Monday, March 30, 2009

spc_wspc_TheDisabilityShow 0006

spc_wspc_TheDisabilityShow 0006

media files:

m4a ->


Disclaimer! Disclaimer! Disclaimer!

This show is "not" any kind of a medical show /podcast.

It is by and for the disabled, and if we can help reach across the chasm of questions and indifference to the other side of the rainbow of ability ... well and good.

Its purpose is to keep us entertained, to explain our symptoms, to remark on our discoveries, and to raise the general consciousness about our disabilities.

The path to disability is shadowy, murky and rough strewn.

The path to wellness is lit by the lamp of knowledge.

---- ""

We got PSAs:


Campus Safety urges students, faculty and staff to sign up for text alerts, online @

This will be used to inform students, faculty and staff in an emergency.

This was useful last year in the bomb scare.

To sign up, students must know their Spirit ID # (Bring their Saint Peter's College ID.)


Here's a proper, honest to goodness, real promo. :-)



Cross-promo with



Today we have a special treat.

I'm going to play an episode of the MSBPodcast that I did about a chat with a fellow MSer by the name of "Hillary Rubin"


msb-0353 An Interview with Hillary Rubin


Disclaimer! Disclaimer! Disclaimer!

MSBPodcast is "not" any kind of a medical podcast.

It is by and for MSers.

Its purpose is to keep us entertained, to explain our symptoms, to remark on our discoveries, and to raise the general consciousness about our disease.

The path to illness is shadowy, murky and rough strewn.

The path to wellness is lit by the lamp of knowledge.


I have a quick and easy, painless and not too figgin' nosy customer survey that I really, really, really need you to go and fill out.

You can go to my podcast "page" [ ], click on the button on the left hand side of the page and anonymously answer a few simple questions.

I really need this.


Feedback comes first, so...

This week we're, ah who'm I kiddin', "I" 'm featuring an interview with Hillary Ruben.

I met her through some fed back via Twitter from YoGeek who used to work for LibSyn, the people who host and track the audio portion of this show.

---- "Citizens of the World Edit" by: "Daphne Rubin-Vega"

Feed Forward comes next, so...

This is "your" segment.

Say "your" piece on this segment.

Share with other MSers whatever "you" want to share.

Drop us an email: "charles at"

---- "After" by: "Carmen Hillary"

Feed Me comes third, so...

I am taking a new tack so you may yet hear from a sponsor.

But for now, enjoy my demented rantings.

---- "Home" by: "Carmen Hillary"


As I said in the feedback segment, I was introduced to Ms. Rubin in a rather circuitous route.

I never expected it would lead to meeting a fascinating woman and another MSer who, while not in denial, is calling herself someone who has been diagnosed with MS but who doesn't have MS.

Or, more to the point, MS certainly doesn't have her.

Ms Rubin is a Yoga instructor, a teacher, a "transformational health expert"... well Ms Rubin is ms Rubin, a unique creature of rare spiritual and physical strength and wisdom.

You'll get to meet her after this next song.

---- "Watching You Dance" by: "Carmen Hillary"


Give me a break folks.

You really should download the podcast if you want to hear Ms. Rubin. Its well worth it.

Just click on the following link and subscribe:

I don't want to type that much and, apart from telling you to goto and , I'd rather you heard it from her own lips.

---- "Angel Now" by: "Daphne Rubin-Vega"


So there you have Hillary Rubin's take on MS and MSers.

(And for those of you who feel cheated by this transcript and its brevity, drop me a line and I'll try to get ,

I quite like her refreshing approach towards and disability, the focus being on the ability and less on the "dis".

And listen for further episodes of this podcast because I'm going to be interviewing someone from Teva Pharmaceutical [ ] about their "Bravo" trial of an oral MS medicine.

Okay, its not available through an inhaler yet (but I "will" make sure to tell him about my own lay-person's thoughts on using the largest permeable membrane in the human body, the lungs, like the tobacco and marijuana cigarette manufacturers did centuries ago to make lots and lots of money.)

But at least its something better than jabbing myself with needles, which leads to all kinds of injection site complication, like cysts, opportunistic infections, swelling, rosacea among others, and meets with all kinds of patient resistance and abandonment of the therapy.

---- "Hope remains" by: "Sonic Mystery"



Theme and 'incidental music' from:
by: "Guy David",
no album,
via personal contract

Song list

"Citizens of the World Edit"
by: "Daphne Rubin-Vega"
album: "none"

by: "Carmen Hillary"
album: "none"

by: "Carmen Hillary"
album: "none"

"Watching You Dance"
by: "Carmen Hillary"
album: "none"

"Angel Now"
by: "Daphne Rubin-Vega"
album: "none"

"Hope remains"
by: "Sonic Mystery"
album: "none"


Photo Credits:

All images, synchronized with the songs, are of the artists and come via except when they aren't. :-)



go to by books page at



Guy David - intro & theme



iTunes link to download this show

Multiple Sclerosis Blog

This podcast:

The Ouch Podcast


You can leave me comments of the episode at // or

email me at charles (at)



The show notes, incuding the complete text of this episode, and any and all links to the artists featured, are on a server ... somewhere.

And this show is also being podcast in m4a format, which means that it you use a compatible player, like iTunes, you get the content divided up into chapters with images and "hot links" to the the web, on the topic of the chapter or to accompany the music.


Miss Chris said...

Hey there! How's it going? I did your survey... hope it is helpful. :)

Charles-A. Rovira said...

Hello Miss Chris,

every comment and survey helps. :-)

Its going well. I'm enjoying my butt off.

I will be recording an interview with a researcher and/or a doctor via Skype from Teva Pharmaceutical over the coming weeks regarding the Bravo test of their laquinimod therapy in pill form!

Soon* we may be able to opt out of sticking ourselves with friggin' needles.

The trials are in phase III so I think its the last set of trials before FDA approval.

*) Never be soon enough for me.