Monday, April 07, 2008

msb-0284 Me Too, Me Too ... Not!

msb-0284 Me Too, Me Too ... Not!


Disclaimer! Disclaimer! Disclaimer!

MSBPodcast is "not" any kind of a medical podcast.

It is by and for MSers.

Its purpose is to keep us entertained, to explain our symptoms, to remark on our discoveries, and to raise the general consciousness about our disease.

The path to illness is shadowy, murky and rough strewn.

The path to wellness is lit by the lamp of knowledge.


Feedback comes first, so...

I am struck by the spirit of imitation that pervades this planet and why people tend to the herd mentality. (Its not good or bad, it just "is".)

So, by dint of my character (whether its a flaw [it often feels that way to me,] or just a rarity, I am not going to get into at this stage, but) I am a "constant tinkerer".


I have just read "something" (March, 26, 2008) [ ] which made me think some more about neuroplasticity.

Strange to think that what was an unknown to me a few months ago is popping up everywhere.


The wiki is up and running and capable of showing text, images, Google maps, Amazon Ads, YouTube videos and Calendars.

Now I'm trying to run my chapter's newsletter and calendar of events to show how its done, but I have to get permission first. (You and I both know its easier to get forgiveness than to get permission, but it is also easier to get your fingers walked on by some law firm and you and your site sued into oblivion than it is to get forgiveness, so I'm taking the long way around and getting the permission and cooperation of the societies and chapters.)

---- "Wait Too Long" by: "(De La Vega) Ivy League"

Feed Forward comes next, so...

This is "your" segment.

Say "your" piece on this segment.

Share with other MSers whatever "you" want to share.

Drop me an email: "charles at"

---- "Lifes Too Short" by: "Ross Nicoll and The Mannequins"

Feed Me comes third, so...

Do you have a therapy, product, good or service that is of interest to MSers?

Consider advertising on this podcast.

Reminders on this segment only cost $0.03 per reminder per download of an episode. (A $30CPM targeted at MSers.)

It can/should lead to a full ad, in text, audio or video, which costs $3.00 per download.

That sounds expensive until you do the math and realize that if nobody downloads it it costs you nothing, unlike print, where you often can't even get an ad in to the specialized journals, or radio or TV where you'd just be wasting your money with the 0.0833% MSers rate of return. (That's about six times "below" the level of "statistical noise".)

But MSBPodcast is 100% in your market, and you only pay per download of your material.

No play, no pay.

Reach the MSers who would buy your therapy, product, good or service, with-out having to waste your advertising money on anyone who is "not" interested...

Send me an email at: "charles (at)"

---- "I Feel It Too" by: "theHipnotics"


With MS, I was definitely born "under a bad sign" (I have pictures and everything, [MRIs with great strips of white sclera hiding in my skull,]) while everything that some other people touch "turns to gold."

I wish I could run into one of these so blessed, (not turn into one, just run into one,) and let them use their contacts and their skills at manipulation to make this podcast into a growing concern that could take care of my wife and I, and spread out to encompass all of the other MSers.

As my friend Eugene pointed out to me last night (as I write this, which was actually Saturday, the 22nd of March, 2008,) I need to meet a recently laid off ad person; somebody with the right contacts who's actually looking for an opportunity.

This is going to be very unhealthy because I'm about to plunge back into the cigar bar downtown, (and I 'know" I'm going to end up having one or three. :-) to find out who they might know and seek them out.

Then I'll have to get my butt over to a cigar bar on Madison Avenue and pick up the thread there looking for some know person who'd be in the, uh, right frame of mind.

---- "taken too far" by: "The Trouble with Me"


Its not easy being struck by a vision like "Paul of Tarsus" because its actually blinding me to as much as it is showing me. (And I am constantly mindful that I might be deceived and currently following a will-o-the-wisp. [That nagging spirit of self-doubt is what keeps me diversifying my portfolio and trying to keep options open.])

I started this podcast for one thing, trying to wake people up in my old profession, and then abandoned it when I understood what an end-run around the limitations of media could be made with podcasting.

Its not a question of how can I "catch this train" as it pulls out of the station, but one of "how can I add value" and earn a living bringing that value to us MSers.

One thing that is slowly becoming clear (to me at least, [I have no feedback from you on whether I am "slow on the uptake" or whether I am of full of crap,]) and that is that I am trying to unite MSers and make a kind of "nexus", (as opposed to an "information silo", [ ]) where MSers, researchers into MS and makers of products for MS, (uh, make that products "against" MS) and products for coping with MS, from anywhere and everywhere can "come on down" to the nexus and discuss, share, buy and sell and get themselves and their ideas known.

---- "Too Late" by: "Maria Daine"


In conclusion, I am pursuing this concept of MSBPodcast and MSBWiki to combat the all too pervasive problem of "we just didn't know" and there was no way for you to find out.

Part of the problem is in the title of this episode.

Too many people are content (or are limited to) just following: "Me too, Me Too..."

Its neither good nor bad, it just "is". (I've come to accept that some things just are, like this disease.)

Not everyone is leading which is a good thing because that would just be chaos.

But right now "no one" is following because "they just don't know" and my job is becoming one of telling them. Speak softly and carry a world-reaching megaphone as your stick.

A man I've actually met and still* greatly admire, "Alan Kay" [ and and ] once said "The best way to predict the future is to invent it." [ ]

Well, I'm inventing it. (What a hero to have and what an act to follow.)

Now I just hope I can make a living off of the concept before my money runs out.

* That actually says more about my choice of heroes than it does about the clay footed people whom I elevated into heroes.

---- "Too True Mama" by: "Mark LaForme"


Actually, I'm not too proud to beg.

Could any of you be motivated to click on the "PayPal Donate" button?


mdmhvonpa said...

Cigars eh? Next time I'm up your way, we'll have to indulge in a Cohiba or Montecristo ... or even a Macanudo! The Mrs forbids me to enjoy these around the Manor ... you know, for the sake of the kids.

Charles-A. Rovira said...

I'm a fan of "Por LaraƱaga" myself.

When you come up, give me a shout first so we can plan to get together and partake of the convivial atmosphere at the Barclay~Rex cigar lounge.

Miss Chris said...

Definitely NOT full of crap or slow on the uptake....

Charles-A. Rovira said...

Hello Miss Chris,

I'll take that as a tacit endorsement of what I'm doing then. :-)