Monday, May 19, 2008

msb-0302 Locus and Nexus

msb-0302 Locus and Nexus


Disclaimer! Disclaimer! Disclaimer!

MSBPodcast is "not" any kind of a medical podcast.

It is by and for MSers.

Its purpose is to keep us entertained, to explain our symptoms, to remark on our discoveries, and to raise the general consciousness about our disease.

The path to illness is shadowy, murky and rough strewn.

The path to wellness is lit by the lamp of knowledge.


Feedback comes first, so...

This is likely going to be a strange posting/podcast. (This is me. When "don't" I do strange? :-)

This episode was caused by something I read on C|Net called "How Valuable Are You On Twitter"? [ ]

As it turns out, they miss the point entirely... :-)

And I can still tell when some people join through iTunes and have it set to "download all episodes" because my downloads stats go a bit crazy for a few hours.

But welcome anyway.

My friend the SysAdmin's mom is sick and that's why the wiki's hasn't been updated.

That points out on advantage of Twitter over email.

Just a short Tweet to that effect would have served me a lot better than the weeks of me sending emails asking for status updates that never seemed to be coming with no explanation why not.

Now that I know, I understand... There is no rush for the updates.

I will be in beta for a while longer while I try to install them myself.

When I was feeling like I was just left hanging, I was getting a little cross.

---- "Our Place Among" by: "Out Of The Cold"

Feed Forward comes next, so...

This is "your" segment.

Say "your" piece on this segment.

Share with other MSers whatever "you" want to share.

Drop me an email: "charles at"

I am inviting you to log into the "wiki" [at ] and help flesh it out, rather much like I am, and to add things as you discover them.

---- "My Place" by: "Amy Ayres"

Feed Me comes third, so...

Do you have a therapy, product, good or service that is of interest to MSers?

Consider advertising on this podcast.

Reminders on this segment only cost $0.03 per reminder per download of an episode. (A $30CPM targeted at MSers.)

It can/should lead to a full ad, in text, audio or video, which costs $3.00 per download.

That sounds expensive until you do the math and realize that if nobody downloads it it costs you nothing, unlike print, where you often can't even get an ad in to the specialized journals, or radio or TV where you'd just be wasting your money with the 0.0833% MSers rate of return. (That's about six times "below" the level of "statistical noise".)

But MSBPodcast is 100% in your market, and you only pay per download of your material.

No play, no pay.

Reach the MSers who would buy your therapy, product, good or service, with-out having to waste your advertising money on anyone who is "not" interested...

Send me an email at: "charles (at)"

---- "A Better Place" by: "tony vani and debbie hoskin"


Well the Wiki beta is off to, ahem, a rousing start.

(You're still very shy about leaving stuff.

And yes, you have to register and make your updates after responding to an initial email.

Its so far the only effective way to staunch the Niagara of "Viagara."

You would not "believe" some of the spam I capture everyday, as these scum try to infest the blog and podcast rolls.)

And how is this supposed to tie in to "Twitter" [ ] exactly?

The latter is a "stream" of consciousness (a "nexus" [ ]) while the former is a "pool" of consciousness (a "locus" [ ]).

Both are repositories of perceptions and information.

Because of the majority of its users being desperate to say something in response the the question "What are you doing?", "Twitter" is a stream of mere babble instead of being status updates. "Doing" is the point. Very little thought seems to be given to "why" and you doing what ever it is that you're doing.

Wikis on the other hand are repositories of data, most which is meaningless, except that it is valuable to a select few who need it.

---- "Take me to this place" by: "Josh Lopez"


Twitter and wiki represent "nexi" and "loci" in the sphere of social networking.

Wikis represent destinations in the communal collective collaborative brain while Tweets represent the "corpus callosum" [ ] of activities required to get from one idea to the next.

Both are indispensable and both are complimentary in the same way that the "Eisenberg Uncertainty principle" [ ] is essential to quantum mechanics. (You can know the position or the momentum of a particle but never both simultaneously because knowledge of one removes knowledge of the other.)

I hope that MSers use twitter to weave themselves into a wide social network and use the wiki as a destination for all of the information they care to share.

I am of course aware of the "impedance mismatch" [ ] between myself, as a for profit, (eventually, some day, I hope, please, :-) and the various associations out there, who have a lot riding on their "not" making any money.

Now they have their own limited advertising, carried by their affiliated or associated publications, but they tend to be extremely constrained. Some of the state and local ones can't (not "wont" but "can't") carry any ads for stuff that their state or chapter local merchants make or carry to help out their own members.

That's why the wiki is an indispensable resource because anybody can join in and because its a destination, a sense of place, a "locus" in the myriad conversations, the "nexi" that we MSers carry on in the process of living out lives.

Here's an example of a question that "all" of you could answer in the wiki "if" you already know the answer but that "none" of you can answer if you don't; if you haven't already had to walk that walk:
"Where and when is the self-help group meeting in your neck of the woods?"
Its a simple question ... but if you don't know, like the newly diagnosed, you need to know.

Likewise when do they meet?

Who all showed up?

What did they talk about last month, the month before that, the month before that, who did they have as a speaker, (yaddah, yaddah, yadah...)

Check out the "wiki". [ ]

Its got the self help groups for my town in there because I put it in there.

Now how about you put yours in there?

There's also calendars of events etcetera, etcetera, etcetera. :-)

---- "Replaced By Robots" by: "Lejeune"


I hope MSers start using Twitter to keep in touch and using the wiki for whatever the heck they want to, just keeping in mind what each is best at doing for communication.

---- "A Better Place" by: "garyseven"



mdmhvonpa said...

For some reason, all I could think of was Locutus...

Charles-A. Rovira said...

OMG! That's right!

I've got to hand in my "Trekky" badge and report to a Federation Outpost for re-education. :-)