next, so...

This is "your" segment.

Say "your" piece on this segment.

Share with other MSers whatever "you" want to share.

Drop me an email: "charles at MSBPodcast.com"

---- "Fire Away" by: "Kill The Alarm" http://killthealarm.com/

Feed Me comes third, so...

Do you have a therapy, product, good or service that is of interest to MSers?

Consider advertising on this podcast.

Reminders on this segment only cost $0.03 per reminder per download of an episode. (A $30CPM targeted at MSers.)

It can/should lead to a full ad, in text, audio or video, which costs $3.00 per download.

That sounds expensive until you do the math and realize that if nobody downloads it it costs you nothing, unlike print, where you often can't even get an ad in to the specialized journals, or radio or TV where you'd just be wasting your money with the 0.0833% MSers rate of return. (That's about six times "below" the level of "statistical noise".)

But MSBPodcast is 100% in your market, and you only pay per download of your material.

No play, no pay.

Reach the MSers who would buy your therapy, product, good or service, with-out having to waste your advertising money on anyone who is "not" interested...

Send me an email at: "charles (at) MSBPodcast.com"

---- "Fire and Sea" by: "Kalliopi" http://www.kalliopi.eu.com/

"Thesis:"

In modern times, a salamander is a warming or cooking tray on a chef's oven. Properly its called a "salamander broiler" [ http://www.wisegeek.com/what-is-a-salamander-broiler.htm ].

It was also an "Arabic Alchemical symbol". [ http://www.blackdrago.com/alchemy.htm ]

In wiccan beliefs the salamander is a creature representing fire. (I don't have a reference on the web for that. You'll just have to trust my memory of comparative religions.)

But I think Shauna's story dates a lot further back than that.

---- "Fire It Up" by: "The Stone Coyotes" http://www.stonecoyotes.com/

"Synthesis:"

A Salamander's Tale

In Nova Scotia we have an incredible coastline. Each year it gives up more and more information about the geology of the land and what animals lived on it. The fossils people are discovering are fantastic and I've been lucky enough to have come across a few on my own. About 45 minutes from where I live, at low tide, you can walk out on the beach to a set of footprints thought to be 350 millions years old. Way cool! Though some doubt if they're actually footprints or if they're fin marks.

If they are footprints, they were made by a giant salamander like creature. By giant, I mean by today's standard. I was told (by a geologist) that it was about 6 feet long. That'sa one-a big-a newt. No way would I have tried to pick that one up.

Of course I pick up or attempt to pick various and sundry animals I come across, including salamanders. They are amphibians, related to frogs, and have a remarkable ability to regenerate limbs. As a matter of fact, if startled by what they think is a predator, their tail can just "let go" and become disconnected from the rest of the body. The tail wiggles like crazy so the predator goes after that and gives the animal enough of a chance to escape.

A few years ago, a friend and I cultivated a garden in her backyard to grow vegetables. I must say I was really more keen on investigating the creatures that took up residence in the garden. One day, we discovered a group of baby salamanders, maybe 1 and a half to 2 inches long. I reached down to pick one up and the tail just popped right off. I picked up the salamander, apologized for scaring it unintentionally, then picked up the tail. I had it on the palm of my hand and watched it for about 10 minutes as it wiggled and squirmed. It was the most disconcerting thing, like a severed hand in a horror movie crawling along a floor, as it seemed to be powered by...nothing! It was just moving on its own.

From the time I was a kid and had learned about this phenomenon, I was amazed by it. But until I was almost 40 had never actually seen it. I put the tail back on the ground, continued with the weeding and watering of the garden, and after twenty minutes went back to pick it up. As I did so, it started to move again! This thing had been disconnected from its "power" source for half an hour but still had some "juice" left in it. Wow! But again, disconcerting. It's kind of like how you'd feel if you unplugged your TV from the wall, but it suddenly came on again. Spooky.

What is the power source for the tail? It's a combination of chemical and electrical activity. The length of time the "power" stays effective depends on the species of animal and it's size. That got me thinking about a chemical and power source for folks with neuronal damage due to spinal cord injury (SCI) or diseases like MS. I know they're experimenting with electricity to allow people to stand and walk again. I've seen the contraptions patients wear to electrically stimulate the legs to allow them to be mobile. (It's still fairly early in the game to make these things practical and cost effective for the general public, though there are types of TENS contraptions to help those not as severely affected as an SCI person)

Last night I was speaking with a woman from the VON (Victorian Order of Nurses) at a fundraiser I was MCing for them. Mary and I had a wonderful talk last year, (at the same event) and last night we continued our chat of shared interest in science and nature. We talked of frogs and that led to salamanders. She's had some of the same ideas as me and went so far as to send an e-mail to the Christopher Reeve Foundation to inquire if they were investigating salamanders' amazing ability and what the implications were for human rehabilitation. She still hasn't heard back from them.

But I'll bet dollars to donuts, it's going to be something as simple as a salamander's tail that solves the mystery of MS.

---- "Freeze in the Fire - Remastered" by: "Jeremy Row" http://myspace.com/jeremyrowe

"Conclusion:"

Shauna may be right.

By the time we understand, "truly understand" how a salamander's tail regenerates, we may be able to aply the lessons learned to how we can regenerate our fried out nervous system and our trigger happy, though confoozled, immune system.

---- "The Fire's Light" by: "The Bulldogs" http://www.bulldogsinet.com/

Outro

msb-0296 I Loathe This Video

msb-0296 I Loathe This Video

..

intro

Disclaimer! Disclaimer! Disclaimer!

MSBPodcast is "not" any kind of a medical podcast.

It is by and for MSers.

Its purpose is to keep us entertained, to explain our symptoms, to remark on our discoveries, and to raise the general consciousness about our disease.

The path to illness is shadowy, murky and rough strewn.

The path to wellness is lit by the lamp of knowledge.

----

Feedback comes first, so...

I loathe the piece of crap video at the front of this post on my blog and podcast.

Its the sort of over produced, over processed, over made-up over the top kind of video that's made to hypnotize you while shutting you up.

It leaves you wanting for some sustenance after you've watched it.

Its all "glamour" and glitz, in the darkest, cruelest, most debased and demeaning sense of the word "glamour".

"Glamour" as used by those who fancy themselves as fairies and elves, and politicians, to deceive and to lie, to distract while they sharpen their knives.

Painted-on faces atop painted-on bodies wearing painted-on outfits and painted-on expressions, gyrating to some meaningless beat; rhythmically pounding its empty noise, promising its empty pleasure.

It stands for everything I "hate" about the industry. (I can't honestly call it the music industry.)

Its porn for the ears.

Actually, its not even that. If you just listen to it without the video and you suddenly hear a trite, innocuous, bland, very "little" pop tune, without any redeeming value.

----

On a positive "non bitchy" note, I'm finding a lot to like about twitter. (I'd be more reassured if it didn't go down like like a two dollar ... , (uh no, that's not an analogy I'd care to defend. :-)

On a different note, they've been re-paving the road in front of the building.

"Beep! Beep! Beep!" Every freakin' time one of these machines backs up. And they're everywhere. Its a cacophonous mess. How are you supposed to know if something's bearing down on you or it the fries are done?

Recording the shows has been well nigh impossible when the sun's out.

I never had to listen to this crap when I was a kid.

Back then, I watched them build my suburb and the only sound was the thrum of diesel engines.

Okay they were sometimes punctuated by occasional howls of agony and/or an odd note in the grinding noise of the machinery.

But you renamed the street and moved on over the anthropic outline. (On the bigger roads, it was a stretch of highway renamed, say, the "Jimmie Hoffa Memorial Mile," and you got over it. [It saved a bunch on funeral expenses; you bet'cha. :-])

---- "videogamez" by: "deceptakahn" http://deceptakahn.com/

Feed Forward comes next, so...

This is "your" segment.

Say "your" piece on this segment.

Share with other MSers whatever "you" want to share.

Drop me an email: "charles at MSBPodcast.com"

Here you are.

Further proof [ http://www.nytimes.com/2008/05/04/business/04insure.html ] from the field, as if any was needed, that the health care system is badly broken. (Systemantically, it has reached the point where it begins to oppose its own stated function. [The only thing left to do is to stick a fork in it, 'cause its done.])


---- "Video Virus" by: "Nalts" http://www.willvideoforfood.com/

Feed Me comes third, so...

Do you have a therapy, product, good or service that is of interest to MSers?

Consider advertising on this podcast.

Reminders on this segment only cost $0.03 per reminder per download of an episode. (A $30CPM targeted at MSers.)

It can/should lead to a full ad, in text, audio or video, which costs $3.00 per download.

That sounds expensive until you do the math and realize that if nobody downloads it it costs you nothing, unlike print, where you often can't even get an ad in to the specialized journals, or radio or TV where you'd just be wasting your money with the 0.0833% MSers rate of return. (That's about six times "below" the level of "statistical noise".)

But MSBPodcast is 100% in your market, and you only pay per download of your material.

No play, no pay.

Reach the MSers who would buy your therapy, product, good or service, with-out having to waste your advertising money on anyone who is "not" interested...

Send me an email at: "charles (at) MSBPodcast.com"

---- "Videology" by: "The Digital Motion" http://www.download.com/digitalmotion

"Thesis:"

Before I get chastised for seemingly abandoning MS in my quest for world domination or some such grandiose scheme, let me say that while I have MS, I do not let it limit my perceptions (an ironic twist of both fate and words,) nor do I let it limit my ambitions. (Perhaps the triumph of optimism in the face of adversity.)

---- "Videotape" by: "the priddle concern" http://thepriddleconcern.com/

"Synthesis:"

Its indeed unfortunate that I got MS. (Hell I might say its tragic that I have this disease.)

But that's life; which is made up of the crap that splashes onto you while you go from being a cute, lovable infant (okay some have faces that only their mothers can love,) to a wizened old coot.

Its certainly unfortunate that I am unable to pursue the possibilities of podcasting with the bloody mindedness and vigor that I have brought to other things, other pursuits in my life.

I have always been fair, often been wise and never been somebody you'd want to screw with. (Its not that I'm physically imposing, its that I'll drive you to distraction while I drive straight to my goal. [I'm "not" one of those people who believe that "its not enough for me to win, you've got to know you've lost." {Frankly, I don't care if we "both" win, as long as "I get a prize." (Anything else is a waste of my time, [and time is the rarest and most valuable resource there is.])}])

---- "Masks videomix" by: "Adhesion" http://evilresidence.com/adhesion

"Conclusion:"

While I have MS, it doesn't have me.

I am still the driven, some would say megalomaniacal, character that I have always been.

I was, am and will remain true to the "Toto La Terreur" persona I had as a three-year old.

I have "always" been more than a little nuts and I'm not letting MS spoil that for me.

Now enough techno, indie stuff, I wanna kick this up a notch and listen to a Canadian band while I knock off and have a beer.

---- "Beta Video Tape Head" by: "SOL 3" http://www.myspace.com/sol3canada

Outro

msb-fr-0010 Jungle

msb-fr-0010 Jungle

intro

Désaveu! Désaveu! Désaveu!

MSBPodcast n'est pas aucune sorte de podcast médical.

Il est produit par et pour des SP'cimens.

Son but est de nous garder divertis, d'expliquer nos symptômes, de remarquer à propos de nos découvertes et d'élever la conscience générale envers notre maladie.

Le sentier à la maladie est ombragé, glauque et parsemé de rugueur.

Le sentier à la pleine forme est allumé par la lampe des connaissances.

----

À Moi oûvre le programme...

Je n'ai rien a dire. Chanceux our vous. :-)

---- "Jungle Tip Toe" par: "Larry Seyer" http://www.larryseyer.com/

À Vous suit...

Ceci est votre segment.

Dite ce que vous voulez sur ce segment.

Faites part avec d'autre SPcimens n'importe quoi que vous voulez parteger.

Envoyez moi un courriel: "charles à MSBPodcast.com"

---- "Jungle Disease" par: "The Joneses" http://www.fullbreach77.com/kicks/s_joneses.html

À L'aide est en troisième...

Avez-vous une thérapie, un produit, un bien ou un service qui est d'intérêt aux SP'cimen?

Considérez la publicité sur ce podcast.

Les mémentos sur ce segment coûtent seulement $0.03 par mémento par téléchargement d'une épisode. (Un $30CPM visé à SP'cimen.)

Il peut / devrait causer une annonce complète, en texte, audio ou vidéo, qui coûte $3.00 par téléchargement.

Cela semble cher jusqu'à ce que vous fassiez le calcul et vous vous rendiez compte que si personne ne le télécharge il ne vous coûte rien, à la différence de la presse, où vous ne pouvez pas souvent même placer une annonce dans aux journaux spécialisés, ou la radio ou la TV où vous gaspilleriez votre argent avec un taux de retour de 0.0833% de SP'cimen. (C'est environ six fois "au-dessous" du niveau "de bruit statistique".)

Mais MSBPodcast est 100 % dans votre marché et vous payez seulement par téléchargement de votre matériel.

L'enjeu en vaut la chandelle.

Atteignez les SP'cimens qui achèterait votre thérapie, produit, bien ou service, sans gaspiller votre argent de publicité sur quelqu'un qui n'est "pas" intéressé...

Envoyez moi un courriel: "charles à MSBPodcast.com"

---- "Jungle Juice" par: "All Crazy" http://www.myspace.com/allcrazyphilly

"Thèse:"

La loi de la jungle?

La sclérose en plaque vous met a la merci de beaucoup de personnes et vous met en dettes a beaucoup de personnes.

Des fois les dettes sont celle personelles et des fois elles sont financières.

Ces dernières peuvent vous donnez la sensation d'ètre dans une jungle.

---- "Like a jungle Sometimes" oar: "Maido Project" http://www.myspace.com/maidoproject

"Synthèse:"

Une des choses les plus facheuse a avoir la sclérose en plaque, (apart du fait que notre corp est devenu un traitre et ne fonctionne plus comme il devrais,) c'est que notre capacité de gagner notre pain quotidien (notre circomstance financière,) prend un sacré coup.

Cette maladie n'est pas si grave que ça, surtout quand on prend en consideration les traitement qui se sont dévellopés durant les dix dernières annés.

Oui, je dois admettre que c'est très facheux de se piquer (et avec le temps, on ne s'habitue pas mais on developpe des méthodes de s'anesthiser. (Merci a tous les viniculteurs. Un petit verre de rouge oû de blanc, c'a ne fais pas mal avant and c'a fais moin mal après.)

Apart de ca, les perceptions des gens est a cote la plus a pic a remonter.

La sclérose en plaque n'affecte pas votre sens d'humour (je grogne encore,) ni vos ambitions.

---- "JUNGLE FIRE" par: "girls stuff" http://www.9t9.ch/

"Conclusion:"

Dehors, c'est la jungle.

Mais pour les SPcimens c' n'est pas necessairement plein de bètes féroces.

---- "Wild Pussy In The Jungle O Luv" par: "The Fury...Heat!" http://www.thefuryheat.com/

Outro

msb-0295 What's happening to your newspaper?

msb-0295 What's happening to your newspaper?

intro

Disclaimer! Disclaimer! Disclaimer!

MSBPodcast is "not" any kind of a medical podcast.

It is by and for MSers.

Its purpose is to keep us entertained, to explain our symptoms, to remark on our discoveries, and to raise the general consciousness about our disease.

The path to illness is shadowy, murky and rough strewn.

The path to wellness is lit by the lamp of knowledge.

----

Feedback comes first, so...

I'm getting some feedback to my ideas of setting up something for podcast metrics.

I am also getting some more books to review and some music to play. Oh joy...

The selections on this episode come from a delightful young performer I met at PodCampNYC 2.0. Enjoy.

---- "Sweet July" by: "Natalie Gelman" http://NatalieGelman.com

Feed Forward comes next, so...

This is "your" segment.

Say "your" piece on this segment.

Share with other MSers whatever "you" want to share.

Drop me an email: "charles at MSBPodcast.com"

---- "Rest of the Way" by: "Natalie Gelman" http://NatalieGelman.com

Feed Me comes third, so...

Do you have a therapy, product, good or service that is of interest to MSers?

Consider advertising on this podcast.

Reminders on this segment only cost $0.03 per reminder per download of an episode. (A $30CPM targeted at MSers.)

It can/should lead to a full ad, in text, audio or video, which costs $3.00 per download.

That sounds expensive until you do the math and realize that if nobody downloads it it costs you nothing, unlike print, where you often can't even get an ad in to the specialized journals, or radio or TV where you'd just be wasting your money with the 0.0833% MSers rate of return. (That's about six times "below" the level of "statistical noise".)

But MSBPodcast is 100% in your market, and you only pay per download of your material.

No play, no pay.

Reach the MSers who would buy your therapy, product, good or service, with-out having to waste your advertising money on anyone who is "not" interested...

Send me an email at: "charles (at) MSBPodcast.com"

---- "Half Dead" by: "Natalie Gelman" http://NatalieGelman.com

"Thesis:"

Like film photography before it, printed newspapers are dying. "This" [ http://www.nytimes.com/2008/04/28/business/media/28link.html?ref=business ] article in the New York Times points out what and why.

But this is not something to lament.

---- "Cross Your Heart" by: "Natalie Gelman" http://NatalieGelman.com

"Synthesis:"

Like everything else, the cost of producing a newspaper is always going up. So they're going online.

The metrics for the entire podcasting industry don't equal that of broadcasting.

They never will.

Let me repeat that: "They Never Will".

But the rise of blogs, Digg and Slashdot style comment boards, participatory journalism, podcasts, videocasts, livecasts, Google, Youtube, and wikis have utterly wrecked the old economic model for the production and consumption of information. (Creation is something else though. Those costs have actually risen but the efficiency available because of digitization and computer mediated work flow make it seem like they've gone down.)

Once the spread of information grew greater than what we could get from any broadcast media, the writing was on the wall.

Once the quality of information was more accurate and had better maintainability than what we could get from any broadcast media, the writing was on the wall.

Once the value added by broadcast media was less than the cost of obtaining it over the internet, the writing was on the wall.

From the point of comparative economics, once it is cheaper to use something other than paper or it is cheaper to use something other than a transmitter, (quite apart from the asynchronous client-server nature of the internet which allows us to time-shift and break the tyranny of the clock,) its just a question of time before broadcast prices itself right out of existence, as surely as near-death of the film camera, as surely as the near-death of of the classified ad, as surely as the near-death of the travel agency, as surely as the near death of the typewriter, white-out, the word-processor, the turntable. (Send me your own examples and we can have some fun with this.)

I am not predicting their death.

These media will "not" die.

But, like the automobile made a rarity of buggy whip makers. in the same ways and for the same reasons, producing physical examples of information is too slow, too expensive (but I'm repeating myself, time "is" money after all,) to survive in anything but a niche. (Think about that.)

The internet will do the same for analog transmission of information and digital broadcasting will suffer a slower but inevitable reduction.

Even if broadcasters don't die, they will be off of the transmitters they are currently using by the end of the decade (a sure bet since they're supposed to go digital by February 2009,) and I expect them to wean them selves off of those and not replace them when they start failing.

The internet however is a vastly different world.

There is no scarce resource to control.

That means its impossible to demand the margins that the broadcasters are used to or even need to stay in business.

----

I'm in a particular niche, one that is utterly unserved.

The amount of broadcasting about MS is just about nil.

Given the statistics kept on disease on this planet, since MS strikes approximately 1 in 1,200, the amount of broadcasting about MS should be about one minute per day.

But its not, is it?

But that's broadcasting for you.

Nobody ever said it was representative.

("The news" is really "the events." There's never any time for exposition of the factors that led up to "the events". Some people make an effort but even the best of them fail at being truly objective. [It doesn't matter what the politics of the thrower are, a projective thrown at a window hard enough will break it. That's an objective fact. You can even describe the throw, the release, the parabolic trajectory, the impact and the break modulus of the window using objective metrics, but the rest is all conjecture.])

Broadcasting is all about pretty, happy people, going about their pretty happy lives.

None is ever sick for longer than an episode of "House M.D."

That's not reality, and not even reality TV wants do have to deal with reality.

The 15% of the world that the W.H.O. ("World Health Organization") estimates is living with some disability right now don't ever figure in the broadcast media.

I don't begrudge them not wanting to deal with it.

Hell, I don't want to have to deal with it but I'm stuck with it.

So the internet gives us all a channel, for want of a better word, where I have put more information about how this one MSer is coping with his MS than had ever existed before in history, and that hundreds of people have downloaded from all over the planet (64,000+ downloads from over 120 countries.)

Because of the long-tail of podcasting these figures are real-time when I recorded this and will have grown by the time you read or hear this.

---- "Leave" by: "Natalie Gelman" http://NatalieGelman.com

"Conclusion:"

The economics of information production in the age of the internet have made obsolete the observation by A. J. Liebling of the New Yorker that "Freedom of the press is limited to those who own one".

Anybody can own one. (I used a "Linotronic" [ http://en.wikipedia.org/wiki/Linotronic ] "300" [ http://www.scribd.com/doc/16432/Linotronic-300500-flyer ] imagesetter back in the mid to late 1980s back when I was producing the MS Newstletter for the Ottawa Chapter of the MS Society. [Before commercial typesetting fell to the same comparative cost/price curve.])

But owning one is fundamentally self-defeating. It is too limited in scope and in the reach (both time and space) of the information in can produce.

The internet gives us a means whereby we can engage in "conversations" with each other.

Most of the time, our conversations are not worth the air we breathed to utter them, but they are also at the heart of the very concept of "participatory democracy."

The internet is merely the newest technology through which we are restoring "participatory democracy."

That's good and that's bad, isn't it?

---- "Always Was" by: "Natalie Gelman" http://NatalieGelman.com

Outro