Friday, April 04, 2008

msb-0283 Win, Lose Or Draw Blood

msb-0283 Win, Lose Or Draw Blood

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Disclaimer! Disclaimer! Disclaimer!

MSBPodcast is "not" any kind of a medical podcast.

It is by and for MSers.

Its purpose is to keep us entertained, to explain our symptoms, to remark on our discoveries, and to raise the general consciousness about our disease.

The path to illness is shadowy, murky and rough strewn.

The path to wellness is lit by the lamp of knowledge.


Feedback comes first, so...

I'm in contact with David of "PatientsLikeMe" [ ] concerning their drive to communicate with more MSers and my drive for more MSers.

Our aims are different, mine being stated as:
"We are a small minority, one in 1,200 of the general populace, but we are TOTALLY ignored by the various media. We go from 1 in 1,200 to ZERO, to complete non-existence in the wider world represented by the media. (We should get at least one minute per day, one lousy minute, but that will never happen.)

The mission of is to use the internet to reestablish our presence as 1 in 1,200, to bring us music and talk from MSers to MSers.

I play music, some from MSers, and I have had interviews and collaborations with an international and multi-lingual bunch of the nicest MSers you would ever want to meet."
I hope you will go to "PatientsLikeMe" [ ] and check our what their goals are. (Hint: They're a lot more medically oriented than I am.)


At the front of the blog entries, I included a new video "Pray" by the band "Anemo" [ ] from because the video looked interesting and the band sounded good.

And listen to the lyrics. Just pay attention to the words. Close your eyes if you have to, but listen to the words.

---- "New Dawn" by: "Revelations of the Hopeless"

Feed Forward comes next, so...

This is "your" segment.

Say "your" piece on this segment.

Share with other MSers whatever "you" want to share.

Drop me an email: "charles at"

This evening (April 2nd, 2008,) was the North Jersey Chapter's MS Support Group's meeting and we had a presentation that was not the usual fare (this has is good points, its very informative, for the right audience, and its bad points, that audience was not us, or at least not us in the time available and the space we were in.)

It was the kind of multi-media program that would be devoured by neurology interns, but it was sutable for much smaller doses for consumption by us, the MSers who were the object of the scrutiny.

But the evening was not a total waste; I discovered that my crusade for inhalable therapies is not the rantings of a demented dwarf ex-frog (namely "moi",) but also the object of "study" [ ].

I'm on the phone with Biogen to follow up on this.

---- "Science" by: "Stalling Dawn"

Feed Me comes third, so...

Do you have a therapy, product, good or service that is of interest to MSers?

Consider advertising on this podcast.

Reminders on this segment only cost $0.03 per reminder per download of an episode. (A $30CPM targeted at MSers.)

It can/should lead to a full ad, in text, audio or video, which costs $3.00 per download.

That sounds expensive until you do the math and realize that if nobody downloads it it costs you nothing, unlike print, where you often can't even get an ad in to the specialized journals, or radio or TV where you'd just be wasting your money with the 0.0833% MSers rate of return. (That's about six times "below" the level of "statistical noise".)

But MSBPodcast is 100% in your market, and you only pay per download of your material.

No play, no pay.

Reach the MSers who would buy your therapy, product, good or service, with-out having to waste your advertising money on anyone who is "not" interested...

Send me an email at: "charles (at)"

---- "People" by: "Natives of the new Dawn"


"Oregon" has been making quite a "splash" [ ] with their "health care lottery."

The opinions from around the world are pretty much in agreement that its a revolting shame for the United States that we've now so screwed with paying for health care that its actually come to a game of chance as to whether or not some people who are working poor get dragged down to poverty by health care bills before getting dropped by their employers, for non performance of their duties, and being left for dead, along with their immediate families.

---- "Indifference is the Opposite" by: "Stalling Dawn"


I am quite frankly astonished by Oregonians having enough balls to put the problem of 15% of the world being too disabled at any one time to contribute right up front and in everybody's face. (That's the percentage of the population the WHO [the World Health Organization] estimates is disabled to some degree or other. A small percentage of the individuals may drift in and out, but the 15% is pretty fixed.)

Its like a super lotto ticket that you are stuck buying every week and that you hope you never need (because if you do, you'll be broken as the result of some accident or illness.)

The current systems of payment for health care are very, very badly broken and everybody knows it and admits to it, except the greedy healthy (who make up 85% of the population.)

The reason that they feel justified in their greed is that "they aren't sick, so why should they pay?"

Since the teaching of civics doesn't seem to have been part of any curriculum since world war two, (not that they were teaching it before, [what with the "Horatio Alger" {,_Jr. } "rags to riches" dime novel mentality that the average semi-literate immigrants to these teeming shores seems to have been dragging around along with a mostly white shirt in their cardboard suitcases,]) its no wonder that personal charity is regarded as a great American virtue, as it exists in an attempt to counter-balance the incredibly short-sighted opportunistic greed and auto-mendacity.

There is no one as self-righteous as one aggrieved by the act of being caught in a lie, and the state of health care in the 'States is as big a lie as anything out there.

"We've got the best health care system in the world" doesn't mean squat it you're one of the "millions" of working poor in this country who needs it and can't afford it.

"We've got the best health care system in the world" doesn't mean squat it you're one of the "millions" of previously healthy but under-insured people who sees their entire life, assets and cash flow, being poured one at a time into a devouring maw.

"We've got the best health care system in the world" doesn't mean squat it you're one of the "millions" of people of people lucky enough to make it through some accident or illness only to end up working to repay people for the treatment.

"We've got the best health care system in the world" doesn't mean squat it you're one of the "millions" of people who are unfortunate enough to not be "young, healthy and rich".

That's all three, "young, healthy and rich."

Having only two out of three will insure that, even if you didn't start off that way, you end up "not rich", and that's a capital crime in this friggin' country.

Time takes care of the first two anyway.

"Every" body ages, wears down and/or out and dies.

Only the young, the stupid or the gullible fail to realize this.

---- "Dance Of Electricity (Slow Dawn Mix)" by: "Guy David"


Health [don't] care in this country is abysmal and will remain that way as long as we keep shoving the less fortunate 15% of its citizens out of the way. (Guess what? I may not be very visible but I'm not out of ear-shot.)

Once we can all actually "see" the 15% (never mind the 0.0833% that we MSers make up,) we stand a chance at addressing the problems we all face and redressing the shameful health-care system of this country by setting up a single payer system.

A single payer system will insure that none of the multiple price lists shenanigans can survive. (That is one move which will be welcomed with open arms by the hospitals and other organizations who are currently at the mercy of their suppliers, [very few of which are particularly merciful.])

A single payer system will insure that none of the currently uninsured are kicked to the curb and left to die.

---- "A Few Years Short of Forgiveness" by: "Stalling Dawn"



mdmhvonpa said...

but, what to replace it with ... and who will determine the benefactors!

Charles-A. Rovira said...

Actually, I can't think of a better and more noble goal for a government than to take care of its citizens. (Instead of just wanting to be the biggest bully on the planet.)

Think of how much better the health care system would be if we hadn't been paying all that money for the vultures to waste.

We just get rid of the current wasteful system of paying for it all by setting up one tax item in your Federal income taxes and getting rid of all of the items in the state taxes (and the redundant State health care system workers,) all of the employers deductions and administration fees (and their bottom line immediately looks 15% better. [That's an easy sell.])

The current system doesn't change except for the elimination of current fraud and waste by going to a single payer system.

The Democrats will like it because it looks like they care (not true but appearances are deceiving.)

The Republicans will like it because it lowers the complexity of the systems and the burden on the employer.

We're in this pickle only because R.M. Nixon was an short-sighted ass hole and HMOs were offering a politically expedient solution (while getting very very rich themselves.)

They don't even have to go out of business. Most systems provide supplemental health care as well as the state sponsored one.