Wednesday, June 25, 2008

msb-0318 Shauna's Dating Herself

msb-0318 Shauna's Dating Herself

Max Headroom = Song From Art Of Noise called Paranoimia


Disclaimer! Disclaimer! Disclaimer!

MSBPodcast is "not" any kind of a medical podcast.

It is by and for MSers.

Its purpose is to keep us entertained, to explain our symptoms, to remark on our discoveries, and to raise the general consciousness about our disease.

The path to illness is shadowy, murky and rough strewn.

The path to wellness is lit by the lamp of knowledge.


I have a quick and easy, painless and not too figgin' nosy customer survey that I really, really, really need you to go and fill out.

You can go to my podcast "page" [ ], click on the button on the left hand side of the page and anonymously answer a few simple questions.

I really need this.


Feedback comes first, so...

I'm "not" switching topics, but I see a glimmer of hope ... a glow on the horizon ... a direction that we can all change towards.

More in the "next" episode.

---- "First Date" by: "Danko Jones"

Feed Forward comes next, so...

This is "your" segment.

Say "your" piece on this segment.

Share with other MSers whatever "you" want to share.

Drop us an email: "charles at"

---- "Movie Date" by: " Redefining the Moment"

Feed Me comes third, so...

Do you have a therapy, product, good or service that is of interest to MSers?

Consider advertising on this podcast.

Reminders on this segment only cost $0.03 per reminder per download of an episode. (A $30CPM targeted at MSers.)

It can/should lead to a full ad, in text, audio or video, which costs $3.00 per download.

That sounds expensive until you do the math and realize that if nobody downloads it it costs you nothing, unlike print, where you often can't even get an ad in to the specialized journals, or radio or TV where you'd just be wasting your money with the 0.0833% MSers rate of return. (That's about six times "below" the level of "statistical noise".)

But MSBPodcast is 100% in your market, and you only pay per download of your material.

No play, no pay.

Reach the MSers who would buy your therapy, product, good or service, with-out having to waste your advertising money on anyone who is "not" interested...

Send us an email at: "charles (at)"

---- "Robert Lund - My Men's Room Date's A Senator" by: "The FuMP"


Shauna's dating.

I know... Isn't that ever so sweet?

Heck I was married with MS... Twice.

It has never been a factor in my personal life.

My professional life... Yeah.

Right now MS is an absolute bitch.

Not for the potential employers. Even if they wanted me, the HMOs threaten to jack up everybody's premiums and that's a very effective barrier isn't it.

So now I'm slowly going through my life's savings. Good thing I have less life to go through than savings. (I hope.)

---- "Date with the rain" by: "37Hz"


The Dating Game

The dating scene is tough enough for most of us. Add to that a diagnosis of MS (or any chronic illness for that matter) and it can be a little more than discouraging.

About 5 years ago, I began online dating. Honestly, I had a blast. I met some incredible jerks and some really great guys and I had some of the funniest dating stories to share with friends. It was never an issue for me to tell my dates that I had MS, most of them, anyway.

It does not define me, but where I am so involved in fundraising for the MS Society and making public appearances for the cause, it is extremely important to me.

On your online profile you are supposed to indicate hair and eye colour, body type or size, likes, dislikes, etc. If you are on a disabled online dating site, you may be asked to disclose your disability.

But what if your disability or condition isn't quite so obvious? Like with MS. Many of us are not disabled and I couldn't in good conscience join one of those sites. So do you say on your profile that you have MS? Or is that akin to saying you have three heads? If I read a guy's profile and it said he had kids under the age of 18, I immediately crossed him off the list (I was not interested in dating someone with kids that young). Should I hold it against someone who would immediately cross me off his list after having read I have MS?

I did not indicate on my profile that I have MS. But it would be brought up in either online conversation or on our first meeting. Nobody ran away screaming, but a few guys were put off right away. Such is life. Some guys confused MS with MD. Some guys appeared not to be concerned about it, and that bothered me. Of all the guys I dated only one has become an actual friend.

And one has become more than a friend 

John clicked with me from almost the very beginning. He had a friend with MS and his mom was a neuro nurse. He has since become the love of my life. And he gives me a shot in my backside every week. (That reminds me...I'll have to write a post soon about the medication I take for the MS)

 I guess the reason for writing this is to show that you can have a social life with MS.

Choosing to have a social life may be the hardest part.

---- "First Date" by: "Greg Federico"


Strange isn't it?

Having MS has never put my love/personal life on hold.

I just figured it was a part of growing up. (My father was one of Québec's first dialysis recipient under the Canadian socialized health policy. I just grew up with it. It was no big deal.)

Its only a big deal here in the 'States.

That's because they aren't very realistic down here.

How immature...

Everybody dies, but you'd never know it here in the 'States.

Everybody gets sick, but you'd never know it here in the 'States.

Some people stay sick too, but you'd never know it here in the 'States.

Its all white teeth, white skin and the sun shines outta my ass, here in the 'States.

At least that the lie the life contestants tell each other as they drag each other on the dance floor while they pretend not to hear the horses getting shot and being ground into 'burgers...

---- "The Rosochacha" by: "Greg Federico"



mdmhvonpa said...

Told my betrothed that I had MS back in '96 ... She married me anyways. 12 years and we keep each-other strong.

Charles-A. Rovira said...

That's what I'm talking about. :-)

MS has never acted to dampen the ardor.

Amor Vincit Omnia