Wednesday, August 16, 2006

msb-0051 Oops, I Missed the Half a Century Show.

msb-0051 Oops, I Missed the Half a Century Show.

I've decided to celebrate the fiftieth show, albeit a show late, with a bunch of podcasting anthems.


Send me some feedback: charles at


To my audience ...

My stats are driving me nuts.

What happened?

Did a whole bunch of you come back from vacation and waited 'till now to pick up the old shows?

My stats for those shows are looking better now. Weird.


And to any potential advertisers ...

How did you like the videos?
  • Such Great Great Heights, by The Postal Service by/for SubPop records
  • Berlex Trial Balloon (by invitation only!)
  • Boss Fear
  • Slip Of The Tongue
(and wait 'till you see what's coming up next! :-)

And it would only cost $0.05 per view, instead of the current cost structure, such as pharmacos' marketing approach of $4,50+|- per person to mail it.

And they're left to hope it doesn't end up, unplayed, in the bottom of a drawer somewhere.

I don't own a VCR so that pointed up that there was nowhere else that you material could go, except maybe the trash.

This nickel per view is usually in addition to other media, like ads in the MS publications.

The internet is wonderful if you already know where you're going, that's what's behind the success of Google.


Here's an idea...

Lets try a grass roots movement to increase the audience.

If you like the show, you can spread the word, tell others you meet at some MS event.

If you'd like some cards email me: charles at

I'll be doing my bit too.

I'm going to an event sponsored by Teva Neurosciences on Sundau, September 10th, 2006 at the W Hotel in New York.

Its featuring:
  • Dr. Joseph Herbert of the MS Comprehensive Center,
  • Dr. Harold Atkins of the Otawa Hospital (where I was first officially diagnosed) and
  • Ann Oswald, an MS Advocate at the Teva Booth.

All of your feedback has been very positive and encouraging.

Well ... all but one, from somebody who accused me of technophilia (and somebody tell me how the hell did she get to even hear my show anyway?)

She reminded me of the woman who wrote to me (with pen and paper, an envelope and a stamp, no less,) back when I was producing the newsletter for the Ottawa chapter in 1985 or '86, whining about my saying we all needed to use computers to overcome our respective handicaps. (Man I feel old.)

Now, once again, I seem to be on the bleeding edge of technology.


Miss Chris said...

I'm interested in what kind of info. you get when you talk with the folks at Teva Neurosciences since I've been on Copaxone for 2 1/2 years. I'm happy with it...much better than the Betaseron I was on at first. Hope all is well with you!

Charles-A. Rovira said...

Okay. I'll keep my eyes open and my ears cocked. But I'm also interested with your experience with Betaseron (as I bet the betaseron people would.)

Miss Chris said...

Betaseron was a nightmare! I felt sick constantly (much worse than just M.S. stuff) and it made my white blood cell count plummet. I had to stop taking it immediately upon finding this out (they say this is a "rare" side effect)... I had been on it for about 9 months and was so happy to get off it. Copaxone was a dream compared to that stuff.

Charles-A. Rovira said...

I hear ya.

The problem with all these disease modifying treatment therapies is that they don't know when to stop.

Rebif leaves me with the white blood cell count of an AIDS patient. Not dangerous per se but it places certain restrictions and demands on me; like I have to be really clean and careful, almost neuroticallly so.

They all depress the immune system too much and that is just as dangerous as living with an immune system that over reacts to certain environmental or viral triggers.

I now have to be just as careful in winter because, while my immune system over reacts to one strain or family of flu virus, leading to an exacerbation, I can no longer ignore the rest which my system used to just 'digest.'

Being wisely leery of one trigger should not be done at the expense being of 'gun shy.'

To put in karate terms, knowing you have to favor your right arm does not mean you can't use the other or the legs.

The problem is that the medical profession has barely discovered that you can suppress the immune system without having to kill you.

They just don't know about environmental or viral triggers that lead to an episodic cascade.

I tend to be realistic about the limitations of the medical profession.

They really don't know much.

They've only been engaged in any kind of scientific research for less years that I have been around.

Before that medecine was more like plumbing with flex-straws.