Wednesday, April 18, 2007

msb-0134 Aging & MS as opposed to Aging vs. MS

msb-0134 Aging & MS as opposed to Aging vs. MS


As far as I currently know, there was even less of an attempt at justification for marching onto the grounds of a college campus, twice, and causing the greatest loss of life by a single gunman in the short and extremely violent history of the United States, than we find in a middle eastern suicide bomber.

I am stunned speechless.

Call me a Moral Absolutist, but I will never condone what this piece of human trash has done.

Not even if it was being done to him out of vengeance.

I'd let him rot in jail forever.

But he escaped my justice by killing himself.

---- "Give it Up " by: "Griddle"

Feedback come first, so...

Apart from one email from Miss Chris, one from Herrad and one from Homer there's not much to report.

Oh, wait, I have to tell you that MDMHvonPA's about to regale us with another round-up from the blog-o-sphere.

I received a letter from the (US) National MS Society about supporting the research of Dr. Rhonda Voskuhl.

It wasn't quite the usual begging letter, Dr. Voskuhl isn't quite the usual researcher and her research isn't quite the usual "micro managing research that focuses on the disease while treating the patient as if /he doesn't even exist". (Though, lets be fair, for the causative agents of MS, we don't exist either. Our myelin and its proper functioning is just incidental and collateral damage.)

This research focuses on developing oral therapies for the treatment of MS.

YESSSS! No more freaking needles...

I don't care why she's doing it. She's doing it.

Now, if only one of these research people can wake up and realize what the tobacco companies knew centuries ago, that permeable membrane of the lungs is an efficient drug transport mechanism.

Then we'll stop having to worry about what some thing taste like and how it survives the descent through the extremely inimical digestive tract.


As for going to PodcampNYC...

I had a spike of interest (the halo effect lasted a couple of days and a few listeners,) and then it seems to have faded out without permanence. (Well maybe. My stats are behaving, uh, weirdly.)

I doubt that there were any other MSers out there as the tech is still just getting a foothold.

Doesn't matter.

I'm doing these shows for me and for you, not for the wider world. (Well, maybe I'd like to report that some advertiser's looking at the stats package and is thinking of maybe trying us with the test marketing budget. [MSBPodcast wouldn't represent a big expense. {They could pay for a campaign out of petty cash.} ] Maybe, but that's would be BS. We're on our own out there.)

---- "Give It Up " by: "Tems"

Feed Forward comes next, so...

Unless you're desperately in need of toilet paper, I can't recommend the stuff I've had to read in the past little while... Technical specs are B-O-R-I-N-G!

Although I'm starting on a book now called "Survival Of The Sickest" by "Dr. Sharon Moalem" (ISBN: 978-0-06-088965-4) that looks like a promising read. (Update: This book is a great read. I like the author as well as the subject. [Update 2: This book is really great. Its a thought provoking entertaining, "Oh my god I can't put this sucker down", page turner. I'm going to be late with this podcast if I can't tear myself away. But its that good. It's full of facts, ideas, humor and wit about the inter-relationship between ourselves and the wider world and how it, and we, have evolved to coexist...])


The ad should be going to the MS Magazine soon and be appearing in the next issue. (Don't worry. You'll hear all about it.)

I can tell you that the Toyota Yaris is a cute little car and a fun drive. I might hate driving less in a couple of years.

(Nah... I hate the friggin' burbs and the drivers in Joyzee are corralled with divided streets and u-turn run-arounds because they aim themselves worse than a herd of crazed, wild-eyed, wildebeests.)

---- "GIVE IT UP " by: "Sahib Radio"

Feed Me comes third, so...

Do you have a therapy, product, good or service that is of interest to MSers?

Consider advertising on this podcast.

Reminders on this segment only cost $0.03 per reminder per download of an episode. (A $30CPM targeted at MSers.)

It can/should lead to a full ad, in text, audio or video, which costs $3.00 per download.

That sounds expensive until you do the math and realize that if nobody downloads it it costs you nothing, unlike print, where you often can't even get an ad in to the specialized journals, or radio or TV where you'd just be wasting your money with the 0.0833% MSers rate of return. (That's about six times "below" the level of "statistical noise".)

But MSBPodcast is 100% in your market, and you only pay per download of your material.

No play, no pay.

Reach the MSers who would buy your therapy, product, good or service, with-out having to waste your advertising money on anyone who is "not" interested...

Send me an email at: charles (at)

---- "Dont Give it Up" by: "Trap Door"

Main Topic: Aging & MS as opposed to Aging vs. MS

I'm definitely feeling older, as opposed to just looking, uh, distinguished.

Believe me, I used to look, and act, "dangerously sexy"; definitely not the kind of boy you brought home to meet your mother. She wouldn't have had to ask any question, but make comments about her daughter's sanity. And I reveled in it too.

I set up a "pied-a-terre" near Cherry Hill, NJ, and its proved to be an absolutely back-breaking, nerve-wracking, little feat of endurance. Almost as as nerve-wracking as taking it apart in record time and getting my butt out of Dodge and back to home base and back on "The Beach".

(To top it off, I'm not a driver so I'm still learning to drive all over again [[Yeah MDMH, laugh all you want, {but the little Yaris gets almost 40 miles to the gallon.}])

But I got to do it because I got to eat. So I have to endure. The alternative is to slowly slide down the razor blade of life and fall to both sides ... at once.

Its a case of "Aging & MS"

Yeah! I got old. Lots of people lost that bet.

I happen to have picked up MS along the way.

I wasn't even aware that I was entered in that little lottery but my number came up anyway.

Its all a matter of perspective. Mine happens to come mainly from a seated vantage point.

---- "Give It Away " by: "Rasa 9"

Main Topic, part deux:

Most of my life just happened to me while I was waiting people to accept or reject my ideas, my music, my code, my designs ... whatever.

I've been blessed with good fortune in that, so far I've only gotten MS. (Only. I said "only gotten MS". Cheech!)

All things considered I could have died (of course being dead takes care of all problems going forward) or been crippled as a result of disease or of some bone-headed stunts pulled either by me or on me.

Now as I reach the time where its a race between the clock and the disease before I'm forced to retire (the MS might make it early if I get another attack/episode,) I am astonished at how unprepared I am to "go gently into that long goodnight." (Of course its not over as long as I have a breath to draw. But will I always want to? ...)

Like Shakespeare's Hamlet, will I reach a stage where "To be, or not to be" becomes an action item, rather than a philosophical musing which goes unvoiced except "in extremis".

MS has affected my effector nerves and not my sensor nerves. I am not in pain. Unlike some of you who are.

And its a deep, existential pain, isn't it?

Its unremitting because its the nerves themselves reporting damage where none exists; phantom pain like the itching in the foot or ankle of someone who's been amputated above the knee.

And on that cheery note, have a great day...

---- "Sudden Death - Give It To Everybody " by: "The FuMP"



Miss Chris said...

"I will never condone what this piece of human trash has done."

I agree. It seems as thought the media is trying desperately to find his "reason" for doing what he did, so they can find pity for him. I find only disgust.

Charles-A. Rovira said...

I find then news coverage in the 'States disgusting.

Watching Charles Gibson, the ABC news anchor, out there with a pathetic smile.trying to seem reassuring, was seeing TV news reporting at its most sold out.

And the interview with Bush was totally gratuitous.

Somebody had better tell him and make sure that he understands that he's done wrecking the economy (we've never been so deep in hock,) destabilizing the world (like he did with Iraq and Afghanistan,) and generally being an "Ugly American" (its going to take a generation to restore America's image in the eyes of the world.)