Friday, June 30, 2006

msb-0031 Shouting Love at the Heart of the World

msb-0031 Shouting Love at the Heart of the World

Think of this as an "Homage" to Harlan Ellison.

He's still around, and "KICK"ing. (http://harlanellison.com/kick/kick_rls.htm )

His is a crusade, naw I hate that word and the religious and political connotations surrounding it.

His is a fight to get copyright works off the internet, without the authors' expressed permission.

Did you get that last part? "Without the author's expressed permission."

He's right in many ways, not the least of which is pecuniary.

In fact, he's at the vanguard. Because his opus can be acquired, legally or otherwise, over the internet.

Because it is so compact, a scant few megabytes as opposed of tens or hundreds of megabytes for audio, or multiple gigabytes for video, its is almost trivial to make off with somebody's, for want of a better word, content.

With all of my ranting about the various **AAs and ASCAP/BMI, you'd think I couldn't care less about intellectual property and you'd be so wrong.

I use the material I'm allowed to use for exactly this kind of a show. Its released by artists as part of a larger body of work. They do it to publicise themselves. Its out there as shameless self promotion.

In Harlan case, it would be like releasing some part of a book, possibly a chapter, to see the interest in it. I think that even Harlan would agree to this kind of a release if it was properly attributed and links were provided to his site so that people could purchase the work.

What Harlan objects to is taking the entire work and his getting nothing for it.

That is where DRM gets involved and there are a few schemes out there, like the FairPlay that Apple in using as well as some others, which could protect his interests.

I have nothing against DRM, just some implementations of it are too restrictive and aren't reality based.

Lets look at podcasting properly. As the kind of venture where:
  • artists put out some of their opus, regardless of the medium, to see if we as podcasters are interested, and
  • when we are, we are given their permission, through a contract with the Podcast Music Network, to use it, with proper credit given on the shows notes, in a show podcast to you, the audience
  • whereupon you, as a member of the audience, can decide wether or not to investigate further.
That's business of podcasting. Clean and simple.

We need access to a network of material that we can use to create derivative works, our podcasts.

You can't use Protected AAC song in a podcast... Apple is making its tunes available as Protected AAC and they are unusable even when I was given explicit permission to do so by the creators of the work.

The iTunes Music Store is a 'final consumer' delivery service and every piece of music acquired through iTunes is a 'final consumer' product. However, when I am putting these broadcasts together I am not a 'final consumer.'

I have to use something else and the sources are very different. Hence, the podcasts will likely not sound like the record companies product and the radio output.

And to be honest, after discovering that Tom Waits has four songs on the PMN, I feel that it won't be too long before the PMN picks up every 'commercially problematic' artist out there for use in podcasts.

The RIAA may have protection rights over a huge back catalog owned by the recording companies, and ASCAP/BMI may be part of the enforcement arm, but the industry habit of 'discovering new artists' and then throwing them away like use condoms, is leaving an awful lot of people who are saying "You screwed me once, shame on you."

To paraphrase Bush: 'Screw me twice... Maw... Hmm. You won't get to do that again.'"

To paraphrase Johnny Paycheck now: "Take this recording contract and shove it."

And the PMN is happy to take the discards from the commercial world.

The commercial world has no memory and no loyalty; and their vision of the future doesn't extend beyond the next fiscal quarter.

That makes for an awful lot of pissed off artists and other content producers, and there's a new game in town, the PMN.

Every podcast has associated show notes, mine are at MSBPodcast.com, listing the music and other media used and where to get it. (I'm such a fan-boy, I even include the show notes in the episode [which libsyn.com screws up handing them off to iTunes] and under the lyrics tab in iTunes.)

----

That's fine, but it doesn't pay the rent.

Podcasting is rarely done professionally. And its just as rarely profesionally done.

Getting it done at all used to be extremely expensive.
  • The guys who owned the transmission towers had the broadcasters by the short and curlies,
  • the broadcasters had the record companies by the short and curlies,
  • the record companies had the artists by the short and curlies
  • and so on.
Its the war between economic models: scarsity versus plenty (and everything gets scarse at some point) and oligopolistic protectionism versus "laisser faire" competition.

With computerization, the costs have shrunk to such an extent that even a handicapped person like me with a little money and some interest in a topic and in music can produce a podcast.

In further reflection on the economic model of scarsity, I am trying to get the message out to advertisers that can't possibly afford or justify advertising in the traditional media for drugs, goods and services dealing with MS.

This podcast doesn't cost them much.

Its by $50/thousand downloads.

I'm definitely not there yet and with a maximum of 350,000 MSers as my downloaders, even if I hit 100% of them, it would cost at most $17,500 to run an ad of unlimited length. Its a podcast, if you need time, you've got time.

Compare that with mass media advertising, with budgets of $10,000,000 to introduce a new brand of dog food. When they can't even be sure that the listener or viewer even has a dog.

Is it any wonder that advertising companies are taking a serious, hard look at podcasting as a means of cutting out the waste inherent in broadcasting.

I could write a song about this:

"Are you there?
Do you care?
Will you remember when and where?"

Enough waxing lyrical.

In fact, with web site banner exchanges for Associations and for small and family owned businesses, it doesn't have to cost them a thing.

By virtue of who will download these episodes, us MSers, they are extremely likely to be in the specific market niche that they want to hit: us MSers.

And we get to find out what's out there for us and our needs.

That's the message I'm trying to send out there.

It'll happen.

Its too inefficient to operate in any other way.

And industry hates inefficiency.

msb-0030 4th of July Special

msb-0030 4th of July Special.

Feedback comes first and I got as good as I gave.

I've been in Touch with another podcaster. (Fozzy Bear Yay!)

Travis Goss of the UnRadio Show ( http://theunradioshow.podomatic.com/ ) hosts a talk type of show. I've just downloaded episode 20. I quite like it and I'm back going for the rest of the episodes.

The show is kind of like OtakuGeneration ( http://www.OtakuGeneration.net ) but without their focus on Otaku (which is a self-descriptive Japanese term for variety of geek or fanboy/fangirl obsessed with anime and manga).

This show is quite unlike mine, which is in the genre of NoIdleFrets ( http://noidlefrets.blogspot.com/ ) or the RoadHouse ( http://www.roadhousepodcast.com/ ) or even PodPyrates ( http://jesterstear.libsyn.com/ ) where the hosts play tunes of the music they like.

He liked my selection of music. What more can I ask for?

Maybe we'll do cross promotion (count on that happening real soon, my late cat Wiki is raring to go,) promos, intros for each other's shows, and maybe we'll do Skype interviews of each other.

Its also encouraged me to get in touch with the PodFather, Adam Curry. (Adam has just lost his mother to lung disease so I'm calling to offer my condoleances. I'll leave off mentionning my show 'till some other day.)

Its how I found out about his show.

Maybe I could reach other listeners.

I have an eclectic style, you never know what you're going to listen to, but I have standards, you know it'll be well played.

----

Canada's national holiday is on the first of July, but I'm a Joysey Boy now so I gotta wait an extra three days. What can I say?

I wish it was all beer, burgers, and corn on the cob at a tailgate party before the game, but its going to be ninety degrees or more out there and I'm not venturing away from the air conditioner. Heat causes noise on my frayed cabling and I do not need to become spastic (well not any more that I already am.)

Tai Chi helps by the way. I'm not graceful anymore but at least I'm not falling down after the sessions.

I'm not really going to rant on today because its a freakin' holiday.

But watch out for Thursday's show about Harlan Ellison, who almost right, DRM which is almost wrong, and the economics of scarsity, which is plenty screwed up.

But for now lets just enjoy some tunes.

Friday, June 23, 2006

msb-0028 Morning mahem & msb-0029 Sounds of Silence 0003

msb-0028 Morning mahem msb-0029 Sounds of Silence 0003

Feedback come first but you didn't send me any.

I'm reminded of a Saturday Night Live skit. I think it was with Bill Murray.

He was hosting a radio call-in show on "Federal Funding of Municipal Bonds".

Needless to say he had no callers. (cricket chirps)

In desperation he changed tack about the topic over and over again, all the way to "Nuns!"

----

I am getting some feed back and correspondence from potential advertisers; small or family owned businesses who'd do an interview with us about their product or service and get a link on the MSBPodcast.com site for as long as we'd could have a link on their site.

Total cost to them: $0.00. Total cost to us: $0.00.

They get to advertise their product to MSers for however long the show is up, at least weeks, and keep a link on our site to send our visitors to their sites and we get to advertise the podcast to their visitors.

I really need to work on getting that mascot so that my link is distinctive, not obstrusive but distinctive.

----

The topic last episode was Faces. I went to www.FaceOfMS.org of course, I get Inside MS like plenty of other MSers.

If anybody wants to see what the weird dude in your ears actually looks like, I included a picture; which you can actually date because it was taken in Central Park during Cristo's "Gates" exposition.

FaceOfMS.org is actually an interesting site. Lots of stories to hear, see and read.

But I'm starting to notice that you're mostly younger than me. I'm undecided how I feel about that. Sigh... I'm getting old. Big shock. You get old anyway, no matter what: Tempus Fugit.

But you're all so young and that's a tragedy.

Everybody's smiling in their pictures but I wonder if that's an artifact of having a camera pointed in your face.

I remember a picture of a young woman looking up at a camera with one of those "I'm smiling because you're supposed to smile in pictures" poses, kneeling in the sand on a crowded New York City beach, while her fiancé in the foreground was nearly drowned and was being seen to by paramedics.

It was on the back cover of "Pictures On A Page" by Harold Evans, ISBN: 0-434-90553-4 .

Why was she smiling?

----

This episode is entitled Morning Mayhem, and or is it because, I've found songs about morning.

I wanted to feature a slice of the calendar, at least the days of the week, but I can't play The Bangles' "Just Another Manic Monday" for you and there aren't enough songs about either months of days yet. It'll have to wait.

Did you like the Grand Planetary Tour of episode msb-0025?

I found music for every planet but one and the missing planets were filled by a sattelite of Uranus, and the last song was produced by Pluto Records.

Lets just listen...

Sunday, June 18, 2006

msb-0027 Links and Daisychainsaws...

Feedback come first, but I'm no Adam Curry of the Daily Source Code, Mark Yashimoto Nemcoff of PacificCoastHellway, Johnny Velcro of PodPyrates or Tim Hanson of The Distorted View (or any of the sixty or so other podcasts that I listen to, [three of wich are by MSers, {take THAT mass media }],) so I don't have that much of an audience or, with my focus on MS, even the potential for that much of an audience.

Its still very much of a vanity project on my part ... for now.

At least until the advertising agencies and other media buyers realize that there podcasting is out here and that podcasts like this one are focused on their respective markets.

And they will, partly through the efforts of Adam Curry, Mark Yashimoto Nemcoff, Johnny Velcro and even Tim Hanson with his 'click grid' advertising.

----

I'm writing these pieces sometimes weeks in advance and editing them to reflect whatever's new or topical.

In my case, its the new equipment and software I'm using to create these podcasts.

But you don't care about that.

Or do you? email me, charles@MSBPodcast.com, or write a comment on the episode, again at MSBPodcast.com, and let me know, or you can write them on the blog which is linked to, again from MSBPodcast.com.

----

This episode is titled Links and Daisychainsaws because we're working to link up with the various print media outlets, with reciprocal links.

Got an MS oriented website? We would love to have a link to you on our website and that you have a link to MSBPodcast.com. We'd keep your links as as long as you keep our link up. (Gotta get that mascot for banners and banner ads.)

----

In other news, I working to start up MSBPodcast en Español. That would allow Spanish speaking MSers to have a show dedicated to their MS needs and with their music. (At least all the Hispanic music we can find on the Podsafe Music Network.)

----

I'm reminded of the song "What its Like" by "Everlast". Sadly I can't play it. Thank you RIAA and ASCAP/BMI. Thank you so very fucking much.

Your greed is why artists go unheard and why every body with any special needs are left out in the quiet, lonely cold.

----

I'm sorry about the stupid souding ad at the end of the podcast. Its got this really brain-damaged sounding announcer, but he means well.

See, they're really trying to get your opinion on whatever the people who are paying them are interested in.

They're offering an iPod nano because your email address as proof of taking the survey is really worth that much to them.

In turn the results they get are really worth that much and more to the the people they represent.

And maybe you can drop them a line and tell them that announcer-voice is a real stupid-sounding insult to anyone with an IQ.

(Actually these kinds of ads are why PodShow.com is running a contest, the Earthlink Challenge, to change the face of advertising at adchallenge.podshow.com )

We're afflicted by enough in our lives without having to cope with what only an advertising person could think of as acceptable.

Still, you might be interested. (And I might just be interested in steering you that way because of what I might from them.)

And getting some statistics about my audience is an interesting idea. I know you're out there. The show is downloaded.

Since I got MSBPodcast back up and running properly, maybe you'd like to take the audience survey on MSBPodcast.com. (And then maybe you could email or use either voice link or Skype to tell me what you think of and about it too.)

I really do care about you and were all MSers in the same boat together.

----

I don't marry any stupid women.

My wife Lee is out there beating the bushes and talking with people about this site and this podcast.

She's having more success than I am.

She has much better entre-gens than I do.

My wife has finally 'got it', not MS but about MS, and got with the program and the podcast.

We're sending out copies of our 'Magic Bullet' blurb to the companies that want to advertise on this podcast.

She has also come up with how to apply the barter system for small and family owned businesses.

We will feature their content about their product or service on the podcast and keep a link on our website in exchange for a presence from them: a link from their website.

This will not be an endorsement (unless of course I actually use their product,) but their chance to try out an advertisement for no money exchanged and at a minimum expenditure.

They help us with our advertising and we help them with theirs. They establish a persistent presence on our site and we have a persistent presence in return.

You'll get to hear about what's available to you, for your MS.

Instead of just suffering in the silence enforced by the economics of comprising just 0.0833% of the population.

Because, here, you're 100%!

Thursday, June 15, 2006

msb-0026 I Don't Have the Blues, but I play 'em

Johnny Velcro of Pod Pyrates Podcast ( http://jesterstear.libsyn.com/ ) is a great and gracious host.

Mostly, he has impeccable taste and does the research necessary to keep crud out of your ears.

I try to, but sometimes, I have to admit, the selection for certain themes is still poor in podsafe music.

You heard part of the intro for his show on my last episode ( msb-0025 The Grand Tour ).

All the song info is in the show notes. The photo or illustration credits are in the show notes. You can pick up the notes at MSBPodcast.com or look for them on the episodes or they are repeated on the lyrics tab in iTunes. (The formatting of little info button on the right of the episode is screwy with HTML tags. Libsyn is aware of the problem. They aren't __doing__ anything but I've made them aware.)

And a comment left for the episode you liked, or didn't like, would be appreciated, and you can email me: charles@msbpodcast.com.

----

You may have noticed that the episode ran for nine songs, which is more than a half-hour.

Yup. I've finally switched podcasting platform to break through the 30 minute barrier.

Well, mostly.

I still enjoy recording on my laptop which has a Samson C01U mike hooked up.

As opposed to using the iMac which has an M-Audio MobilePre USB preamp | Audio interface with a pair of AKG C1000S mikes hooked up.

I'm still waiting to record an interview or something that would need my Marantz 670 recorder.

Typical nerd/Boy Scout. All the toys I'm ever likely to need, if the need ever comes up.

I'm off my aging early 2002, 1/2 gig RAM, TiTanium PowerBook and I'm now using my late 2004, 2 gig RAM, G5 iMac.

I've also got a Linux box and a Windows box. They're both using AMD Athlon 64 bit chips and 1+gigs RAM and a storage farm (160, 200, 250, 400 and 400 GB NAS drives).

I don't use those boxes for anything but business.

Its fun being a nerd. I have lots of neat toys.

Well enough with the geek talk.

----

Some MSBPodcast news. I have just received by corporate seal, incorporation papers and things that you don't need to be bothered about. I opened my bank account so that I can accept money from anybody and write cheques to anybody. The legal structure is slowly comin to completion.

----

I wish I could still draw.

I've got an idea for a mascot for this corporation. (Sorry Todd and Kim Maffin but "Larry the Lesion" is one ug-ly, repulsive sucker.

And your 'dating tips' for people with MS had to be the most inane piece I'd heard in a long time.

Either MS is not a factor in a relationship because you don't know, or it is because you do know.

If your disease progresses like most peoples you're going to be on the 'dating circuit' at several points in your life, because people with any kind of chronic disease can't keep their partners. It takes a very special person to do that and, frankly, most people aren't that special.

At some point, like when your mobility is permanently affected, you may have to decide to stand on the side lines to avoid getting smacked in the face by a semi.

Harsh, but life shouldnt require that both parners wear rose tinted glasses so dark that its just a shade off of seeing red.)

Anyway, I was talking to you about my idea for a mascot Mascot: Wiki.

Its an upright back cat, wearing a pale linen jacket and leaning on a red cane.

I thought of getting Bill Holbrook of Kevin and Kell ( http://www.herdthinners.com/ ) to do it for me because his style of art is great. But what he would charge me sort of put that idea on a back burner.

I had $2.5K to 'waste' on the Amanda Monaco, the Lascivious Biddies supporting the "Walk for MS" thing (which was a rained out mess in a lot of ways,) but I think I'll save the money for the art-work until I actually get some income.

----

Lets play some Blues.


msb-0026 I don't have the Blues, but I play 'em.

Theme and 'incidental music' from:
"The Universe of the Blue",
by "Ichiro Makagawa",
http://ichiro-nakagawa-music.blogspirit.com/
no album,
via http://music.podshow.com/

""

Song list:

"Leaving Town Blues",
by "Matt Thorpe",
http://www.onlinerock.com/musicians/mattthorpe/
album: "none",
via http://music.podshow.com/

"Wine-o-blues",
by "Mike Ratza",
http://www.mikeratza.com/Home.html
album: "none",
via http://music.podshow.com/

"Down And Out Blues",
by "Ricky Lewis",
http://rickylewisband.com/
album: "none",
via http://music.podshow.com/

"Keep Your Motor Running",
by "Dave Hole",
http://www.alligatorrecords.com/
album: "none",
via http://music.podshow.com/

"New Stagger Lee Blues",
by "Ross Neilsen",
http://www.rossneilsen.com/
album: "none",
via http://music.podshow.com/

"Amin BAM Blues",
by "Pierre Journel",
http://www.lepcc.net/
album: "none",
via http://music.podshow.com/

"Going Back To Allabama",
by "Siegel-Schwall Band",
http://www.alligatorrecords.com/
album: "none",
via http://music.podshow.com/

"Cold and Blue",
by "Monkeyshine,
http://www.monkeyshineonline.com/
album: "none",
via http://music.podshow.com/

"Landlord a my Door",
by "Son Seals,
http://www.alligatorrecords.com/
album: "none",
via http://music.podshow.com/

----

Photo Credits:

Intro Image:
Photo credit http://www.electricedge.com/greymatter/images2/billsteber.jpg

All the rest are images from:
http://music.podshow.com
or from
the artist's website

----

I'm still rehabbing/redesigning the msb.libsyn.com, MSBPodast.com web site.

None of the links work right now. (Yes they do. :-)

It should be back in operation by next week. (That what I said last week. Right? :-)

You can still leave me comments of the episode at MSBPodcast.com or email me at charles@MSBPodcast.com

Tuesday, June 13, 2006

msb-0025 Another Kind of Grand Tour

Feedback comes first but there was nothing I have any permissions for, except for Johnny Velcro of the PodPyrates Podcast.

----

I'm a little bit of an astromony geek, so I went on a grand tour of the solar system.

Mercury The Reverse Engineers MERCURY IN RETROGRADE
Venus KCentric Venus
earth berman Fall Off The Earth
mars Bubble Christmas Here on Mars
Jupiter after touch Jupiter Blue
Saturn Alexye Nov Dance Of Life on Saturn
Uranus Marc Gunn Titania, Wake My Sweet Queen (Moon of)
Neptune Brent Pocker Neptune's Water
Pluto Pluto Records HORSE the band / Cutsman

Leave the Kuiper belt objects alone.

Like just don't go there man. Just don't go there.

Tuesday, June 06, 2006

msb-0024 Isn't work wonderful? I could watch it all day...

msb-0024 Isn't work wonderful? I could watch it all day...

Feedback goes first but there isn't any.

Phew!

I'm too friggin' busy with this "making a friend from scratch" project.

I'm finally getting to try out some ideas that have been percolating in my mind for years.

I see Objects, instances; Relationships and connections.

Its not just metaphorical. Its hallucinatory. I actually percieve systems that way.

I blame it on my MS.

I used the down time while I was in hospital having an exacerbation, twice, to really think about objects and once again to come up with a descriptive scheme for expressing them visually.

That required thinking about relationships and coming up with some VRML code to present the lot in a browser.

Now I'm thinking about how to automagically generate classes from partially filled object descriptions and instances from partially filled rows of data. But the relationships between the objects are being a bear to come to grips with.

AI is fun! Specially when I'm getting some people to believe in me and my ideas. That makes for a real change.

Oh! Here's a kind of feedback.

You are in for a special treat. Kaye Brewster just got in touch with me. If you liked her music back in episode msb-0004 The Princess of Twee and Rachel Knight, you'll appreciate the upcoming interview. (Then again, like I said, I'm a fan boy.)

Kaye finally got back to me after dealing with college. Having just graduated myself, (I did get an Associates degree,) I can relate to how busy she must have been.

She is recording her portion of the interview we'd agreed upon all those episodes ago.

----

The theme of the last show, msb-0023, was "Waiting".

----

Did you read the review of Teri Garr's Speedbumps in the June/July issue of "inside MS." As glad I am she got the glowing review (it deserves much more. ;-)

However I am the son of a librarian and as such, I am miffed that the editors still don't seem to know about the ISBN code.

There's one on every book that clearly and unambigously identifies the revision/edition, the book, the publisher, the city and country of origin of the book. It looks like a bar code but it clearly identifies the book, Believe it or not.

If you go to Google, Amazon, Borders or even you local public library, all you need is the ISBN to get the book you're looking for. Like ISBN: 1-59463-007-0 will get you Teri Garr's Speedbumps.

There is also something known as an ISSN which would do the same for every issue of "inside MS." But they aren't using it. Heck, I'm applying for the audio equivalent for MSBPodcast.

-----

Now on with the show...

Work is hard to come by when you've got a disease which induces chronic disability.

Its even worse when its episodic, relapsing/remitting.

Worst of all, when it has no outward, visible sign; as long as you don't have to move or talk.

Prejudice is a "knee-jerk" reaction which save a lot of time and which is based on the detection of "otherness".

Its bad to encounter prejudice in our relationship with others.

Living in the 'States now, I am astonished as to how deeply the issue of slavery, and of the prejudice associated with it, runs and how much it has cost everybody because individuals are fundamentally different.

I suffered from, or is it with, the Canadian Franco versus Anglo equivalent. Unlike the black/white situation in the 'States, we didn't even have skin complexion to guide us. We had to "learn" to be ass-holes, it wasn't immediately obvious.

MSers are afflicted enough with having metaphorical wire strippers taken to our nervous systems. We don't need to be further afflicted with the stupidity of people who won't look at you when you're ordering food in a restaurant but instead will ask the person you came with what you'd like to have to eat.

That's just downright rude.

----

Notice that I don't expect you to understand object-oriented programming, or even what I'm on about half the time, but that doesn't mean that I'm taking my audience for a bunch of idiots.

For all I know, maybe one of you knows object-oriented programming and could even teach me a thing or two. (I can hope.)

----

You're bound to know something about something and MS is a part of what we all know.

Like Sting sang: "We share the same biology, regardless of ideology." Of course he was concerned with Russia and America and Reagan vs Gorbachov.

----

There are somethings I'm glad for. The last class of the week was Economic Philosophy. Sitting in that class room fighting to say awake and not run screaming from the entire building as it exploded behind me, (of course not being able to run sort of made that entire scenario impossible.)

I was introduced to the ideas of Joseph Schumpeter (1883-1950) who published "Capitalism, Socialism and Democracy (ISBN: 0061330086, that's ALL you need, really,) in which he coined the phrase: "creative destruction".

Schumpeter thought that capitalism could not survive, not because it would be overthrown by a Marxist proletariat, but because it would be destroyed by its successes.

Hey, that sounds like podcasting versus broadcasting. The new media versus the old media. (But that's a simplistic view. Its not an A versus B position but one of A+B with A and B having to learn to live with each other.)

He believed that capitalism would give rise to a large intellectual class that subsisted by attacking the bourgeois system of private property and freedom which were necessary for the class's existence.

Hey! That sounds like me and my podcast.

But I don't attack anyone. I'm just providing a new medium that we can use instead of being ignored by the economics of broadcasting.

Capitalism is accretive. There may be something new out there but the old doesn't truely disappear.

Its the inevitable shift in economic importance of things that gets people all upset.

There are still buggy whip makers out there, despite the coming of the automobile.

Likewise there will always be broadcasters despite the coming of the internet.

Saturday, May 20, 2006

msb-0022 Ouch!, Audiobooks Speedbumps & msb-0023 Sounds of Silence 0002

msb-0022 Ouch!, Audiobooks Speedbumps & msb-0023 Sounds of Silence 0002

Feedback goes first, but I don't have any. Boo ... hoo... Nobody wants to talk with me. (Its like they all have lives or sumtin'.)

Hey, here's an idea: Why not drop me a line on my web page next to an episode you really liked? Or hated?

Music is a very personal taste. What are your tastes?

I appologise for the fact that I'm fixing my web page. Soon the normal email weblink will be back and I'm adding ways to give me audio feedback on line, on the phone and to Skype me too.

For now you can email me at msb@msbpodcast.com. (Its actually a catch-all re-mailer so you could email me at youdumbshithead@msbpodcast.com and it would probably reach me as well. :-)

----

I'm delighted with the BBC. They added a section for disabled people.

On the third episode it featured somebody (and that's some body! Wow!) with MS.

Its at http://www.bbc.co.uk/ouch/. Its irreverant, funny, topical and well worth the listen.

Go to their website and they explain it better than I can.

----

I've been listening to "Ancestor" and "Infection" by Scott Sigler and its something to really get your mind off of your problems.

You can find his site at http://www.scottsiegler.net .

What friggin' great bunch of audio books.

I started listening yesterday, as I write this, its a couple of weeks in 'real-time' and fell asleep with episode one of "Ancestor" still ringing in my ears and rattling 'round in my brain.

I'm up to episode nine as I write this because I can't pull the buds outta my ears.

(Later: I've finished the book and I gotta tell you it was a real nail chewer right up 'til the end. If you've got a vivid imagination, its positively addictive. Good thing he has already got another one for me to get into.)

I've actually used my iPod to go through a fifteen week course in logic. I love being able to 'attend' the lectures on my iPod without actually having to be there. I might miss the in class interaction but, since there is no way I could actually attend, this is the next best thing.

I've also bought and listened to "Linked: the New Science of Networks" by Albert-Laszlo Barabasi, which is available at the iTunes Music Store.

Okay, those are not podsafe music but they have filled my ears with some great themes. Like wow!

----

I've been reading "Speed Bumps" by Teri Garr (ISBN 1-59463-007-0)

She is a driven and talented (but very driven) woman. (Did I mention she is driven? :-)

Its a great read. A funny, charming and a very personal look at Ms. Garr. her childhood, her adolescence, her career and her struggles to underestand and come to grips with her own MS.

Go buy it!

Its as interesting and inspirational a book as I've had a chance to read in a long time.

She and I share something: Rebif. (Hey Serono, want a podcaster as your spokes person?)

I also share her view of MS.

Its a speedbump in the parking lot of life, and we're all getting to that 'final exit' anyway.

----

Now on with the show.

Greensleves is the only tune attributed to Henry VIII and like all royalty, he isn't getting any, royalties that is.

That's going straight into the pockets of the RIAA.

What a useless bunch of bloody tripe chewers.

Their heads covered in gore as they eat the living liver of some musical Prometheus.

I'm putting these podsafe shows together and they aren't getting a friggin' dime out of it.

They must be muttering "We'll get you. Your ass is grass. We'll squeeze our pocketful of music lobbists and we'll kill your show; you sick li'l cripple. We'll squash you like the insignificant bug you are."

Okay. That's bear baiting, but they're not my masters. The worst thing I can wish on them is that they have to deal with themselves.

----

I'm having a wonderful time with my life and thriving, in spite of having MS.

I've got a job that's not too demanding.

I've got side projects that are at the bleeding edge of computer science to keep me sane.

I've got podcasting and the occasional feedback.

And I've got a life with Lee.

What the fuck more can a man ask for?

(Okay, I wouldn't mind being able to play guitar again, dance again or even walk normally again. But overall, things are good.)

----

As always I'm hungry for feedback from you. How'd you like the last show? I shut up and let the music speak for me. (Anybody figure out the theme? Don't feel bad if you didn't. It was rather obscure.)

I've got another one lined up too.

----

msb-0023 Sounds of Silence

Simon & Garfunkle aren't involved.

Today I thought I'd give you a rest from my ranting and just play da music, man; just play da music.

Friday, May 19, 2006

msb-0020 Musical Musings & msb-0021 Sounds of Silence 0001

msb-0020 Musical Musings & msb-0021 Sounds of Silence 0001

Feed back come first.

Hello Juliana. Its always nice to hear from you. I'm glad you had a lovely day for the MS Walk in Michigan. We had rain for our in New York City. It was an absolute deluge. I didn't go out there.

It was enough that C.C. Chapman and Amanda Monaco were out there. They got soaked while I stayed dry and raised a glass to their health.

I don't know about using nutritional supplements specifically for MS and for remyelination but maybe someone out there knows.

Yo! Audience! Drop me a line. Juliana wants to know if there are any foods or supplements that you noticed make a difference in alleviating your symptoms or helping you remyelinate.

I eat fatty lamb chops but I suspect that that's just a matter of taste. (And I eat duck too, but that's out of revenge for the flu virus. :-)

Its more anecdotal than scientific but any little bit helps.

You hit the nail right on the head with your sentence "I think the worst part of the disease is that it effects a human being's sensuality, i.e. the information we take in through our five sense and therefore the very essence of humanity."

There isn't any more, but that's not necessarily a bad thing. :-)

----

This episode is about the selection of music on these podcasts.

The selection is poor, well maybe not so poor, but limited because I can't access my personal music collection to create these podcasts.

I am a musical omnivore.

As long as its well played, I like it;
  • Beebop,
  • blues (Mississipi Delta or Chicago style,)
  • classical, (baroque, romantic or modern,)
  • Dixieland,
  • Effin' Annie,
  • folk in almost all its forms,
  • jazz in almost all its forms, (though I don't enjoy it when it sounds like someone is blowing a sax like fist-fucking an elephant,)
  • rock in almost all its forms, (though I don't enjoy it when it sounds like someone is blowing an axe like fist-fucking the lead singer,)
  • show tunes,
  • Tuvan throat singing,
instrumental or lyrical. I like it all.

I own a great deal of it. My sixty gig iPod is stuffed and I'm waiting for Apple to come out with a one hundred twenty gigger iPod because I have over 400 vinyl albums waiting to be digitized.

And I've heard all of it.

I've got Carmina Burana "Fortuna Imperatrix Mundi: O Fortuna" playing in my ears as I type this. The first time I heard that live was at McGill university back in the seventies.

So much music that I can't share and artists that I can't promote because of the excessive greed of the RIAA, ASCAP/BMI and the rest of 'em.

I'd say screw 'em if it wasn't for their humorless phalanx of lawyers that they use as an enforcement arm.

Basically, if I don't know a piece of music is copyright free or if I don't have the specific permission from the artist, I can't take any chances.

That severely limits my selection to play from and it severily limits your selection to hear from too.

I could have themed shows with a better selection of tunes, and since I give links in all my show notes, you could be buying the artists' opus.

But that's not going to happen until RIAA, ASCAP/BMI and the rest of 'em wake up and smell the "venti latte."

They're still operating on a model of control over a scarce resource.

They try to collect whatever the market will bear at every step of the way until its impossible for someone to start a broadcast for a small market, and lets face it MS is 0.083% of the potential market. I can't afford thousands a year to get a license for music I don't want to play; the Brittany Spears and the other manufactured idle idols.

Now with podcasting, I can reach that 0.083% and the people who make drugs, products or provide services that they couldn't reach before.

The problem is that the RIAA, ASCAP/BMI and the rest of 'em are so greedy that I can't use any of my own music. I don't dare. I don't want to get my ass sued off.

So we're using podsafe music by independent artists, people who don't appeal to the mass marketers out there, or people who got fed up with having their artistic vision compromised by the record labels.

Those labels are only in business end of the music business and only care about their bottom line. To them. its a product, like a screw, and distinguishibility and individuality is not a good thing.

Its bad enough when the artist has to come up with the same sound time after time but they have to come up with the same sound as everybody else.

For the most part, the A&R people are a kind of virulent pond scum that smothers all individuality while infecting everything they touch.

"You got to have 'that sound', man. Maybe if you recorded at [insertname of studio here], [insert name of recording engineer here] could use his backup crew to give you 'that sound.' "

At that point you, as an artist, have probably already lost. You've got a contract and you're recording but its not going to be your music.

That kind of crap can only work when [insert your name] really mesh with [insert name of recording engineer here] and [insert name of recording engineer here] approaches the project with his skill but not with his preconceptions.

Then its golden; an all too rare collaboration; a melding of your skills at your instrument and his skills at the console.

Otherwise you'll be indinguishable; a homogenized product fed into the maw of the machine and shat out before the record company's next meal.

And you as an artist are paying for it.

You don't think the contract you signed before any of this came about was actually going to pay you a dime before they took all of their expenses did you?

Oh, and you've got to tour on your own dime too.

You didn't think that they were actually promoting this turkey, did you?

As far as they're concerned, you're on the hook for the x thousand copies that got spewed out of the CD press, at their rates, not at their cost.

That's why they're so screwed up with the internet.

They're confusing their product with their process.

Their product is your music, whether as artist or as audience.

Their process is to gouge you, whether as artist or as audience.

But the 'scarce resource' model doesn't apply when recording equipment is digital.

For the artist, you can record what you want, mix tracks, craft a CDs worth of tracks, or not, and put it out on the 'net.

The quality is limited by your own talent and when you say 'Enough, I wanna move on'.

Your success is limited to the appeal of your sound, and screw the A&R men.

msb-0021 Sounds of Silence

Simon & Garfunkle aren't involved.

This show is music only because I've got some interesting work to get through.

Today I thought I'd give you a rest from my ranting and just play da music, man; just play da music.

Wednesday, May 17, 2006

msb-0019 Jockeying for Position

Feedback come first so here goes:

There wasn't any...

So what am I doing about it? Enjoy! Relax... Gather my wits and some strength before it hits.

----

I am going to Podcasters Across Borders at the end of June, Friday June 23rd and Saturday June 24th, to be exact, so there's bound to be some influences one way and/or the other.

I'm hoping to speak to some other 'small market' podcasters.

I'm also hoping to have a good time and geek away the week-end. :-)

Lee's coming with me to keep me on the straight and narrow, but I still intend to enjoy Uncle Seth and the rest of the shows.

I'm encouraged by the success and longetivity of the Otaku Generation podcast. Talk about a specialized interest podcast. They are still running. They are at episode #49 and show no sign of podfading (and those guys still make me laugh so ... I download the 'cast and laugh to myself on the PATH train during the morning commute.)

I am in a holding pattern as far as MS stuff goes so today, I get to DJ away.

----

I've been reading "Polio An American Story" (ISBN: 0-19-515294-8) and I found out that polio actually affected 1 in 3,000. That's three times fewer people than MS.

But they happened to be mostly children and that scared the crap out of people. Well, infantile paralysis would. Also the progress of the disease is dramatically different.

Roosevelt got it, so much for the infantile part, and he brought something that other patients didn't.

I refer of course to money.

Money bought profile and when the rich got less rich during the depression of the thirties, he used his profile to tap into the general population with the "March of Dimes."

That raised more money, a dime at a time, than could ever have been raised at parties for the rich, a hundred dollars a plate at a time.

That also raised the consciousness of the general public and it launched lots of interest for the 'stake holders', the health care facilities, research facilities, doctors, nurses, and, most importantly, for the people afflicted by polio.

In those days the broadcasting industry was still nascent and newspaper space could be bought for cheap.

The consumer attention span could be focused, a page at a time, one minute at a time, on the disease.

And it worked! Salk and Sabin became bitter rivals and some of the research establishments engaged in some unscrupulous folderol, but Polio was eventually neutralized as a disease.

Now imagine what could be done with a pool or research subjects, read guiney pigs, almost three times the size.

Now the FDA is not going to allow the kind of medical torture that was engaged in back in the day and progress is slow and steady partly because of it, but its cumulative.

Mick Jager got it wrong. Its the song not the singer.

If, in the medical world, the equivalent to the RIAA and ASCAP/BMI and the rest of 'em were to enforce their vision of intellectual property and we were reduced to using a 'clean room' approach, as we are currently stuck with when trying to develop sofware, the state of medecine would be set back to the middle ages.

But the profiteers aren't in charge entirely so medecine builds on the discoveries of the past.

Wednesday, May 10, 2006

msb-0018 Gift of giving

Feedback goes first, so here goes.

You're not rid of my voice and my 5 tunes per show any time soon. But I hope not to be doing this all by myself forever.

I feel good about all the feedback my wife got about this podcast at the caregiver's confab two week-ends ago, or at least the idea behind this podcast.

The general consensus is that its a good way to fill the great sucking void concerning MS and MS news in the general for-profit broad-band media.

I also am getting some more feedback from other sources.

Apart from trying to meet me face to face, I've just paid for and activated the external number (201)984-7448 and my SkypeIn voice mail so you can call me and leave me messages from anywhere anytime with or without a computer, or you can call my Skype account at MSBPodcast.

(I'm going to have to get some new business cards printed. :-)

This podcast is a great way to combat the loneliness and feeling of isolation that MSers get from the general lack of knowledge about the disease, and the pervasive lack of exposure in the media.

----

I've been reading "Robin Hood Was Right", by Chuck Colins and Pam Rogers (ISBN: 0-393-32085-5) and reading about the history of "The March Of Dimes" covered in "Polio An American Story" by David M. Oshinsky (ISBN: 0-19-515294-8)

I am getting and gaining from a deeper understanding of the democratization of philantropy.

In my case, its leading to trying to run this podcast for you and for the various MS organizations, pharmacos and service providers by running along the bleeding edge of technology razor and making "wire" time (as opposed to air time,) available to us all.

Yes its all coming out of my pocket right now, but we're worth it, damn it.

----

Its about time for us MSers to take advantage of what the internet has brought us.

Shining glass fibers and copper wires that unite us in our paradoxical sense of being alone.

Its a very disconnecting thing, this isolation and lack of empathy among the general population, who simply can't relate to our experience of life.

They can't "grok" it because they just can't, anymore than I could "grok" it before getting this disease myself.

But I did.

Since then, since the stupid disease became an undeniable fact in my life, I have given some thought to all of the other isolating factors at play in our life.

Its sort of warped.

----

Technology, as exemplified by the iPod, can be the ultimate isolating factor.

We can seal ourselves off behind our earbuds.

Getting fed content by the media conglomerates, who can collect money broadcasting the noise with which we shut ourselves off from everyone else.

That was the state of things with Sonys' Walkman.

Tastes in music didn't matter. I could be listening to "Rat Music for Rat People" or "Sibelius" or "Bach" and I was alone listening to whatever I'd paid for.

Now with Podcasting, I can listen to whatever I pull from the 'net.

While that could be not much better that listening to a Walkman, because its the 'net, I have so much more music available to me, stuff that the record execs ignore because they can't figure out how to make money from it, (lets face it, they can't figure out a lot of things,) and I can give and get feedback.

I am no longer alone; because its the 'net I am no longer limited to whatever the media conglomerates find it the most profitable to sell me.

They can't "grok" podcasting anymore than they could "grok" MS, because they just can't, anymore than I could "grok" it before getting this disease myself.

But I did. And I do.

----

My tastes in music are only partially reflected in this podcasts.

While I have a really extensive collection of music, 800+CDs and 400 vinyl albums, I can't share any of it with you.

The RIAA, ASCAP/BMI and the entire suite of lawyers related acronyms would haul my skinny li'l butt to the hoosegow if I played any of it without paying them.

Not that they created any of it, composed any of it, or played on any of it.

No, they just want me to fork over all my dough because their clients, the record companies, don't really care about promoting the people who did create it or composed it or played on any of it.

So I'm stuck bringing you the music I can play. Luckily, there's more and more of that. It's not as extensive as I'd like and there are some examples, some artists and some genres that I doubt I'll ever be to play. There was only one Edith Piaf and she's walled off from this podcast as surely as if she'd never existed.

In their view, the politics of scarcity still apply.

That's why they're trying to turn the internet, a scalable, asynchronous medium for content delivery into a streaming medium under corporate control with rate tiers for delivery reliability.

They're selling you a load of crap. With podcasting, we don't have to depend on them for a damn thing.

We don't have to be reduced to mere spigots for mammon while our needs for meaningful information go begging.

Wednesday, April 26, 2006

msb-0017 Start Me Up

I remember the Rolling Stones singing that back in '81.

(Yeah, I'm old. And no, I'm not going to play it because its not podsafe.

While I feel confident that Mick Jagger et alia has better things to do than complain about playing that song on my/our little MSBPodcast, the RIAA, ASCAP/BMI have nothing better to do.

Its their job to sue my butt off if I threaten their 'Intellectual Property.'

Must be a bitch wanting to sue people for thinking of a song though, after they spent all that money trying to achieve that very effect.

Hell, I don't feel safe even mentionning it except as a passing reference to a cultural touchstone.)

Little did I know that four years later, I'd need to heed the word after shooting the herd.

I was having a major friggin' attack.

They'd put me on intravenous ACTH and it was simply dreadful.

I went from sort of recovering to flat on my back and vomiting blood as the cow steroids screwed with my, well, with everything.

I spend a couple of days flat on my back while some student interns poked around and prodded me with sticks until I ended up for a week in Neuro-ICU at the Ottawa General hospital.

After a week of that, discovering what a catather was and how good it feels to get it out, and what moistening your lips with a wet gauze really does for quenching your thirst, not much, I finally got placed in a ward, still flat on my back.

I also remember telling my admiting doctor, a cute read-head who was still working to get her own admission into the exalted world of doctors: "Well. Now we begin to rebuild a man."

I repeated it twice before giving up since she just was not making out what I was saying.

ACTH was so bad that I got real healthy and I stayed real healthy for twelve years.

I didn't want to go through that again.

I produced the Ottawa MS Chapter newsletter for a little while.

But life changed, I discovered Smalltalk and Object-0riented programming and I ended up travelling all over the place both on this continent and in Europe.

Lemme tell you a story about spending the night at Logan airport.

I think I go on and on about building a specialty channel for MS, and I do and its blazingly obvious, and talking about it has become boring, even to me.

But I spent the entire night at Logan at Logan airport watching the billiard balls go through those wire races and I know what being bored really is.

Hour after soul crushing hour without even a security guard around watching those
billiard balls go through those wire races on and on and on and on.

In fact, I'd lost touch with my disease and didn't know that they were no longer carving up cow brains for the ACTH any more.

I was given cortizone for the following attack and I found out that there even disease modifying treatments.

I chose Rebif for no other reason than it offered me the fewest jabs a week for my treatment.

I hate needles. If they ever want to test inhalers so I could breathe in my medecine, I'll sign right up.

My father worked for a pharmaceutical firm, Merk, Sharp and Dohme in Montreal, and I learned to avoid puncturing my skin at all costs.

I'd grown up in the fifties when there was still polio, people still died from eating too many crab apples and they definitely died from infections.

It didn't help the rampant paranoia that my family knew somebody who'd died from slipping on ice and falling on the ashes that were spread to try and prevent slipping. Real effective there no?

She'd died from the infection she's got from making a bad landing on the ashes and ice. She was a young healthy twenty something.

Nowadays, there are several disease modifying agents: Avonex, Betaseron, Copaxone, Novantrone, Rebif and Tysabri and who knows what else is coming out of the lab soon?

What exactly they do, I'm not qualified to tell you.

Ask a doctor. Maybe he could hazard a guess as to the mechanisms. On the one hand, its science and fundamentally knowable and explicable, on the other hand, its voodoo that works.

Basically, I fall back on the old Bob and Doug MacKensey line from SCTV: "How it happened? Like, we don't know, eh? But there it is... The Miracle of Back Bacon."

I've got a question for the people who download me through iTunes:

I'm trying to figure out if people ever go "command i" on an episode?

Maybe its a feature nobody uses much.

I know about it because have to.

After I've written an episode, sometimes weeks in advance like this one, and I've hunted down and downloaded some interesting music off of music.podshow.com
  • I use Garage Band to record an episode,
  • mix the music and
  • any other audio features I need to do,
  • then I export to iTunes,
  • in iTunes I convert to MP3,
  • add the art and
  • show notes before
I copy and paste the show notes and get the MP3 uploaded to lisbyn.com.

You can look for the lyrics tab on iTunes and the show notes on what music I played are there and the websites of the artists.

You can also look for the pictures or images tab and you can see what pictures I downloaded with the episode.

I really should get some of the other podcatchers I see appearing on the list I get on the libsyn.com statistics web page tab, but my Mac is full enough.

I'm working on some news, but this episode was written weeks ago as you hear this, and things have not progressed a lot.

While Lee went to the caregiver's conference and I went to a presentation on acupuncture.

Don't ask, I'm scared of needles, I was squirming in my seat the whole time and it hade nothing to do with MS. It had to do with being scared of puctures. I like my integumen unpunctured, thank ye very much.

But things are happening.

msb-0016 Safety first.

Feedback goes first so:

Thank you Christina. Like you say: "I have MS. It doesn't have me."

I am reading your blog right now. Its a "clock sponge."

I'll take your comment about well written blogs as a high compliment indeed.

Yours' certainly is. "Poésie" is a state of soul. Your writings may not be poetry but they certainly are "de la poésie".

Safe journey.

----

As I stumble around my condo, I am reminded of "Elmer the Safety Elephant."

Many of the hazards we face are of our own making.

Not finding a way to integrate safety into our decor is our own fault.

I'm not talking about those ugly wall mounted knurled aluminium poles and bars which we can find in almost any hospital toilet, but any kind of architectural element which can serve to steady a person with uncertain gait.

I'm reminded of the chair rails which ran around my old house on Melrose street in Montreal.

They divided the wall horizontally at chair back height and had lots of sections vertically.

I'm remembering them because, while they had been a pain in the butt to wall paper, in between all those vertical risers that weren't the width of the rolls we were hanging and required a lot of careful cutting and trimming, they would have been great to have along the walls of the condo over here.

A smooth, unified drywall has two big disadvantages:
  • One, they're so smooth there is no place to hold onto for support.
  • Two, they get finger and hand prints, so you hate to touch them.
My door jambs require frequent cleaning because unsteadiness is an inevitable effect of MS.

Its hard to remain perfectly vertical.

It takes coordination that we usually lose as the disease progresses, along with our ability to maintain our balance.

Its rarely an inner ear problem. It is instead a matter of coordinating all of our muscles to act in concert to maintain our upright bipedal gait as we try to move ourselves from one spot to another.

We can thank the Bahaus school of design for introducing these, uh, innovations to North America in the 1920s and '30s.

We can further thank the American home builders for seizing on the cost reductions, so quickly that its now rare to find an appartment without such spare decoration.

Bare walls were turned into a selling point; they became a feature instead of a detraction.

They certainly came into vogue after the second world war, when there was such a rush to build up the suburbs, to get everybody driving, and to move everybody out of the 'dirty, grimy cities' and out onto their own ranch-type-style tract houses.

Robert Moses was king. He built the city and the suburbs of New York city, destroying great swathes of it for highways and paving it all as he went.

And his example was followed by Moses' wannnabees in all metroplitan centers across the planet.

Downtown Kansas City, Misouri was practically deserted when I lived there; with skyscrapers built in the thirties standing empty in the center of town. Empty!

When I wanted to go shopping, I had to rent a car and drive miles to the malls.

What's good for GM is good for the country; right?

Never mind that there have been countless plays, movies, songs and psychology books written about how bad an idea it was to rip the trolley tracks, like they literally did in LA, and go quietly nuts in the 'burbs.

Just drop another of mother's little helpers, drive off the the mall in a land boat and consume your way to happiness.

Now that oil is hovering around the seventy dollar a barrel mark since we're having to compete with the rest of the world for every drop; every car is too big, too gas guzzling; every commute is too far, too long.

And every innovation in communication technology is making such senseless, restless motion all the more unnecessary.

We're now faced with having to abandon the suburbs; because we've gotten older, or maybe just wiser, and the effort of maintaining the suburban lifestyle, with its alienation, its loneliness and its remoteness, just isn't worth the commute.

I love living cheek by jowl with Manhattan, New York City.

Around Journal Square or downtown in Jersey City are nice places to live, work and play. Its only improving as people rediscover it.

By the time the new World Trade Center tower is standing, it should be great.

----

I've got to come up with a closer, a way to separate the content from the ads that will follow the show (I told you some thing was happening ... and I'm working out something with the National MS Society to put "pro-bono" ads their national events and updates at the end of these shows.

I've got to do some smooth talking to figure out a way to run regional ads in a way that doesn't break the non-existent budget.)

Friday, April 21, 2006

msb-0015 The Domino effect

Tiling things, butting things side by side, edge to edge on some surface, is the principle behind mosaics. Don't worry, I won't go into the four color map theorem, tesseracts, R. Buckminster Fuller's dymaxion spheres or any obscure topological stuff. I just wanna discuss the principle of juxtraposition.

Tiling things of different size, different colors, different shapes is how the Etruscans, Romans and Greeks adorned some of their buidings.

The beauty of Roman baths still has the power to dazzle, even a thousand years after the last Roman bather dipped a toe in.

Canada has always been considered to be a cultural mosaic.

Its never been a melting pot, where individuality is burned away, melted in the crucible of intolerance for difference into a slag of commonality.

Okay, that might be construed as a slur on my current home and chosen place of residence, so before you show up with pitch-forks, tar and feathers, lets me say it isn't.

It is instead a cautionary tale on the effects of mass media.

Broadcasting a single message with a single voice is how mass media works.

One voice with one message is what Lenie Reifenstal used to sell the Nazis to the world.

One voice with one message is how most dictatorships keep control; they speak with the one voice, which has the effect of stifling the dissenting voices.

A dictator's power structure is also faced with the silencing of all other voices, but that is usually acceptable colateral damage to a dictator.

We MSers are faced with the same de facto situation, but in economic terms.

There are now a thousand TV channels on cable with a focus on slightly different demographic, psychographic, geographic and/or behavioral appeal, but they are still lined up to extract the most money from the most people.

That means we're still left out.

All the MSers on the planet, the two hundred and fifty thousand of us is the 'States, or even the two and a half million of us world-wide, don't add up to the potential audience of a local cable channel in New York City or Los Angeles or Dallas/Fort Worth.

Okay, the potential audience might be more when heath care providers and health care workers are taken into consideration, but it still doesn't add up to as many people as might catch a used car ad on whatever TV channel you choose.

Never mind that the audience is not in the market for a used car at that very moment. They might be at some point and they'll at least know the name of the dealership. Advertising is an entire industry built on that hope.

The medium of podcasting is self-focusing.

Nobody is likely to come here for the content unless they have an interest in MS.

Now, nobody is going to spend their money in trying to reach 0.0833% of the population when 99.9166% of the population is making so much noise that we can't even hear ourselves think.

But podcasting cuts through the noise.

It is a self-selecting communication channel where people who need to subscribe to get the information they need.

Podcasting is just what the, uh, doctor ordered.

You can catch the used car ad on any chanel, so I don't want their sh-, uh, stuff. I want MS products and services.

Since I use intend to use Kiptronics for delivery of the ads, they can be localized for a specific market. They can be tracked down to a specific IP range and/or area code so the Texas-only ads don't run in California or vice versa.

This podcast is my attempt to become the man in the middle.

The person who will listen to you, my audience, and will 'cast to you what products and services are available to you.

The cost reversals of the current economic situation and the cost savings of podcasting are like forces of nature, 130 to 1 and the proposed postal rate increace only makes it more so.

And when this takes off, and it will, I hope to repeat my success in setting up this podcast by helping other organizations creating their own podcasts, perhaps establishing an umbrella group to help us achieve some economies of scale and finally getting channels of communications open where we have had none before.

And I hope that I'm playing some tunes that you like.

And if you don't like 'em or if you have any requests, email me or Skype me. The links are right on the web page of MSBPodcast.com . Feedback. Yea...

msb-0014 Illness as something other than a metaphor

Feed back goes first so here it is.

Juliana is was lovely to read your email.

You are indeed getting the whole point of putting out these podcasts. We are finding a voice and no longer have to care about being ignored by broadcasters and the mass media.

MSBPodcast is one of many, oh alright, of a few podcasts out there, but it is the first of those to bring the tools of the media to the people who up 'till now weren't able to find a voice amid the clamour.

I have no competition. I have collaborators. There is plenty on room. In fact there is all of cyber-space.

I am glad that Todd Maffin and his wife Kim are doing their podcast: www.MSPodcast.org . I listen to him and his wife and I hope he is listening to mine. I'm trying a different tack to accomplish the same goal. We are bringing our voices to MS. There is no such thing as being too loud in this "Storm Force Gale" of competing media forces.

----

The font contest is now re-opened. I've decided that while the Canadian MS society is locked into the logo type, they now only have an outline of the M and the S to work with, we shouldn't be limited like that. I'll still give $50 at the iTunes Music Store to anyone who can create or adapt a font for use on this site and for this podcast.

----

On Friday, I sort of re-discovered Tai-Chi but this time with this handicapped teacher. I don't have his entire story, yet...

He has agreed to be interviewed on my podcast so that will be coming out as a special edition.

While I have neurological scarring, he has physical scarring. But, seing that I am moving so much better and faster after one session, a new plateau for me, I am sure that it is actually shrinking my "somatic cage" closer to my own physical boundaries.

----

Yehah!

I reached a thousand downloads on Sunday April 30'th 2006. Average audience of 55 with over 175 once on show #7.

No they're not all at once, but it is a now over thousand downloads.

To celebrate, you're getting a change of format. I'm coming out today and Friday, as you can tell by the escape, uh, release of this episode on Monday evening.

----

And Lee had a great idea.

I could tailor a show around one person, their taste in music and their personalities.

Like my friend Eugene says: "Sounds like a plan, man". (He's a great Solaris SysAdmin. He's taking care of my Linux box, and he a really good friend.)

If you'd like to hear a podsafe version of you on the show, drop me an email or Skype me. (I received a call from Poland earlier. This stuff works!)

Email and Skype are on the left-hand side of the MSBPodcast.com page.

----

Now on with the 'cast:

I want to open with an apology to Susan Sontag for my choice of title for this episode.

[seraphim]

I read, understood and loved her book "Illness as a Metaphor" back in 1979. Actually, I'd recommend it to anybody who's going through any kind of major medical caca. With her it was cancer. She's since revised and updated in to include the reaction to AIDS.

It can infact apply to being cast as a medical pariah due to any condition.

----

I'd been reading a tome on "Economic Geography" for school.

Apart from the fact that it seems to be written by Post-Modern Phemenologists, (the kind who make arguments like: "I am a poet therefore everything that I write must be poetry" and proceed to scribble something on scraps torn off of old grocery bags things that look more like laundry lists,) there is no mention of made throughout the entire book of what happens if they, or anyone else, ever gets sick.

This is something that I and I suspect all of my audience are intimately familiar with.

As are all actuaries and insurance companies.

Yes, we got in front of whatever bus it was that hit us, and are now lying in the middle of the road, obstructing globalized and regional economic traffic.

But what role do we, a small but growing percentage of the aging world population, play in the economic realities of the world.

We are the reason health-care costs are escalating.

If it wasn't for us, there would be no need for health-care.

And screw geography, the health care costs are escalating everywhere for everybody.

Multiple sclerosis may be more prevalent in the northern hemisphere (in northern Europe, continental North America, and Australasia, it is estimated that about one of every 1000 citizens suffers from multiple sclerosis, or about 2.5 million people are afflicted) but Dengue Fever is almost unheard of up here in the north. (There being around 40 million cases of dengue fever and several hundred thousand cases of dengue hemorhagic fever each year.) (I'm quoting wikipedia epidimiology stats for these figures.)

Dengue Fever is in fact a bigger problem for humanity than MS is, world wide, but they're even poorer than we are and we all know what makes media run don't we? Money.

The fact remains that, between MS, MD, ALS, CF, DF and the rest of the aplhabet soup of human frailties, a statisticaly significant portion of the human race is, at one time or another, sick with and/or slowly dying from something or other.

Up to now, we all have been quiet compared with the general clamour.

A great deal of the silence was because we could not compete with the loud voices of all the people screaming for cheaper gas or cheaper government or cheaper S.U.V.s and all of the other people screaming for them to buy their new and improved Turnip Twaddlers.

And the people who are paying the price for that silence is us.

Well, I might suggest that we speak up more effectively and efficiently; and with a single loud voice.

This podcast, amongst others, and the internet's capacity to unite us with shiny glass fibers, are parts of the megaphone we have to use.

If would be more efficient, read lower in cost, to use the internet to cut through the noise.

When I'm ailing I do not want to have to hear all about what Madge/Madonna, Hale Berry, J.Lo. or some other vapid, vacuous and vain celebrity is barely wearing this season.

And the religiosos with their Bible or Torah or Q'ran or Veda don't even enter into this discussion.

When I'm ailing, I want information from the people who can do something about my condition. I want to read about and hear from people who are competing to get treatments to me.

(Whaddda ya kno'? I am a capitalist after all.

I dont know whether to cheer or to lament that.

Sickness and health are not market conditions.

They don't conform to the general 'shape' of market economics.

I don't know what could/should be done about fitting in the warm and fuzzies of a socialist perspective with the cold hard facts of market economics...

(Actually, that is part of the malaise afflicting France. The populace are leaning left against the marketeers who are leaning right.)

I'm thinking that it might make more sense to reserve a portion of the global GDP in proportion to the ratio of sick to healthy people, and to hold it to pay for medical expenses.

Then the health sector can apply market forces for their portion of the total pie.

I mean there must be some way of injecting a bit of reality into capitalism.

Even arch capitalists get sick.

Otherwise I'm dead to the wider world in all but body and spirit and I have more to contribute.

That would be so inefficient, and I hate inefficiency.)

Off my soap box and back to the topic:

I can't hear my news because the brodcasters are busy trying to extract the most money from the greatest number of people.

That means air time goes to whom ever can afford to pay the most bucks per second.

They are exploiting a mode of making money that is only slightly over a hundred years old and it is based on the economics of scarcity; who really owns access to the air waves?

And if that leaves me and my view of news off the air, I should drop dead?

"No I don't want to buy a friggin' Turnip Twaddler. I don't care if its supposed to be new and improved... Piss off."

Pharma. Co.s, health-care providers and service workers can all benefit from the same low cost megaphone that I am using, if we work together.

Not cooperating mind, get real, but a friendly competition on a level, open and uncrowded playing field.

What I am proposing is a new way to use media, by avoiding it all together. Podcasting is a better choice than the current silence enforced by the turnip twaddler pushers.

----

I have attended a few simposia, a few conferences and I'm no dummy and I've learned a lot but they have articles and presentations with titles that sound like they're way over my poor head.

Its not a question of dumbing stuff down, and I hate it when people talk down to me, but its a matter of finding a way through the jargon laden verbiage.

I hope Lee's not going to bee too mystified at the next caregiver's event. (May 7th, 2006 in New York City.) Knowing her, she won't let herself be too intimidated. She's going there to do something she's really good at, network with people. She really much better at doing that than I am.

Maybe I can persuade her to speak into the mike as she tell me about it. :-)

That's what I hope this podcast brings to my audience. That's what Todd Maffin and his wife Kim bring to me with their MSPodcast.org

I don't have to talk down to anyone but, really, I avoid sesquipedalian words, with mixed Greek and Latin roots. (Just like I won't eat food containing ingredients that I can't pronounce.)

If not, if I'm as guilty of bullshitting as the rest of these people, email me off of the web page at MSBPodcast.com and tell me that I'm full of crap.

Lets see if we can all find a way to use these podcasts.

I know what I want from it.

Now, you people can get some feed back to me, so you can be counted and heard too.

And the pharmas and health service cos. can get on board too. We'll be talking to them and hearing from them too. (And since they stand to make some money from us, they should pay to run their ads. Its a lot cheaper than mailing the packages to me and it might save them some money in the short as well as the long run.)

Get strong Juliana.

TTFN. (Ta Ta For Now)

Thursday, April 20, 2006

msb-0013 Tragically Hip. That's me.

Well, as you can tell by the "smooth as silk" intro, GrooveIT by Denis Kitchen off of the Podsafe Music Network, people are starting to get back to me about this MS 'specialty' podcasting (and my mesage hasn't even appeared in New Jersey's MS Connections yet. :-)

It makes perfect sense that the pharma co.s would get back to me, since it so much cheaper to advertise on this tightly focused podcast than trying to use the mail, at great expense, to send stuff to one person at one time, and to send stuff only once.

Podcasts are great because they cost so littler; like 160 times less.

And that's just the beginning.

Lets talk reality now.

A pharma co can develop the greatest cure for MS in the world, but if nobody with MS ever hears about it, they have wasted all their time, money, blood, sweat and tears. (Though I suspect the blood was provided by the Guiney-pi, pi, pi..., MSers during the drug trials.)

People only hear about any product once when they have a diagnosed exacerbation. Sadly, if you've just been diagnosed with MS, you're not into making any decisions, for any reason.

The people who need to make those decisions are the same people who are in moderate to heavy denial about their diagnosis.

Its not fun to be diagnosed with MS and it really isn't fun getting sick enough to require the diagnosis.

They pretend that its not happening or that its all going to go away, like a bad dream or a nightmare. They'll wake up real soon now and it'll all be over.

They are not going to be in the most receptive frame of mind.

I know a few people with MS and its rare to be clear-headed about this, or any other, life-altering disease.

Lke it not, MS is a life-altering disease.

It has put me throught many changes I would have rather have done without, and those have happened mainly since 1996.

Before then, I could pretend that I was strong and fit. (I just couldn't write worth a crap, but I could type like a demon. Good thing I was a programmer and have since gone on to project management.)

Since then, the effects of the disease won't be denied, though I still do it. (And I blame my unnaturally sunny disposition on MS [How's that for irony.])

Back to the topic:

Why do we want this, uh, news from the pharma pulpit?

Hey, we were just walking on the sidewalk when we got run over by a bus called MS.

I want to hear about any damn thing that will stop or better yet reverse the damage and get me walking normally again. I'm not even asking to play guitar or to dance again, though that would be luverly.

I'm asking for the same kind of news from rehab clinics, most of whom don't know about MS and keep trying stuff for people who'd been hit by real busses but only their meat got mashed instead of their nerves.

My healing is drastically different from the average patient they see and my limits are drastically different from the average patient they see.

MS has taken wire strippers to my nervous system.

The rest of me is healthy as a friggin' horse.

I'm muscular, fit, a slender 170, to the point where I have trouble finding fat spots to inject myself with Rebif.

Its not that I didn't want to show improvement or that I'm in any way weak muscularly, its that MS has taken wire strippers to my nervous system.

I no longer have any fine motor control. I can no longer make grand sweeping gestures (Not without knocking something over anyway. :-)

Man, I'm all over the map today. Back to the topic:

And what do we want to tell them about their injectables? (Like: Can't you come up with a inhaler like the asthma medecines use and stop making me squirm just thinking about taking my meds. Besides, injections are ways for getting hepatitis A, B and C. )

Well, you can't make any kind of progress if you can't get any fedback about why people aren't taking your pharmaceutical products or following your rehab regimen, (and people who aren't taking your product, or following your rehab regimen aren't going to bother telling you about why they aren't taking your product.

That is why I have an anonymous survey form you could/should/would be filling out on the MSBPodcast.com page.

The questionaire processing and statistics gathering are actually quite quite scientific. I took statistics in school and I can report that it really going to provide them with statistically significant data, and that I can (and will) tailor the questionaires to fill in any statistical points that are required.

Of course, its still anonymous and its still optional.

And I can get feedback of all kinds through email ( mailto:msb@artdogs.org ) or through skype ( skype:MSBPodcast?call )

Well, at last "School's out" ... And that would be just a perfect song for the occasion. Hmmm. Maybe I'll bug Vincent Furnier (aka Alice Cooper) for permission to revive that song next. Nah, let him enjoy his golf game in peace.

MCNY is trying but they also just don't get what its like being a disabled older student.

And I'm not going to be the one to teach them.

Their rules, procedures and bureaucracy (read trite tripe and BS) just aren't worth fighting with them about or putting up with at any age, never mind at my age.

I don't have the energy, the time or the inclination to drag their part of the American educational system out of the late Eighteenth Century. Before there even were typewriters.

They can take their Bachelor's degree, make a pointy little dunce cap out of it, pluck a quill off a duck's ass and stick it.

I don't need the piece of paper and I have many more important things to devote my time, energy, remaining strength and the rest of my life to; like this podcast.

So I'm taking the Associate's degree in Business, walking out and never going back.

School's really out for me.

Saturday, April 15, 2006

msb-0012 It's finals and I don't have time to talk a lot.

Its finals at MCNY this week and I don't have time to talk a lot.

Bet you're all relieved to hear that.

This week, unless people get back to me with emails, and I really not counting on that, this show is going to be about one book review, "Begging Mercy, Offering Grace" by Rachel Knight, and some podsafe tunes that I want to share with you.

I'm still waiting to complete the interview with Kay Brewster.

The interview with Amanda Manaco is tentatively scheduled for some time in May, 2006.

I'll be going to "Podcasters Without Borders" in June, 2006 in Kingston, Ontario Canada and I'll be trying to interview C C Chapman then and there.

Not onto "Begging Mercy, Offering Grace" by Rachel Knight.

This is not my usual read. I mostly read technical manuals, science books, software books and other non-fiction books.

Well, I also read Terry Pratchetts and news papers.

But my reading is definitely not of a fantasy and romance genre.

Thus I was pleasantly surprised at my reactions to this book.

It was engagingly written and an addictive read. I found myself caring about Jenny/Jehane, Alex, their parents, brother, friends and other close relationships.

This book was well witten, with care and attention. I do not know how many revisions it went through or how long this book took to write but it was definitely worth it.

This book brought me hours and hours of enjoyment.

I started off slow because the subject, an unashamed romance novel, is definitely not my usual read but it took very little perseverance on my part before I found myself mesmerised by the characters. They are extremely well fleshed out and well motivated. I could understand and relate to them.

Also, I have noticed that I suffer from a spelling hiccup. Any mis-spelling in a book tends to halt me in my tracks and destroy the flow of the words as they flow from the page to my brain.

But this time, I couldn't even tell you if any words were misspelt because the book was so well crafted that either, the book is perfect, something which is becoming all too rare, even in the major presses, or the characters were just that engaging, even after the demands of my life demanded many interruptions.

I can definitely recommend this book to anyone, even a nerd like me. It will always stay as a guilty pleasure: I enjoyed a romance novel. (And I'm looking forward to her next one.)

Rachel Knight, Beggin Mercy, Offering Grace.
ISBN 1-4116-5323-8.
ID:168029 at www.lulu.com

This week as a special treat, its The Tragically Hip ( http://www.thehip.com ) as a closer. They got back to me with an email in record time. They are familiar with MS because the webmeister's best friend has developped it. That really sucks. (And to their friend I say: If you wanna talk about it, or just need an ear to listen to what's been happening to you, I'm reachable on my web page dude.)

They are in my humble opinion THE BEST Canadian band ever. They're playing "Blow At High Dough".

Now, if you've been following this podcast at all, you know that I'm Canadian, that I love "Three Dead Trolls in a Baggie," but you've never been exposed to my absolute adoration for "The Tragically Hip".

The are an unbelievably good band and have had Canada in their thrall for simply for fuckin' ever. Why? ... What are you? Hearin' impared? If you are, check out the lyrics... Its absolute poetry set to kick-ass music. Go to their site, ( http://www.thehip.com ), order their CDs, 'cause I haven't begun to describe how damn good they are. They are full of goodie good goodness.

Friday, April 07, 2006

msb-0011 Its not a free pass, dummy

You know, life sometimes mystifies me.

The episodes where I'm just blathering on have statistics that give me hope with their quick uptakes and heavy volume. (As I write this I'm approaching 900 total downloads.)

The episodes where I'm explaining what I'm trying to do with podcasting for special needs, like MS, MD, ALS and the rest of the alphabet soup of frailties that we're subject to, and offering a prize or a paying job to take hold of the mike... You must be mind readers, because nobody even bothers to download them. You're missing all the meaningfull stuff. Stuff that could help us all.

My libsyn.com subscriber statistics look like a crocodile's teeth.

Well, never mind.

Rome wasn't built in a day. I'm in this for the long haul, like my MS.

I'm promoting podcasting in the New Jersey chapters' MS Connection newsletter and I'm going to see about promoting it in the National MS Society's newsletter. (They're using MP3 but they haven't caught on to RSS [Real Simple Syndication,] or doing any video.)

Podcasting really is the magic bullet which turns the great media silence of being in an absolutely abject minority, merely one voice in twelve hundred, all clamouring for attention, into a channel where we are powerful, where our issues can be discussed and where information about MS products, services, news, views, reviews and interviews can be recorded, deposited, obtained, shared and kept up to date.

(Do I sound like an evangelist yet? I should. I have Marshall McLuhan to thank for my perspective on the media. :-)

----

I've just been reminded by my wife, Lee, that, yes, I have MS, but its not a free pass against getting anything else.

As I sit here with my second bad spring cold of the year, I have to admit she's absolutely right.

I feel like warmed over crap. I'm having to edit out all the snorting, sneezing, coughing and wheezing.

And it doesn't stop there. I've had "Montezuma's revenge." (I'm reminded of the Monty Python "Australian Table Wine" skit: "This is a fine emetic wine which really open up the sluices at both ends." Yeah; it got pretty gross.)

I am sure that my suspectibility to colds and other infections, like rosacia around my injection sites, is a side-effect of my use of Rebif, which depresses the immune system. Still, its better than an exacerbation.

----

I was more than half-serious about signing up for a drug trial acting on my suggestion of replacing the current self-injection drug delivery mechanism with an inhaler, just like most asthma drug are currently using, which would use the natural permeable membrane of my lungs to deliver the prions of Rebif directly into my blood stream; rather than depending on the limphatic system to deliver he drug.

Inhalation is what the tobacco industry has been using to deliver nicotine into our bloodstreams for hundreds of years. And crack cocaine uses the same mechanism.

Why can't we learn something from all the pot-heads out there? Why can't we learn what the illicit drug dealers out there already know? Lungs are a good drug delivery system.

----

I've just finished watching an extremely depressing PBS special about "David Vetter", the "Boy in the Bubble" who had no immune system. He died from having none, I have one that has tried to kill me every fifteen years or so. (Mine may suck, and bite, but its still better that his was, or make that wasnt.)

I also hate the thought of a colonoscopy. Sue me. I'm 53 and due for one but its not something that I'm in a hurry to do.

Its not a road I care to go down, though my supper on its way there now.

Sorry, but either I laugh or I cry, and I'd rather find the humor in any situation. I dont care if indomitable good spirits are a side effect of having MS. I'm glad to have them.

Worse than that, I can see (not smell though thankfully,) what would draw a researcher to study, uh, shit. (Yeah, I know the Latin term for it, feces, but we're all adults here and we're not bound by any FCC regulation, so I say shit. And if you don't like it ... tough shit!)

Digestion is a fascinating process. There is all sorts of chemical magic happening to my dinner as is travels from the plate to the bowl. (Actually, Lee says that its a sign that we're getting old. The movements we care about go from the ballet to the bowel.)

If I think about it, how does a piece of brocolli go from being raw food, a living plant, through all those processes?:
  • mastication (the chewing of my food, involving volitional nerves,)
  • saporation (the tasting of my food, a sensory experience,) (Okay, I'm not too sure of the existance of the actual term but sapor is Latin for taste.)
  • gluttination (the swallowing of my food, involving involuntary nerves,)
  • digestion (the actual breaking down of my food into simpler chemical components through the use of acids secreted by my stomach lining, involving a whole lot of involuntary nerves,)
  • digestion part deux, (the absorbtion of these simpler compounds by my intestines, both small and large, involving nerves controlling the passage of the materiel [it no longer resembles brocolli at this point,])
  • elimination (involving a great deal of nervous activity to coordinate the timing of things so I don't embarrass myself.)
All that chemical and nervous activity and I don't really care for broccoli all that much.

Our bodies are wonderous machines really. And as machines they are fundamentally knowable. Which is why I have a real belief that MS will be conquered and its mechanisms will be understood.

----

(The phrases I despise the most in the world are "Its a mystery" in the mouth of a priest, or "It is the will of Allah" from the beard of an immam, or any other utterance denoting intellectual lazyness and the kind of flabby thinking which denotes a willfull lack of intellectual resources and a condemnation of curiosity.

Religion's really got a lot to answer for, but its science that actually comes up with replies.

Religion is really the anti-media. They only have the one book, all other books are bad for you because you might get ideas, and you are only allowed to memorize it not interpret it. That's to be left to a synod. You're only ever allowed to follow along in the book. [Sorry for the aside but its one of those Québecois remnants of my personality that crops up from time to time.])

----

Now our minds are a diffferent sort of neurological question.

Julian Jaynes, in "The Origin of Consciousness in the Breakdown of the Bicameral Mind" thought that the evolution of the carpus callosom was at the root of being human. (What can I say? I had weird reading tastes as a child and as a teenager and a quick look at my library tells me that they didn't improve all that much. :-) Before that we were merely reactive and animal in our relationship with the world.

Having owned my dog and cat and knowing first-hand how willfull they can be, I can sort of see his point. You don't need a membership in the human race to behave alternatively like a saint loved by all and like a psychotic brat. But having owned my dog and my cat I don't believe that conciousness arose out of such gross anatomy. My pets had brains and personalities too; both of them.

Marvin Minsky in "The Society of Mind" posits that consciousness, the being that I call me, comes into existence as a part of a process of communication, as the result of the different parts of the brain communicating the results of their various functions and that conciousness arises out of the need to coordinate their efforts.

Much of this occurs over the nervous pathways, the corpus callosom, the pale gray part of my brain connecting the right and left hemispheres, so its got some thing to do with what Julian Jaynes was referring to. (I recommend hitting a web site for more information, one I've found that's got all kinds of info is http://www.fmrib.ox.ac.uk/~stuart/thesis/chapter_3/section3_2.html )

Dylan William, in a short, 8 page paper called "The half-second delay: what follows?" for Kings College London School of Education says that there is an enormous disparity betwen our sensory data, which he estimates is processed by the unconscious mind at about 11 million bits per second and our conscious mind which he estimates only handles about 50 bits per second.

11,000,000bps versus 50bps is a disparity of several orders of magnitude. His paper is about pedagogy. I'm about neurological disease mechanisms. But I also happen to think that finding effective ways to teach and how we process information at a deep contextual level are related.

Its a question of 'noise' overlaid onto the signal. Where we differ, Mr. William and I, is that I happen to be concerned about noise being overlaid on every step of the process from sensory signal acquisition (the 11 Mbps) all the way to how we treat the meta-data or symbolic information (at 50bps) in our brain.

Actually, the half second delay is responsable for a whole lot of effects , from not going Berserker on my last visit to the post office, to being able to smile and nod sagely when I would rather tell some idiot to go nod off in a swimming pool. Preferably at the bottom.

The disconnect between thinking and acting has spared a lot of people embarassing disembowelments; and me a life behind bars.

(There are other things about MS which mean that we can become aware of the half second pause and use the time it gives us to come up with better alternatives that won't land us in hot water. I've heard that tetra-hydra-canabinol gives some of the same effects, [I should ask Montel Wiliams about it, that is if I can ever get in touch with him. He's not so hot when it comes to answering his emails.])

Lesions, the nasty damage caused by our out-of-whack immune system, are present in our nervous system and in our brain. I have stared at my MRI scans and been both fascinated and repelled at the damage wrought by MS.

Its very strange to look at the cabling in my brain and at the areas that are being stripped of myelin without my conscious knowledge. It should hurt like bloody hell. Instead, everything's quiet. I remember back when I was diagnosed that the doctor at the Ottawa General, an expert in seizures, remarking to a colleague while they were poring over my PET scan results that my "medulla was absolutely fried."

I can't help but wonder if this affecting my personality, my sense of self. I mean it must be.

Its a question of how badly degraded the process of translating those 11Mbps down to the 50bps that my conscious brain actually works with.

Given the amazing circuitry, its powers of self-healing and self-organizing, and the almost unbelievably commonplace complexity of translating the we, the society of mind posited by Marvin Minsky, into the me, the 'I' that controls this slowly failing body (and slowly failing means that I'm getting older and does not necessarily refer to my MS,) I am constantly amazed that this is even possible.

But it must be possible since both my dog and my cat had personality to spare.

Enough blathering on...

----

Old news about Kaye:

I promised you that I would be speaking with Kaye on the show soon. Well, the interview with Kaye Brewster (A.K.A. Polopop) is happening as I write this. It will be on a topic specific special episode coming up soon (like any day now.)

This next bit is for Josh Jacobson, this will appeal to the horn player in him:

I went to Liberty Hall here in Jersey City and heard some great jazz musicians, the "Spirit of Life Ensemble," and was just blown away. Josh, you would have loved the horn players and the groovy sounds that they played. (I can't believe I just said/wrote down groovy, nobody says groovy anymore, but that's exactly what the sounds were. Hot dance-hall jazz, daddy-o.)

I may have been starting to catch a cold but my ears were definitely working. I was especially impressed by the jazz composition talent of their drummer, Victor Jones.

I'm trying to get permission to play "Pine Brook Paradigm 'Forget About It' " and you'll be hearing it as soon as I get it.