Wednesday, July 16, 2008

msb-0327 Shauna's Brain On Drugs

msb-0327 Shauna's Brain On Drugs

The Who - Baba o'riley - Quadrophenia 1970s


Disclaimer! Disclaimer! Disclaimer!

MSBPodcast is "not" any kind of a medical podcast.

It is by and for MSers.

Its purpose is to keep us entertained, to explain our symptoms, to remark on our discoveries, and to raise the general consciousness about our disease.

The path to illness is shadowy, murky and rough strewn.

The path to wellness is lit by the lamp of knowledge.


I have a quick and easy, painless and not too figgin' nosy customer survey that I really, really, really need you to go and fill out.

You can go to my podcast "page" [ ], click on the button on the left hand side of the page and anonymously answer a few simple questions.

I really need this.


Feedback comes first, so...

I'm still working on my letters to all kinds of folks to sponsor me.

I'm going to have to go out there myself until people get the idea.

---- "Sex, Drugs and Rock & Roll" by: "Ugly"

Feed Forward comes next, so...

This is "your" segment.

Say "your" piece on this segment.

Share with other MSers whatever "you" want to share.

Drop us an email: "charles at"

---- "Sunshine and Drugs" by: "The Pleasures of Merely Circulating"

Feed Me comes third, so...

Do you have a therapy, product, good or service that is of interest to MSers?

Consider advertising on this podcast.

Reminders on this segment only cost $0.03 per reminder per download of an episode. (A $30CPM targeted at MSers.)

It can/should lead to a full ad, in text, audio or video, which costs $3.00 per download.

That sounds expensive until you do the math and realize that if nobody downloads it it costs you nothing, unlike print, where you often can't even get an ad in to the specialized journals, or radio or TV where you'd just be wasting your money with the 0.0833% MSers rate of return. (That's about six times "below" the level of "statistical noise".)

But MSBPodcast is 100% in your market, and you only pay per download of your material.

No play, no pay.

Reach the MSers who would buy your therapy, product, good or service, with-out having to waste your advertising money on anyone who is "not" interested...

Send me an email at: "charles (at)"

---- "The Drugs That Ate My Brain" by: "Ghost Runner"


Seem that drugs have an entirely different meaning to those who don't need them.

They look upon 'em withuh, recreational aspirations. (I must be Martian. I was a musician for years and I never really partook. [I've only got one word for people who sit around gigling inanely and never finishing a sentence: B-O-R-I-N-G!])

---- "Love, Drugs, & Bombs" by: "O Sweet Static"


This is my Brain on Drugs

I was speaking with someone the other day who first met me when I was MC-ing the local ALS Walk. ALS is easily one of the most cruel illnesses, and I happily lend my skills to fundraising for this cause. My friend and I were comparing ALS and MS. In the majority of cases ALS is a death sentence within a few years whereas MS is rarely fatal. ALS is continuously and quickly progressive from Day 1 whereas MS is much slower. MS is uncertain, a characteristic about which we MSers like to complain. We don't know what each day will bring. You know what? I realized that this characteristic is something I should celebrate. I may not know what's going to happen, but it just might be great. And I know I have many tomorrows left.

We humans like to be in control. Diseases like ALS and MS can quickly remove that control but we still try to assert some control. I do that by taking Avonex once a week. In my butt. The boyfriend sticks me with that needle after I take some Tylenol to battle the side effects. 4 hours later, around bedtime, I take more Tylenol, the 8 hour stuff, so I can sleep through the night. Usually the next morning, another dose and I'm set for another week.

I've been on the stuff for 8 years now and so far so good. I've had one minor relapse. Is it all because of the Avonex? No idea. I'm sure it has something to do with it, but as one of my neuros is quick to tell me, attitude is pretty important, too.

So as much as I, like the rest of humanity, don't like change, I will celebrate my ever changing disease and do what I can do to make a difference.


---- "The Music Or The Drugs" by: "The Black Arts"


But rather than griping, I too am celebrating the fact that in my case at least, MS has offered me as much as it has taken away.

(Okay I'm lyin', but I tell myself that there's no pain, my senses seems to be intact, and apart from the fact that I don't go out when its hot, because I'm likely to be a sweaty spot on the sidewalk, I can still get around, albeit much more slowly than I like. [And the money will take care of itself. {Okay, I'm lyin' again. It won't. So I'll just have to make niche podcasting into a success.}])

---- "Like My Drug" by: "Beat Assassins"



Miss Chris said...

I think ALS is one of the most frightening diseases there is. I think my lucky stars I don't have that. I'd take MS any day.

Charles-A. Rovira said...

The horror is a question of the speed of the degeneration and its totality.

MS is a much better disease to get, (if ya gotta have somethin') despite the uncertainty (or make that because of the progression of the disease.)

I look at the ALS afflicted as really gotten he short straw of life...