Friday, February 16, 2007

msb-0115 In or Out?

msb-0115 In or Out?


Welcome to a podcast about having MS, by somebody who's got it and is intimately aware of all the crap that this disease causes.

But this podcast is not about getting sick with MS.

Its about getting better in spite of MS.

Its about living with MS.

Its also about the music I pick. (And you could make some suggestions too... :-)

---- "THE LONGER NOW" by: "Reverse Engineers"

Feedback come first, so...

There was definitely some from Homer [ ].

I think I've been able to talk him into doing a Greek equivalent of this show, with special focus on nutrition (Who better than a Greek? It was Hippocrates who said: "Let food be thy medicine, and medicine be thy food." [Well actually Hippocrates said "Αφήστε τα τρόφιμα να είναι η ιατρική δική σου και η ιατρική είναι τα τρόφιμά δικά σου" which is why I need Homer to communicate with his own people. {Isn't the internet wonderful? It can "find" anything. You just have to be able to understand it. (Sort of like talking to your doctor... [We'll get back to this subject in Main Topic, Part "Deux".])}])

---- "YOU CONTROL THE SUN" by: "Reverse Engineers"

Feed Forward come next, so...

I have no new stuff for you.

My guesting on the "Roadtrip To Oblivion" was, uh, rescheduled.

Seems Jason Oblivion's life is a lot, uh, busier than mine. :-)

It also seems that Jason has a lot to learn about managing a project, project evaluation and review (PERT) and critical path mangement (CPM) so that things happen as best that can, when best then can instead of all coming together at the last moment in one humongous cluster-[expletive deleted].

I'm laughing because its not my show and its not my problem.

It cost me nothing and so far has provided me with a ring-side seat at a Roman amphitheater where a world of hurt is happening right before my eyes. All I have to do is avoid getting splashed with the blood and the jiggly bits (entrails) of the gladiators.

I always do a post-implementation review to analyze what went right, what went so-so and what went "poof". It saves me so much pain later on if I knew what happened this time and avoid everything that I know didn't work before on the next attempts.

I suspect that most 'casts that "podfade" do so because the producer/host/chief-cook-and-bottle-washer doesn't plan properly.

It becomes a lot of work to careen from one episode to the next, going from calamity to catastrophe to disaster until you tire and just podfade to black.

I always plan things out a few episodes ahead and I have back-ups, contingencies and alternatives just in case. If plan A gets waylayed, I've got plan B.

For example, this episode has a sentence in Greek and to read it properly I have bought some some Greek text to speech software as well as asking Homer to read it for me. For a third alternative, I could always use the pizza delivery man who just happens to be Greek.

Which did I use? Which am I going to use? That's for me to know. (Well, there all kinds of delays, so I used an on-line resource [] :-)


My wife's efforts to get my goa... uh, to get me to read something else than books on computing, software testing and podcasting was put on hiatus this weekend as she went away for a spiritual retreat and left me alone for a few days. (I love my wife very much, but, lets face it, we can use a rest from each other every now and then. :-)

---- "BE HERE TONIGHT" by: "Reverse Engineers"

Feed Me! come third, so...

Do you have a therapy, product, good or service that is of interest to MSers?

Consider advertising on this podcast.

Reminders on this segment only cost $0.03 per reminder per download of an episode. (A $30CPM targeted at MSers.)

It can/should lead to a full ad, in text, audio or video, which costs $3.00 per download.

That sounds expensive until you do the math and realize that if nobody downloads it it costs you nothing, unlike print, where you often can't even get an ad in to the specialized journals, or radio or TV where you'd just be wasting your money with the 0.0833% MSers rate of return. (That's about six times "below" the level of "statistical noise".)

But MSBPodcast is 100% in your market, and you only pay per download of your material.

No play, no pay.

Reach the MSers who would buy your therapy, product, good or service, with-out having to waste your advertising money on anyone who is "not" interested...

Send me an email at: charles (at)

---- "WEATHERMAN" by: "Reverse Engineers"

Main Topic: "In or Out?"

Or maybe both...

Because of its effects on the myelin, eventually exposing the nerves to damage, MS affect both sensing and effecting nerves. Something strips away the sheathing of the nerves, usually our own immune system. It may be caused by several mechanisms, and each mechanism deserves its own investigation, but it is the result of having some biotic agent

On the incoming side, we're subject to sensory distortion.

On the out going side, we experience the noise as spasticity, difficulty in properly controlling our motions.

But its all internal. Its all made up of the weird shit that we feel and the movements we make that weren't the ones that we intended.

That part of why its so hard to communicate with a doctor.

The sensations we experience are not real indications of some trauma. We feel pain but its sometimes just a phantom, a ghost, a phantasm.

This is not just an itch we cant scratch.

It can sometimes be partial or complete blindness or deafness or patches of skin which feel like they're on fire or on ice.

Doctors are focused on cause and effect. When the cause isn't some tauma that they can see and slather with some salve, they are just as lost as we are.

If you know anything about the ego that come along with being in medicine, you know that doctors hate uncertainty.

---- "SUNSHINE WITH THE SHADE" by: "Reverse Engineers"

Main Topic, part "deux",

I wonder if other high-order life forms, like wales, dolphins, birds, uh, basically anything that chirps, barks, or uses other forms of sound as the medium for transmitting information, suffers from the problems we do.

As humans we are at a grievous disadvantage when it comes to communication.

Due to accidents of geography we have fractured from a single species, "homo sapiens sapiens" into all these polyglot groupings.

There are "thousands" of separate languages spoken by the same throats. We have myriad sounds to refer to the same thing.

In English, there is a particular problem because there is no fixed vowel sound.

It makes actually speaking English prone to 'linguistic drift'.

There is no right way or wrong way to sound out a written word.

We may all have the consonants down but the vowels and the emphasis or strength we place on a cadence of speech, are sounded differently from generation to generation, from region to region, and even from speaker to speaker.

English is hard to speak so its hard to learn, and its hard to learn because its hard to speak, and its hard to learn and/or speak because the alphabet is more of a suggestion than a speech capture mechanism.

"Merde alors!"

---- "MERCURY IN RETROGRADE" by: "Reverse Engineers"



jasonoblivion said...

Most Podcast's Pod fade because there is little drive to continue, when all anyone dose is bitch, complain, and analyze everything you do. What a lot of people don't understand is that most podcaster's have a full and busy life outside thier podcast. So I guess it's true to say that yes, My life is busier than yours. You have no idea, all you know is Jason Oblivion, You have no clue who I really am.

-Jason Oblivion

Charles-A. Rovira said...

I agree, but I think the lack of planning, (and communications with collaborators, [if you'd have answered any of the email and told me what was happening, {just a short reply saying "I'm gonna be late but we're working on it.!" Some } communication ] does a lot to alleviate anxiety and) has something to do with they podfade.

(Man! I can't believe all those parentheses all worked out like that. :-)

That's why the focus of this podcast is on the music and with living with the disease and not on ME.

Once you get over the cathartic effect of hearing yourself on a podcast, just wailing your little story, either the podcast is about more than just you, or you just STFU.

(People who can maintain that sort of emotional intensity are usually on drugs to stay up there, or they're on less fun drugs to "keep the flame alive", cause they're on the way out [and they don't let you use the good cutlery either.])

That's why I like your podcast so much.

You have something original, fresh, and with some legs on it.

You could be doing this for years, mate, years.

Ever seen the British slice-of-life, semi-soap-opera "Coronation Street"?

Most, if not all by now, of the original cast has died of old age, and the show just goes on.

Its not just some techno-geeky twenty-something age twirp or guys sitting around a basement, spread-legged, wagging their knees back and forth and moaning that life is b-o-r-i-n-g. (You feel like screaming: "Get the Hell of the goddamn couch and go and get a life you moron and then come back and tell us about it. [Until then, please turn the equipment off. You're just wasting electricity."])

You're right, I have no clue about who your are.

And I neither want to nor need to.

We'll likely never meet, mostly through the fact that my disease restricts my mobility. Its got nothing to do with anything else or with the personalities involved.

I have a full life too, (in real life I'm a senior project manager of testing for an off-shore out-sourcing firm. You wouldn't believe how complicated and minutiae-driven the job is and just how many butts there are to kiss, [and one to cover, mine,]) and it flows smoothly, because I work at it.

And I work at it first by communicating with my team. (In this case an ad-hoc one, self-assembled from widely geographically separated [which causes some time zone issues] individuals with different skill sets. [And, Jason, I wasn't asking you to walk on water. You'd already set that up yourself.])

A short reply at the beginning saves a growing lot of aggravation later.

Instead of leaving me in the dark, wondering if my email ever got through or if it bought the spam filter.

You have no clue who I really am either, nor should we care.

That's why the US miltary created PERT and CPM. Way back before you were born, Jason. But not back before I was born. They created the Polaris missile.

What have you created that wasn't solipsistic (but enjoyable) wanking?

Charles-A Rovira (which is my real name, [because I stand behind my words.])

So where the fucking script? ass-hole.

Anonymous said...

there is no script for you. You have done what a lot of people do, and think that podcasting is a very serious institution that slightly defines us as people. I do my show for fun and give a people a place to go explore the dark, and funny aspects of life observation. I don't like the way you have entered my world demanding things of me, and then have the balls to try your psychobabble approach to speed up a process that as no momentum. I'm interested in entertaining this retarded game of "whatever" you go do your show,and I'll do mine. I owe you no explanation in my lack of correspondence. When you send a show Episode to be done like Victor, and I agree to the project, then you have leverage for a complaint. And just because I don't go tossing my name, address, phone number, etc, all over the web dose not mean I don't stand behind my words. All it means Is I choose to separate myself from border line weirdos like you.

-Jason Oblivion (Not My real name Cuz of freaks like you)

Charles-A. Rovira said...

Well, Jason Oblivion,

you lose because your assuming that I cared about being on your 'cast.

I just though it would have been neat and sweet because you've got some original story lines.

So, from what I'm reading, you're assuming that:
• everybody hates you,
• everybody hates what you do,
• we're all, like, 65 million year old dinosaur fossils,
• there's a unified conglomerate dedicated to the blandification of the 'Net and the 'web,
• we're all trying to put you down because "we're the man" and you can't do those kinds of things or use those words.

Well you're wrong.

Some of us were rebels and politically left of the left before your parents were even born.

And I'll still listen to your show, because you can't stop me, without being Phyric and stupid about it anyway.

And if you're waiting for me to explode in a torrent of invective and filth and give you any satisfaction that way, Fuggedaboudit!