Friday, May 23, 2008

msb-0304 I can't complain

msb-0304 I can't complain


Disclaimer! Disclaimer! Disclaimer!

MSBPodcast is "not" any kind of a medical podcast.

It is by and for MSers.

Its purpose is to keep us entertained, to explain our symptoms, to remark on our discoveries, and to raise the general consciousness about our disease.

The path to illness is shadowy, murky and rough strewn.

The path to wellness is lit by the lamp of knowledge.


Feedback comes first, so...

After watching the cyclone news from "Myanmar" [ ] (the country formerly known as "Burma", home of a xenophobic, self-congratulatory, inept, bumbling and murderously idiotic military regime,) and the earthquake news from China, I have "nothing" to complain about.

As I sit here in my dry, intact, almost affordable condo, hundreds of feet above sea level, on a solid piece of one of the most stable land masses on earth (its stable, but its not the "Nullarbor" [ ] plain of Australia,) in a land without bombs going off, where there are more people killed by their own stupidity than by guns and where hate crimes are the laughably inept knocking over of gravestones, I "really" can't complain.

---- "Blue Days" by: "2AM"

Feed Forward comes next, so...

This is "your" segment.

Say "your" piece on this segment.

Share with other MSers whatever "you" want to share.

Drop me an email: "charles at"

I am inviting you to log into the "wiki" [at ] and help flesh it out, rather much like I am, and to add things as you discover them.

---- "Some Days Intro" by: "Pete Scafidi"

Feed Me comes third, so...

Do you have a therapy, product, good or service that is of interest to MSers?

Consider advertising on this podcast.

Reminders on this segment only cost $0.03 per reminder per download of an episode. (A $30CPM targeted at MSers.)

It can/should lead to a full ad, in text, audio or video, which costs $3.00 per download.

That sounds expensive until you do the math and realize that if nobody downloads it it costs you nothing, unlike print, where you often can't even get an ad in to the specialized journals, or radio or TV where you'd just be wasting your money with the 0.0833% MSers rate of return. (That's about six times "below" the level of "statistical noise".)

But MSBPodcast is 100% in your market, and you only pay per download of your material.

No play, no pay.

Reach the MSers who would buy your therapy, product, good or service, with-out having to waste your advertising money on anyone who is "not" interested...

Send me an email at: "charles (at)"

---- "Some Days" by: "Pete Scafidi"


I've had people complain to me that I don't seem to have a lot of medical information on this podcast.

Apart from me describing my symptoms and how I'm coping with them, you "won't" hear me pretend that "I'm" any sort of a doctor.

There are a lot of reasons for that, chief among these is the fact that I respect you too much to lead you astray, and I hope you respect me too much to ask me to work miracles.

The best I can hope to achieve is to work towards some redress of the underrepresentation in the media that MSers all "also" suffer from.

---- "8 Days Down" by: "Jen Elliott"


We've got a real problem we MSers, we one in twelve hundred, we 0.0833% of the population.

(Apart from the obvious, I mean. Yes, we got clobbered by a bus with the license plates MS. Shit happened. And we're all trying to "get over it", thank you very much.)

But its a problem we share with the remainder of the 15% of the population that the World Health Organization, (the W.H.O.)

Apart from very infrequent guest spots on "Oprah" or as the tragic love interest to some or other cinematic or TV hero, we're an invisible minority.

Oh there are all those curb cuts that the FedEx and UPS men use to move their dollies from the street to the sidewalk and all those spots that people aren't "supposed" to park their God damn cars in ("Yeah, lady in the green Jaguar. I would have parked my car there but you were where you had no business. If I could've, I would've parked right behind you, but I would have been blocking traffic, and two wrongs don't make a right.")

But we, the handicapped, never mind the MSers, are all but forgotten in the media that's made for the other 85%.

"That" is why I was so taken with "Joel Goldman" [ and ] and his fictional hero "Jack Davis."

If I had the time and the talent, I would write a character with MS into a piece of fiction concerning a possible aftermath of 9/11. But, sadly, I don't.

We want for heroes and heroines who can act as role models for us, the 15%ers. (Face it, when's the last time you saw a "Marlee Matlin" movie? [ {and her handicap is not at all visible. Its not even audible until she opens her mouth to speak. (Its not like having to watch her struggle with a cane. Then I don't care how cute you are, boyfriends are dust trail vanishing in the distance.)}])

I'm not going to denigrate the everyday heroes who triumph every day by getting up and doing the things that the 85%ers do without a thought, but I do feel we're too invisible for our own good.

The blogs and the podcast are here to remind us that we "are" here, that we "do" exist, "if anybody reads them", and I'm no "Gutzon Borglum", [ ] but I'm trying to carve out of the solid granite in people heads a "Mount Rushmore" [ ] with "our" faces on it.

And so I keep on using "Wikipedia" [ ] to inspire you and I keep "Twittering" [ ] to try and build a network of people like you.

Its not competitive, its collaborative.

And we're all the stronger for it.

---- "My Yesterdays" by: "Eddie Ramirez"


I've had people complain to me that I don't seem to have a lot of medical information on this podcast.

Apart from me describing my symptoms and how I'm coping with them, you "won't" hear me pretend that "I'm" any sort of a doctor.

And that's not likely to change.

But if I can make any difference in peoples' perception of disability in general and MS in specific, I'll consider that a major achievement.

---- "Sweet Vineyard Days" by: "Ben Willmott"


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