Monday, January 07, 2008

msb-0244 One in Twelve-hundred

msb-0244 One in Twelve-hundred


Feedback comes first, so...

These podcasts have a very limited audience: MSers. (And who else would be getting a podcast called MSBPodcast unless they were interested in MS? Well the second time anyway...)

I have over 42,500 downloads as of January 2nd 2007.

But if these shows we're using a mass media metric I'd have a much broader audience.

Using metrics on a "tailless" broadcast show that works out to almost 51,000,000 (yup, that's almost 51 million downloads,) for this show, over the same time, almost 2 years, if it was done for a general audience (almost 190,000 people per show. [That's severely flawed, but that's the broadcast model for you.])

But this podcast "has" a long tail, so I don't have the pressures of actually dealing with all of you at once :-)


This next part properly belongs in the Feed Forward segment, but not quite yet...

These shows are going to seem short on palaver for the next little while because I'm learning a whole new language about sensation (and language is the fundamental [with the attendant pun about mental,] thing about thinking about anything.

The book "The Body Has a Mind of Its Own" by the mother and son team of "Sandra and Matthew Blakeslee" (ISBN:978-1-4000-6469-4) is providing me with tons of fodder for meditation on the mechanisms of mind body connection and the functions and roles of mental maps, and I'm of couse thinking of how it impacts us MSers.

I am acquiring lots of information on the cognitive dissonances caused by our sclerotic brain maps and how they affect our lives, our somatic sense, both incoming and outgoing.

Its only 200 hundred pages or so thin but it is the most enlightening book I have ever read about the functioning, the real functioning, the mapping of thought and action, about how my body works and how I work my body.

This book should be required reading for everybody whose body is going through changes, regardless of causes, whether hormonal, as a response to training or in response to sclera.

I am "understanding" what my body is going through and how it is being affected by my shifting, changing body images.

---- "The Rainbow Bridge" by: "Maria Daines"

Feed Forward comes next, so...

This is "your" segment.

Say "your" piece on this segment.

Share with other MSers whatever "you" want to share.

Drop me an email: "charles at"

And I would apreciate if someone could write a review of this podcast on iTunes [ ] You can just select the link and, eventually, scroll down the iTunes page to "Customer Reviews"

---- "Looking For a Rainbow" by: "Talulah Gosh"

Feed Me comes third, so...

Do you have a therapy, product, good or service that is of interest to MSers?

Consider advertising on this podcast.

Reminders on this segment only cost $0.03 per reminder per download of an episode. (A $30CPM targeted at MSers.)

It can/should lead to a full ad, in text, audio or video, which costs $3.00 per download.

That sounds expensive until you do the math and realize that if nobody downloads it it costs you nothing, unlike print, where you often can't even get an ad in to the specialized journals, or radio or TV where you'd just be wasting your money with the 0.0833% MSers rate of return. (That's about six times "below" the level of "statistical noise".)

But MSBPodcast is 100% in your market, and you only pay per download of your material.

No play, no pay.

Reach the MSers who would buy your therapy, product, good or service, with-out having to waste your advertising money on anyone who is "not" interested...

Send me an email at: "charles (at)"

---- "RAINBOW" by: "Johhny Danger"


MS affects approximately one in twelve hundred, 0.0833% of the population.

That might once have been a devastatingly isolating diagnosis, but the internet and the world wide web are cutting that isolation to ribbons; slashing at and shredding the loneliness we might have felt before to pieces.

(Do the math. That's over five "million" people world-wide. If we all have to spend about a grand a month for medications and services on this disease, that's $60,000,000,000/year! [Yup ... 60 "billion" dollars a year. {Now "that's" economic clout!}])

---- "rainbow" by: "impossible songs"


The sense of isolation that we all felt before the internet is "over".

Its over ... but its going to take some time before internet use becomes truly ubiquitous.

It "will" inevitably become ubiquitous in the wider world, and in medicine in particular, (not just to the "practitioners" of medicine, [its already there,] but to the "recipients" of the medical ministrations.)

The internet, which has grown over the years from a purely textual medium to a much richer experience, is still serving its fundamental purpose as a mesh of wired and wireless data pipes which make communication from one point to another possible.

The innovation that this mesh uses, "TCP/IP", [ ] makes the actual routing between the two points moot, since the path can change to route messages around any damage in the fabric of the mesh.

The transmission of information, or even mere data, can now occur between any two points as long as "any" transmission paths exists.

Email was born from these humble origins: communicating through a "cloud".

The stage was set for the current media revolution with the computerization of publishing through the use of desktop publishing; then with the digitization of audio and video and the computerization of the tools used to manipulate these bits.

And now we come to the melding of the internet with the now digital media files and thus was begat the rise of the transmission of content, at what ever speed you can get from an internet service provider, an ISP, "from" anywhere there's a connection "to" anywhere there's a connection.

And here "we" are; taking advantage of the unintended consequences of the military need for a dependable, scalable means of communication, of the rise of personal computing, the digitization of textual, audio and video files, and of the development of tools for the manipulation of these bits.

Now we're waiting for the legal system to catch up (legal comes from a Latin root: "legare" meaning "choose", [and we're just waiting for the industrial machines to realize that we've "made" our choice. {If they don't like it: "TOUGH!" (I'm "not" going back to being silent.)}])

Of course, we've got an advantage. The ubiquity of computing means that it is indispensable to the wider world. (Even the lawyers need it to keep up their billable hours. [No internet means no mansions near the golf courses.])

Meaning we don't ever have to go back to suffering in silence and feeling rejected and lonely because we weren't what we used to be.

---- "Green Rainbow" by: "lunar drive"


Because of the exposure of the internet, MS is no longer a disease that will cause us MSers to fade from the world, consigned to the shadows.

In the nest that we are weaving from shiny glass threads, we can be known; we can be our fragile selves; we can be together, regardless of the miles between us; you're not alone; you're not isolated; you're not doomed to "hanging on in quiet desperation, in the English way". (With apologies to David Thoreau [ ] or Pink Floyd, [ ] take your pick... :-)

Now lets kick this thing into high gear:

---- "Rainbow In The Dark" by: "Shadowside"



Miss Chris said...

I'm sure I'm not alone when I say "Thank God!!!" for the internet!!! I would know precious little about my disease if it weren't around. It's nice to know we dont' have to rely on doctors for our information.

Charles-A. Rovira said...

I'm a firm believer in the internet effect.

Its beginning to affect the very shape of our responses to disease.

(Sorry to seem cryptic but my thinking about mental mapping and proprioception is still taking shape.

I am learning a sh*t-load of stuff about how we actually work.

The book "The Body Has a Mind of Its Own" by the mother and son team of "Sandra and Matthew Blakeslee" (ISBN:978-1-4000-6469-4) is providing me with tons of fodder for meditation on the mechanisms of mind body connection and the functions and roles of mental maps.)