Monday, December 10, 2007

msb-0232 That River in Egypt

msb-0232 That River in Egypt


Feedback comes first, so...

On my last blog and podcast about drug inhalation instead of injection "Miss Chris" [ ] said: "Here here! Can I get an AMEN?"

Thank you all for downloading these podcasts.

We're all part of a very selective vanguard, beyond the razor thin edge of mass-media detection.

But collectively we're a bunt weapon with which cudgel the media into doing our bidding and creating content for "us".

---- "No Use Denying" by:"The Cool Waters Band"

Feed Forward comes next, so...

This is "your" segment.

Say "your" piece on this segment.

Share with other MSers whatever "you" want to share.

Drop me an email: charles at

And I would apreciate if someone could write a review of this podcast on iTunes [ ] You can just select the link and, eventually, scroll down the iTunes page to "Customer Reviews"

---- "All Just for Another Night" by: "The Cool Waters Band"

Feed Me comes third, so...

Do you have a therapy, product, good or service that is of interest to MSers?

Consider advertising on this podcast.

Reminders on this segment only cost $0.03 per reminder per download of an episode. (A $30CPM targeted at MSers.)

It can/should lead to a full ad, in text, audio or video, which costs $3.00 per download.

That sounds expensive until you do the math and realize that if nobody downloads it it costs you nothing, unlike print, where you often can't even get an ad in to the specialized journals, or radio or TV where you'd just be wasting your money with the 0.0833% MSers rate of return. (That's about six times "below" the level of "statistical noise".)

But MSBPodcast is 100% in your market, and you only pay per download of your material.

No play, no pay.

Reach the MSers who would buy your therapy, product, good or service, with-out having to waste your advertising money on anyone who is "not" interested...

Send me an email at: charles (at)

---- "Not Coming Home" by: "The Cool Waters Band"


The New York Times had a fascinating "article" [ ] on denial.

With MS, this is a very easy trap to fall into.

I spent over twenty five years there myself, (pretending that everything was fine, [and it was mostly, {except for those times when I would have died if I had not had around the clock care,}]) so I am well aware of how slippery that slope is.

---- "Hell or Highwater" by: "The Cool Waters Band"


Denial is an easy grizzly bear trap to step into when a disease is episodic; relapsing and remitting as it does.

I've had MS for years.

For most of those years, from sixteen to forty-eight, I was in great shape. I exercised, ran, biked, swam, danced and walked. (Oh, how I walked [I loved to walk.])

I would still be in denial, if I could ... but now that I "schlep" around slowly with a cane, MS will not be denied.

Nor can I deny any of the effect on other people's perception of me.

I have not got any stupider since getting MS, but I have been talked to as if I was. (I will "never" forgive the nurse who talked to me that way, even if it has made me far more tolerant of people delivery. [Sometimes, through no fault of your own, you only "sound" like a clod-hoppin' rube.])

I have not got any less ambitious since getting MS. (You're getting this 'cast as an example of the "wind mill charge" level of near megalomania I claim as an integral part of my personality. [Its was and is that part of me that had me playing guitar, learning about computers, later learning Smalltalk, talking at symposia, writing articles, learning podcasting, talking at symposia again. {And I will continue to "boss my own shit" until they put me in the ground! (Maybe I'll even be dead when that happens. :-)}])

I have not got any less callous, shallow or any of the hundred other faults I know I have. (They've been "told" to me, [that is one of the benefits of being married, after all.])

Denial has its place, just not when dealing with health issues.

---- "2 Car Garage" by: "The Cool Waters Band"


In its proper place, denial is a "good" thing.

Its what keeps us together, as we keep flying apart.

Its what keeps the sheep running from the wolves.

Its what keep the wolves running after the sheep.

Its what keeps from merely accepting things and being resigned to our fate. (I still hear the echoes of my Catholic upbringing echoing in my memory. ["No Father, I think that 'just accepting our fate' is an extremely 'dumb' idea. Its what gets the sheep slaughtered and makes for extremely fat and lazy wolves."])

In the "improper" place, denial "is" something which prevents us MSers from seeking the help which we eventually need.

Keep denial in it place, as a river in Egypt.

---- "Don't Forget Where You Came From" by: "The Cool Waters Band"



mdmhvonpa said...

'Sometimes, through no fault of your own, you only "sound" like a clod-hoppin' rube."'

Heh ... you could pay for a speech coach ... but that would be changing yourself to suit other's comfort/view.

Charles-A. Rovira said...

But I don't sound like a clod-hoppin' rube normally. (I sound like some other kind of ass-hole :-)

I was a real mess after that exacerbation, back in '84.

The speech coach was a rehab specialist at the Ottawa General.

I had fun working with sonograms and all kinds of neat equipment.

That was a case of involuntary distonia (kinda like sounding like a complete lush without the benefits of getting drunk first [The girls all look better at closing time. and The Three Stages of a Tequilla Drunk: 1- I'm irresistible, 2- I'm invincible, 3- I'm {hic} in..visi..ble...])

Everything stopped working (first 'at all' and then only 'properly') that time.