Monday, March 31, 2008

msb-0281 Andrea und Galileo

msb-0281 Andrea und Galileo


Disclaimer! Disclaimer! Disclaimer!

MSBPodcast is "not" any kind of a medical podcast.

It is by and for MSers.

Its purpose is to keep us entertained, to explain our symptoms, to remark on our discoveries, and to raise the general consciousness about our disease.

The path to illness is shadowy, murky and rough strewn.

The path to wellness is lit by the lamp of knowledge.


Feedback comes first, so...

I'm not feeling particularly tall, but, to paraphrase "Newton", [ ] "I see far because I stand on ye shoulders of giants."

My butt may be stuck firmly to a chair, but I am standing in excellent company. (People who honor me by their very presence in my life.)

---- "Unsung Heroes" by: "A Sunken Ship Irony"

Feed Forward comes next, so...

This is "your" segment.

Say "your" piece on this segment.

Share with other MSers whatever "you" want to share.

Drop me an email: "charles at"

---- "The Last of The Superheros ( of the 1970s)" by: "American Heartbreak"

Feed Me comes third, so...

Do you have a therapy, product, good or service that is of interest to MSers?

Consider advertising on this podcast.

Reminders on this segment only cost $0.03 per reminder per download of an episode. (A $30CPM targeted at MSers.)

It can/should lead to a full ad, in text, audio or video, which costs $3.00 per download.

That sounds expensive until you do the math and realize that if nobody downloads it it costs you nothing, unlike print, where you often can't even get an ad in to the specialized journals, or radio or TV where you'd just be wasting your money with the 0.0833% MSers rate of return. (That's about six times "below" the level of "statistical noise".)

But MSBPodcast is 100% in your market, and you only pay per download of your material.

No play, no pay.

Reach the MSers who would buy your therapy, product, good or service, with-out having to waste your advertising money on anyone who is "not" interested...

Send me an email at: "charles (at)"

---- "Accidental Hero" by: "strootker"


Ask any hero, from "Jim Thorpe" [ ] to "Sgt. York", [ ] if they asked for the plaudits heaped on them after they did whatever they did, and the answer is always "No, I just did what did."

So if ever I get a swelled head from doing this, remind me that I said that.

A wiki, a podcast, a blog, collaborative media and all the rest are things I bring to this table because I am fortunate enough to.

---- "Heroes" by: "Jack in the Pulpit"


This synthesis opens on a quote from "The Life Of Galileo" [ ] by "Bertolt Brecht" [ ]:
"ANDREA: Unhappy the land that has no heroes!
GALILEO: No, unhappy the land that needs heroes."
We MSers are unfortunate enough, by virtue of having MS, to need several kinds of heroes:
  • the medical researchers,
  • the physicians, the neurologists and the doctors who focus on the immune systems,
  • the nurses and other health care workers,
  • the rehabilitation specialists,
  • the folks who agitate and organize for us,
  • the makers of pharmaceutical products, special cooling vests, special shoes for "drop foot", special chairs, lifts, van modification, uh, stuff, canes, walkers, bus services, hair products(?) who knows, what else,
  • the people who love when we don't feel lovable in the least.
All of them are heroes in their own ways; bringing us what we need to lead fuller lives.

Now we have a great deal to do to get the word out (["sigh"] that's my job I guess,) and to create an environment where these heroes, who never think of themselves as heroes, can come and meet us face to face ... and failing that, mind to mind.

The wiki is a happening thing.

I've started to put together references to all the pages of MS information that I can find on the web. Not the actual content but references to them. This way I don't claim to own the information and the person who does own the information can do whatever he wants or needs to do with it.

I'm going to create pages for every organization, every chapter of every organization, put in the events in the calendar for the North Jersey Chapter of the MS Society, and then email & snail mail every organization and every chapter of every organization to tell them that they too can put in their events.

I'm going to also create pages for some people that are related to the geography of this disease.

Its demographic data painted with a very broad brush.

---- "Ordinary Heroes" by: "Cats or Cars"


The wiki and this podcast are services that I am bringing to all of the organizations, chapters and people all over the planet who have or are caring for (or about) people with MS.

And after me, someone else will be able to run it too.

It will end when it will end, hopefully when this disease is finally conquered and not a day before.

(And damn the RIAA and allthe lawyers for preventing me from playing any "Kurt Weill" [ ] for you. I even have a recording of "Brecht" singing "Mac The Knife" [auf Deutsch natürlich. ;-])

---- "Heros Journey" by: "Artist X"



Miss Chris said...

My hero would be a husband that supported me by truly knowing what I was dealing with. Just saying the words means nothing if there is no emotion behind those words to back them up.

Charles-A. Rovira said...

My hero (heroine? :-)is my wife (well both of them really 'cause they went/are going through this with me.)

Now if I can only find a way to:

1) increase the audience (I'll be running another ad in Momentum soon.)

2) increase the collaborators. (I absolutely love what Shauna MacKinnon is bringing to the podcast. Now I'm going to try to do this in many other languages.)

3) get some advertising (at these rates, its not because its actually make me any money, but its so that the podcast is actually valued.)

4) Get the MSWiki finally up and running and spread out to all the societies and all of the chapters. (In every language, in every country/)