Thursday, May 31, 2007

msb-0156 Paranoimia

msb-0156 Paranoimia

intro

"


"

----"Hypno - Hypnosphere Mix - Sensor II" by: "Artemis" http://www.artemis.fm/

Feedback comes first, so...

I got some from "Herrad" and from "Homer".

They're hard at work trying to get their next shows together.

---- "Airport revisited" by: "the delicate art of noise pollution" http://www.noisepollution.nl/blog

Feed Forward comes next, so...

This is "your" segment.

Say "your" piece on this segment.

Share with other MSers what ever "you" want.

Drop me an email: charles (at) MSBPodcadst.com

---- "Sounds haunting" by: "the delicate art of noise pollution" http://www.noisepollution.nl/blog

Feed Me comes third, so...

Do you have a therapy, product, good or service that is of interest to MSers?

Consider advertising on this podcast.

Reminders on this segment only cost $0.03 per reminder per download of an episode. (A $30CPM targeted at MSers.)

It can/should lead to a full ad, in text, audio or video, which costs $3.00 per download.

That sounds expensive until you do the math and realize that if nobody downloads it it costs you nothing, unlike print, where you often can't even get an ad in to the specialized journals, or radio or TV where you'd just be wasting your money with the 0.0833% MSers rate of return. (That's about six times "below" the level of "statistical noise".)

But MSBPodcast is 100% in your market, and you only pay per download of your material.

No play, no pay.

Reach the MSers who would buy your therapy, product, good or service, with-out having to waste your advertising money on anyone who is "not" interested...

Send me an email at: charles (at) MSBPodcast.com

---- "Melancholy" by: "the delicate art of noise pollution" http://www.noisepollution.nl/blog

Main Topic: "Paranoimia"

I was going through my library on iTunes looking for "Digital Droo" since I wanted to listen to him yet again.

Instead of my usual scrolling through the Album list, I typed in "Droo" into the search window.

The first thing on the list was "Paranoimia Featuring Max Headroom 7" version" by: "The Art of Noise." off of their "The Best Of The Art Of Noise (pink, 1992)"

Wanna hear what a blast from the past that was?

When it started up and I heard the intro "Relax. You're quite safe here" and then Matt Frewer as Max Headroom launched into the song, I had a flash of history.

I'd first heard that song when watching a "Bouncing Ball" demo that was running on a Commodore Amiga, in downtown Ottawa, at a computer store I had entered while munching on a sandwich filled with mystery meat on a Kaiser roll, ("Ham on a Bun" they called it,) and I remember standing there being utterly blown away; as much by the incredible graphics as by the incredible sound coming out of the unit, as I chewed what now tasted like cardboard with my friend and co-worker ("Hi John!")

I then went onto buying the album, watching the Max Headroom series and being very impressed with the object-oriented operating system that ran the Commodore Amiga.

Now I could have used "that" story in the msb-0154 Memory episode about MS and memory.

---- "Spooky funk" by: "the delicate art of noise pollution" http://www.noisepollution.nl/blog

Main Topic, part deux:

Lets end this trip down memory lane with something upbeat.

---- "Upbeat" by: "the delicate art of noise pollution" http://www.noisepollution.nl/blog

Outro

Wednesday, May 30, 2007

msb-0155 The Touch of Fatigue

msb-0155 The Touch of Fatigue

intro

----"Touch My System" by: "Frame 3-13" http://www.myspace.com/frame313

Feedback comes first, so...

I can only say: "Sorry Miss Chris. I can only say that it was an option that got reset, unbeknown to me. I've reset the posting option and republished the lot." Now people can send me feed back on my blog posts again."

---- "Untouchable" by: "Stars for Starvation" http://www.myspace.com/starsforstarvation

Feed Forward comes next, so...

This is "your" segment.

Say "your" piece on this segment.

Share with other MSers what ever "you" want.

Drop me an email: charles (at) MSBPodcadst.com

---- "Everytime we touch" by: "Tourist" http://www.touristband.com/

Feed Me comes third, so...

Do you have a therapy, product, good or service that is of interest to MSers?

Consider advertising on this podcast.

Reminders on this segment only cost $0.03 per reminder per download of an episode. (A $30CPM targeted at MSers.)

It can/should lead to a full ad, in text, audio or video, which costs $3.00 per download.

That sounds expensive until you do the math and realize that if nobody downloads it it costs you nothing, unlike print, where you often can't even get an ad in to the specialized journals, or radio or TV where you'd just be wasting your money with the 0.0833% MSers rate of return. (That's about six times "below" the level of "statistical noise".)

But MSBPodcast is 100% in your market, and you only pay per download of your material.

No play, no pay.

Reach the MSers who would buy your therapy, product, good or service, with-out having to waste your advertising money on anyone who is "not" interested...

Send me an email at: charles (at) MSBPodcast.com

---- "Le hero fatigue" by: "Lee Maddeford/Bérangèr Mastrangelo" http://www.leemaddeford.ch/songsfrenchlisten.html

Main Topic: "The Touch of Fatigue"

I have been blessed in that, though I get plenty sick and tired of the collective lack of consciousness and the sheer self-absorption and selfishness that people display every god-damn day, I have never experienced ("knock wood",) the true bone-wearying fatigue that seems to be an all too common symptom of MS.

I just got back from somewhere that I suspect will be my ultimate destination.

Pensacola is truly a fragile environment but the beauty of the place and of the people there was something truly transformative.

I can't tell you "Stay Away," but I can wish it.

It is just about perfect.

Too many more people would just wreck it.

---- "Fatigue" by: "Nick Murray" http://www.myspace.com/therealnickmurray

Main Topic, part deux:

Heat is another things that afflicts us. (I know that Pensacola gets extremely hot and steamy summers, [like, about a hundred, on and off, for weeks at a time,] but there's air conditioning, and back-up generators. [I am also sure that solar technology would be very effective there. {What's the use of having a roof that only keeps the rain off? (Or a cistern that only stores water? [Or walls that can't protect you because they're only as thick as, uh, a wall. {Think R. Buckmister Fuller's Dymaxion tetrahedral space-spanning structures. (I am designing a truly innovative house.)}])}] :-)

Heat induces thermal noise into our frayed nervous system and that noise is our enemy.

It makes it much harder for us to translate volition into action.

It rears its ugly head in the spasticity that probably plays a large part in the fatigue that MSers experience; interfering with everything we do and everything we attempt to do and everything we feel as sensation.

It can be exhausting to just "be".

---- "Emily Has Compassion Fatigue" by: "3 Blind Mice" http://www.catsaway.com/

Outro

msb-0154 Memories

msb-0154 Memories

intro

----"Melodic Memory" by: "Brian Drotar" http://www.drotar.com/

Feedback comes first, so...

Don't worry I'm not going to start singing the song" "Memories."

As far as I'm concerned: "it sounds like its sung by cats".

As you might guess, there isn't a lot of "musicals" on my iPod.

I like music; I'm less crazy about musicals. They're like "almost" music; music like almost.

----

But I'm up over 11,000 downloads.

Memory is right.

My old shows are giving me a boost from new listeners downloading them. (When I'd finally evolved this format, I had a lot of kick-ass good music packed into a half-hour show. And if it was pretty good then, its pretty good now. :-)

The shows are evergreen, and there all available except for the first thirteen, but its giving me some problems nonetheless. (And they're the kinds of problems I like. :-)

---- "Future Memory" by: "Heth and Jed" http://www.hethandjed.com/

Feed Forward comes next, so...

Some things are best left unsaid, but this is "your" segment; that's all I'm saying.

But you can say "your" piece on this segment.

Share with other MSers what ever "you" want.

Drop me an email: charles (at) MSBPodcadst.com

---- "Theives Of Memory" by: "Parlour Steps" http://www.parloursteps.com/

Feed Me comes third, so...

Do you have a therapy, product, good or service that is of interest to MSers?

Consider advertising on this podcast.

Reminders on this segment only cost $0.03 per reminder per download of an episode. (A $30CPM targeted at MSers.)

It can/should lead to a full ad, in text, audio or video, which costs $3.00 per download.

That sounds expensive until you do the math and realize that if nobody downloads it it costs you nothing, unlike print, where you often can't even get an ad in to the specialized journals, or radio or TV where you'd just be wasting your money with the 0.0833% MSers rate of return. (That's about six times "below" the level of "statistical noise".)

But MSBPodcast is 100% in your market, and you only pay per download of your material.

No play, no pay.

Reach the MSers who would buy your therapy, product, good or service, with-out having to waste your advertising money on anyone who is "not" interested...

Send me an email at: charles (at) MSBPodcast.com

---- "Losing Your Memory " by: "Todd Sharpville" http://www.myspace.com/toddsharpville

Main Topic: "Memories"

What is the role of memory in being who we are?

Everything we are, and everything we can hope to become is formed and informed by our memory of who we were.

I'll be remembering this Memorial Day weekend for a long, long time.

I loved Pensacola Florida.

The beach was pristine white sand; the sea was a pure ocean blue with white caps on the waves as the breakers came rolling onto the shore; the sky was a pure azure blue with white clouds scudding across it and I was nearly blinded by it all. (That's when I realized I'd forgot to pack my sunglasses, they were on a shelf on the right side of the CD cabinet in my living room in Jersey City, so I now own yet another pair. :-)

---- "Memory" by: "Tomaas" http://www.tomaas.net/

Main Topic, part deux:

Memory might seem to be an enormously complicated affair since it involves so much of our personality.

But the transformation of long-term memory from the short-term memory its actually controlled by a small and simple region of our brain. (I know this because my own mother had that section of her brain knocked out by a series of small strokes.)

The actual encoding and storage mechanisms are quite unknown to this writer. (I could/should/would do some research but its not really important for this piece.)

Given the nearly holographic distribution of our memory throughout our brain, it seems incredible that we can forget anything once it enters long term storage.

Memories are said to fade and recede into oblivion as our need to recall them becomes superseded by new things we have learned, but they never really go away entirely.

Sometimes all that's needed is a scent, a sound or a sight to bring everything rushing back.

---- "Absinthe Minded " by: "adrienne pierce" http://www.adriennepierce.com/

Outro

Saturday, May 19, 2007

msb-0153 "Minority Report" Comes To Neurobiology

msb-0153 "Minority Report" Comes To Neurobiology

intro

The music I'd picked out for this episode has completely changed since I started to write the script because I discovered music on the PMN (the Podsafe Music Network,) from "Digital Droo."

He used to fill my ears on many a lonely evening while I was coding away.

The tune "Gunga", which I'll play second, is a particular favorite of mine.

I just loved griding out code with Dr. Pepper filling my mouth and that kind of music filling my ears. (I'd shake the walls of the place with some of my music. [Its a miracle I haven't gone deaf.])

I have a much, much wider selection that the five "Digital Droo" tunes I'm about to regale us with on this episode, but the RIAA and ASCAP/BMI won't let me play any of it for you. Well, not without exacting their "pound of flesh".

----"Ari" by: "Digital Droo" http://www.digitaldroo.com/

Feedback comes first, so...

I'm going to leave you alone for a week or so as I'm off to Florida for a good friend's daughter's wedding. (Be good now. :-)

Hopefully, I'll be bringing back a surprise for all of you.

---- "Gunga" by: "Digital Droo" http://www.digitaldroo.com/

Feed Forward comes next, so...

Its your segment ... If you don't want to share, it means that I've got nothing to say. (Doh' I'm supposed to be "encouraging" you to write. I'm not sure that my saying 'that I've got nothing to say" is exactly the best way to do that, now is it?)

Drop an email to charles (at) MSBPodcast.com

You can even say it yourselves through the widget on the left hand side of the page at MSBPodcast.com.

---- "Looking for a Sign" by: "Digital Droo" http://www.digitaldroo.com/

Feed Me comes third, so...

Do you have a therapy, product, good or service that is of interest to MSers?

Consider advertising on this podcast.

Reminders on this segment only cost $0.03 per reminder per download of an episode. (A $30CPM targeted at MSers.)

It can/should lead to a full ad, in text, audio or video, which costs $3.00 per download.

That sounds expensive until you do the math and realize that if nobody downloads it it costs you nothing, unlike print, where you often can't even get an ad in to the specialized journals, or radio or TV where you'd just be wasting your money with the 0.0833% MSers rate of return. (That's about six times "below" the level of "statistical noise".)

But MSBPodcast is 100% in your market, and you only pay per download of your material.

No play, no pay.

Reach the MSers who would buy your therapy, product, good or service, with-out having to waste your advertising money on anyone who is "not" interested...

Send me an email at: charles (at) MSBPodcast.com

---- "Rocket" by: "Digital Droo" http://www.digitaldroo.com/

Main Topic: "Minority Report" Comes To Neurobiology

FMRI (Functional Magnetic Resonance Imaging) is a fascinating technology and a fascinating field of research, but it also raises some rather disturbing issues when it comes to its application outside of the purely medical research environment.

I refer of course to the legal environment (the term "law" being derived from "legare" which is Latin for "choice" [the law is nothing but the choices we make, the compromise we reach, in order to stand together, or to stand each other, as a society.])

FMRI not only reveals the structure of the brain as an artifact, (I look at my MRI scans just for the wonder of it,) but it shows the brain as it actually works at given tasks, such as pondering things or reacting to stimuli.

This "reacting to stimuli" is the part that has the legal profession positively drooling.

FMRI has the potential to act as a "lie detector" because the presented stimuli and the reactions occur utterly outside the sphere of volitional control.

Ask a question and the answer from an FMRI "will" be the truth "before your mouth get to shape into words."

(Political debates would be a lot less popular with the candidates if said candidates knew that their responses were going to come out without any spin or any bull-shit.)

I bet you're thinking "Sweet ... No more lies when the truth matters."

---- "Minor Things" by: "Digital Droo" http://www.digitaldroo.com/

Main Topic, part deux:

Yeah ... "Sweet" ... But that depends on what the FMRI reveals, and to whom.

I would hate to have my brain reveal its broken wiring at some crucial moment before my brain, which is used to interpreting the intent "through" the sclera, has a chance to rectify, correct and edit the responses to itself, uh, by itself.

I'd hate to think one thing, which would probably reveal itself as complete gibberish, and not have any recourse to being able to interpret it for a jury. (That would never be a jury of my peers in any normal situation. Where are the courts supposed to find twelve jurors with my specific configuration of sclera?)

Just some things to ponder while I'm in Florida.

---- "Code Monkey" by: "Jonathan Coulton" http://www.jonathancoulton.com/

Outro

msb-0152 Multi-national, multi-lingual podcasting

msb-0152 multi-national, multi-lingual podcasting

intro

----"thought Ide Write " by: "The Moot" http://www.mootmusic.co.uk/

Feedback comes first, so.

Okay, enough from Greece.

The uptake from Homer and the other Greeks is quite pronounced. :-)

---- "Just When I Thought" by: "Teresa James and The Rhythm Tramps" http://www.black-and-tan.com/

Feed Forward comes next, so...

You're not talking...

This is your segment, so email me charles (at) MSBPodcast.com. (I've almost given up on getting you to "speak" your piece on the widget on the left hand side of the page on MSBPodcast.com. )

---- "i thought i was gone" by: "Steffen Coonan" http://www.steffencoonan.com/

Feed Me comes third, so...

Do you have a therapy, product, good or service that is of interest to MSers?

Consider advertising on this podcast.

Reminders on this segment only cost $0.03 per reminder per download of an episode. (A $30CPM targeted at MSers.)

It can/should lead to a full ad, in text, audio or video, which costs $3.00 per download.

That sounds expensive until you do the math and realize that if nobody downloads it it costs you nothing, unlike print, where you often can't even get an ad in to the specialized journals, or radio or TV where you'd just be wasting your money with the 0.0833% MSers rate of return. (That's about six times "below" the level of "statistical noise".)

But MSBPodcast is 100% in your market, and you only pay per download of your material.

No play, no pay.

Reach the MSers who would buy your therapy, product, good or service, with-out having to waste your advertising money on anyone who is "not" interested...

Send me an email at: charles (at) MSBPodcast.com

---- "I Thought I Knew You " by: "Julie Harris" http://www.myspace.com/julie%20harris

Main Topic: Multi-national, multi-lingual podcasting

Okay ... The songs on this episodes are all about thoughts; so you "know" that I'm thinking about "multi-national, multi-lingual podcasting."

I've managed to put together an aggregation service about MS that spans the globe.

Every continent is represented except Antarctica. (Penguins might also get MS, but they don't have ISPs so they're not downloading the shows.)

Over 11,000, yep, that right, over "eleven thousand", raw downloads of episodes of this show, (over 4,600 downloads via iTunes and/or other podcatchers and over 6,600 via the web) from over 90 countries, have occurred since February of 2006.

Not bad for a show without any promotion except accidental discovery via iTunes searches, Google searches, and word of mouth.

Imagine how this show might grow with some concerted effort, (and some expense on my part,) for some real promotion.

I'm working on the promotion aspect as I write this and it "will" bear fruit for the listener-ship and for the advertising of MS related goods and providers of MS related services.

(How else can we find out who's making what or offering what to us. The mass media certainly can't afford to do it and the MS related good makers and service providers can't waste their scant resources on the mass media.)

The hits have come from 94 countries, (so far,) with the majority coming from the United States, followed by the United Kingdom, Canada, the Netherlands, Greece, Germany, Australia and India, plus a smatering from the other countries.

That tells me that the primary penetration of my audience reflects the world-wide distribution of the English language over the internet. But it also tell me that there is a much wider world out there than the English language.

---- "Bad Thoughts" by: "Kelly Mueller" http://www.kellymueller.com/

Main Topic, part deux:

I have taken my own bilingualism to heart and spread MSBPodcast to the Neatherlands, ("les Pays-Bas,") via "Herads" podcasting, to Greece, via "Homer's" podcasting, and the offers are still open to the French speaking and the German speaking MSers out there, as well as anyone else with something to say on MS and MSers to the other MSers on there.

Just send me the word to charles (at) MSBPodcast.com and we see if we can work something out to get you a mike and some software. (If you're reading this and/or hearing this, I can assume that you've already got some hardware. :-)

I'm trying to avoid the old "I know you think that you understand what you heard, but you don't realize that what I said was not what I meant" arguments by staying well out of the way of the advertisers and keeping them well out of my way.

I have no pretense of journalism and I make no presumptions about my own capacities.

I am just a guy with MS with a world-wide megaphone that only interested parties need tune into, to catch some tunes and some talk about living with this still very mysterious disease.

I just thought that you should know.

---- "Thought You Should Know " by: "Ophelia X" http://www.opheliax.net/

Outro

Friday, May 18, 2007

msb-gr-0001 "Γνωριμία" Trans. "First Meet"

Guess who's come to the party?


"Homer!"


And now, without further ado, here is the debut episode from Greece.


ΠΡΩΤΟ ΕΠΙΣΟΔΕΙΟ


Είμαι ο Όμηρος και έχω ΣΚΠ. Ξεκινώ το πρώτο επεισόδιο γνωριμίας σχετικά με την πάθησή μου. Αρχικά οφείλω σίγουρα ένα ευχαριστώ στο φίλο μου Charles Rovira που επίσης πάσχει από ΣΚΠ, τον γνώρισα στο διαδίκτυο και με έπεισε να ξεκινήσω το podcasting. Μπορείτε να επισκεφθείτε το blog του στο http://multiplesclerosisblog.blogspot.com/

Ξεκιναμε λοιπόν…


Title: Stain - Band: Megaphone


Διαγνώστηκα το 1996. Όταν ξεκίνησαν και τα πρώτα συμπτώματα. Βέβαια πολύ αργότερα όπως και οι περισσότεροι σκληρυντικοί κατάλαβα πως δεν ήταν καθόλου τα πρώτα πως εκείνη η ατονία της ακοής στο αριστερό μου αυτί πριν χρόνια είχε μεγάλη σχέση με αυτό που συνέβαινε τώρα.


Τότε ήμουν 19 χρονών μόλις!

Πέρασε ένας χρόνος μέχρι να μάθω τι έχω. Και αυτό γιατί…οι γιατροί βλέπετε. Μας τα «μάσησαν» όπως κάνουν πάντα. Έτσι μόλις μετά από ένα χρόνο τα πράγματα σκούρυναν μετά από τις απόλυτα συνηθισμένες κορτιζονούχες απόπειρες αναγκάστηκε ο πατέρας μου αναγκάστηκε να μου πει πως: «Μου είχαν πει ότι μπορεί να εξελιχθεί σε ΣΚΠ και να μη σου πω τίποτα για να μη σε αγχώσω» Ωραία. Έτσι, διαπαιδαγωγούνται οι σημερινοί ασθενείς. Μέσα από την άγνοιά τους.

Τα πράγματα λοιπόν δεν εξελίσσονταν καλά και οι αποτυχημένες θεραπείες λογικά έσπρωξαν το μυαλό σε άλλες διεξόδους.

Να φύγω στο εξωτερικό... Όπως και να’ χει κάτι καλύτερο πιο εξελιγμένο θα υπάρχει εκεί σκεφτόμουν.

Εγώ βέβαια είχα την αγωνία μου για το ταξίδι τις μετακινήσεις κλπ. Προχωρούσα με το Π και σε πολλές περιπτώσεις δεν μπορούσα να κάνω ούτε αυτό.

Εκεί λοιπόν μέσα στις ετοιμασίες, μια τυχαία συνάντηση με πληροφόρησε για κάποιο γιατρό εδώ στην Ελλάδα!!!

Το παιδί που με έστειλε εκεί ήταν ήδη καλά!

Ύστερα από τόσους μήνες πραγματικά κάτι φαινόταν στον ορίζοντα. Πήγα λοιπόν εκεί και γνώρισα ένα θαυμάσιο άνθρωπο ο οποίος με διαβεβαίωσε πως σε 2 μήνες θα ήμουν ικανός να περπατώ. Αναρωτήθηκα μήπως είναι τρελός μα ύστερα από δυο μήνες εντατικής θεραπείας με γνωστό φάρμακο καθώς και φυσικοθεραπείας, αλλεπάλληλων εισαγωγών σε νοσοκομεία πράγματι ξεπέρασα κάθε προσδοκία και μπορούσα όχι απλά να περπατώ αλλά να τρέχω!

Σπούδασα, τελείωσα, με πλήρη δραστηριότητα στη ζωή μου. Νόμισα πως η ΣΚΠ είναι για μένα πλέον παρελθόν. Από το 1998 και μετά που ήμουν καλά και όλο και καλύτερα έζησα τη ζωή μου με τον καλύτερο δυνατό τρόπο.

Περίπου όμως από το 2002 και μετά με πάρα πολύ αργό τρόπο άρχισα, όπως λέμε, να πέφτω. Η ψυχολογία, η συσσωρευμένη κούραση και διαφοροποιήσεις στη θεραπεία μου σίγουρα έπαιξαν το ρόλο τους.

Τα πράγματα άρχισαν να χειροτερεύουν και ο ίδιος εφιάλτης πλησίαζε. Κάθε μέρα αναρωτιόμουν και ήλπιζα πως κάτι θα άλλαζε όμως όχι μόνο δεν άλλαζε αλλά τα πράγματα χειροτέρευαν αργά και βασανιστικά.

Η φαρμακευτική μου θεραπεία γινόταν πολύ εντατικά και έφθασε στο σημείο να παίρνω ενδοφλέβια το φάρμακό μου κάθε μέρα! Αυτό με είχε πραγματικά κουρελιάσει. Είχα αρχίσει να σκέφτομαι πως ίσως είναι πολύ επικίνδυνο να οδηγώ αφού τα ανακλαστικά μου ήταν χάλια και ο κλώνος και στα δυο μου πόδια πολύ επικίνδυνος. Δεν ήξερα κάθε φορά αν θα είχα το κουράγιο να ταξιδέψω για να δω τους γονείς μου. Η δυσκοιλιότητά μου εντείνονταν. Έφθασα στο σημείο να πηγαίνω στην τουαλέτα 1 φορά κάθε 5 ημέρες. Το γεγονός αυτό ενέτεινε την αδυναμία και το αίσθημα της κούρασης, τα μουδιάσματα και το τρέμουλο στα πόδια και την ισορροπία μου.

Το μυαλό μου εκείνο τον καιρό δεν μπορούσε να σταματήσει να τριγυρνά σε μια πληροφορία που μου είχε δώσει κάποιος φίλος για κάποιον γιατρό. Κάποιον γιατρό που δεν χρησιμοποιούσε φάρμακα. Ασχολούνταν κυρίως με τη διατροφή, τα συμπλήρωμα διατροφής, βιταμίνες και γενικά με εναλλακτικές μεθόδους θεραπείας. Κάπου εδώ άρχισαν όλα. Μετά από 10 ολόκληρα χρόνια με μικρά διαλείμματα σημαντικών προβλημάτων της πάθησής μου πήρα τη μεγάλη απόφαση.


Title: Not your enemy - Band: Megaphone


Σήμερα όλη μου η φιλοσοφία σχετικά με την ΣΚΠ και τη θεραπεία της έχει αλλάξει πλήρως. Είμαι σχεδόν χωρίς συμπτώματα, έχω γνωρίσει κόσμο που εφαρμόζει τη θεραπεία μου και είναι τελείως καλά, ξέρω με σιγουριά πως θα σκότωναν για να μη γίνει έρευνα για το ρόλο που παίζει η θεραπεία αυτή στην ΣΚΠ γιατί θα διακινδυνεύονταν με αυτό τον τρόπο τεράστια κέρδη.

Ακούστε τα επόμενα επεισόδιά μου, παρακολουθήστε την ιστοσελίδα μου στο (http://www.mymultiplesclerosis.gr ) καθώς και το blog μου (http://mysclerosismultiple.blogspot.com) και μάθετε για τη θεραπεία την πρόοδο και τα τελευταία νέα μου.


Wednesday, May 16, 2007

msb-0151 Homer's coming :-)

msb-0151 Homer's coming :-)

intro

----"Look and Feel Years Younger : by: "Brad Sucks" http://www.bradsucks.net/

Feedback comes first, so...

I'm taking Homer's episode and reworking it in mp4 format because it's really, really good. (And its all podsafe!)

But its not quite there yet because of computer file formatting features and ID3 tags and other technical goodies that are all there to make MSBPodcast into one of the best podcasts out there. (I've been generating m4a files divided into segments with 'chapters' song names, band names, band images and links to their web sites, and that would also apply to ads, if I had any.)

I'll be putting it up next week.

In the meantimes, I'm feeling my age.

So all the songs on this episode are about all the young things waiting for their diagnosis.

---- "pretty young thing: by: "theVoyeurs" http://www.thevoyeurs.org/

Feed Forward comes next, so...

You're not talking...

This is your segment so email me charles (at) MSBPodcast.com. (I've just about given up on getting you to "speak" your piece on the widget on the left hand side of the page on MSBPodcast.com. )

---- "Young Again " by: "the Joint Conspiracy" http://www.thejoint.org/

Feed Me comes third, so...

Do you have a therapy, product, good or service that is of interest to MSers?

Consider advertising on this podcast.

Reminders on this segment only cost $0.03 per reminder per download of an episode. (A $30CPM targeted at MSers.)

It can/should lead to a full ad, in text, audio or video, which costs $3.00 per download.

That sounds expensive until you do the math and realize that if nobody downloads it it costs you nothing, unlike print, where you often can't even get an ad in to the specialized journals, or radio or TV where you'd just be wasting your money with the 0.0833% MSers rate of return. (That's about six times "below" the level of "statistical noise".)

But MSBPodcast is 100% in your market, and you only pay per download of your material.

No play, no pay.

Reach the MSers who would buy your therapy, product, good or service, with-out having to waste your advertising money on anyone who is "not" interested...

Send me an email at: charles (at) MSBPodcast.com

---- "Young And Stupid "by: "Just Plain Darin" http://www.justplaindarin.com/

Main Topic: Homer's coming :-)

I'm real excited about this because he's got a darn good ear for music.

---- "the young machines album leaf remix" by: "her space holiday" http://wichita-recordings.com/

Main Topic, part deux:

What he was missing was the details. (Hey! He's new at this but he's learning fast. Give the guy a break. :-)

He's young and good, not young and evil.

---- "Young And Evil " by: "Billy Boy Arnold" http://alligatorrecords.com/index.cfm?section=artists&artistID=27

Outro

Friday, May 11, 2007

msb-0150 Podcasting (that's me) and thee

msb-0150 Podcasting (that's me) and thee

intro

----"On A Podcast" by: "Cruisebox" http://www.thatpodcastsong.com/

Feedback comes first, so...

I've had some feedback from another blogger with MS, "Pete" [http://multiple-sclerosis-blog.blogspot.com/], who has reminded of me of the difficulties inherent of the medium of blogging through his posting yesterday a comment on episode "msb-0080 An inherent sense of Justice" when I am currently writing episode "msb-0150 Podcasting (that's me) and thee."

That was a blast from the past.

----

I also got some from "homer".

He's sent me a podcast as a test, or proof of what he can do and it really "kicks ass". :-)

Now I'm got to get him posting his shows onto MSBPodcast.com.

The first one really shows promise because he's really "got" it.

I'm working with him to get him up to speed A.S.A.P. because he's got a much better voice and a lot more energy than I do.

---- "Podcast Reggae " by: "REGGAE FAR EAST" http://feeds.feedburner.jp/ReggaeFarEast

Feed Forward comes next, so...

Say something to the other MSers.

Write me: charles (at) MSBPodcast.com, or better yet say your piece on the widget on the left hand side of the page at MSBPodcast.com.

----

I came across something on /. [ http://slashdot.org/ ] about Wikipedia by "VirusEqualsVeryYes":

"Wikipedia can provide the best of both worlds. It itself is a compilation of summaries, providing basic understanding, but to those who want or need more, there are links at the bottom to more detailed explanations, more thorough information. A Wikipedia with every detail possible would turn away people who want to understand something new simply because of the ridiculous principle that if one is to learn something, one must (futilely) attempt to learn everything at once. Imagine, for example, if someone went to Wikipedia to learn about the immune system, and came upon this:
Antigen (peptide) is presented by MHC class II on an APC to a CD4 TH cell with a TCR that recognizes a particular MHC classII/peptide complex. The TH cell is stimulated to undergo clonal expansion. If it encounters a B cell with the same class II/MHC peptide complex on its surface, it stimulates that B cell to clonally expand and produce soluble antibody...
[taken from my bio class notes]

Yeah, it's informative. Great. But who wants to try to understand that if all they want is a basic understanding? Having an article written this way will turn away people who would otherwise learn something. That defeats the purpose of the encyclopedia. That defeats the purpose of Wikipedia.

Leave your elitist "learn everything or you're inadequate" shit at your graduate research lab. Not everyone is willing, or has the time, to wade through what is otherwise white noise to get to the relevant info. Forcing mundane details down the throats of interested parties is doing a disservice to the spread of science."
Yeah!

---- "Podpeople" by: "Munk" http://www.myspace.com/munk

Feed Me comes third, so...

Do you have a therapy, product, good or service that is of interest to MSers?

Consider advertising on this podcast.

Reminders on this segment only cost $0.03 per reminder per download of an episode. (A $30CPM targeted at MSers.)

It can/should lead to a full ad, in text, audio or video, which costs $3.00 per download.

That sounds expensive until you do the math and realize that if nobody downloads it it costs you nothing, unlike print, where you often can't even get an ad in to the specialized journals, or radio or TV where you'd just be wasting your money with the 0.0833% MSers rate of return. (That's about six times "below" the level of "statistical noise".)

But MSBPodcast is 100% in your market, and you only pay per download of your material.

No play, no pay.

Reach the MSers who would buy your therapy, product, good or service, with-out having to waste your advertising money on anyone who is "not" interested...

Send me an email at: charles (at) MSBPodcast.com

---- "Pod Theme " by: "Intelect" http://www.soundclick.com/bands/pagemusic.cfm?bandID=234976

Main Topic: Podcasting (that's me) and thee

I got asked why I never mention my employer on these podcasts or why I don't try to get a sponsorship from them.

Its a valid question and I'm going to answer it right here and right now.

They're not MSers and an off-shore out-sourcing IT firm has "nothing" to do with MS, apart from keeping me on staff.

They have their own concerns which are not congruent with the aspirations of this MSer; nor do they make any product or render any service to any MSers.

If they did, I might feel different about it, but there's no fit anywhere nor is it likely. (Granted a great many of our clients are health-[don't]-care providers and/or allied health-[don't]-care organizations; but we're trying to reduce their costs, and I'm not going to increase those costs by asking my employer to give me a sponsorship.)

---- "You Dont Need An iPod " by: "Uncle Seth" http://musicface.com/uncleseth/

Main Topic, part deux:

The thought of a sponsorship would place me at a disadvantage.

I'm not any kind of a reporter.

I have no journalistic pretensions.

I'm just trying to entertain you by selecting themed music off of the PMN, the Podsafe Music Network, and creating a media space for MSers and for MS, unlike the mass media.

Instead of
  • hearing some radio jocks blather on, between dadot and dadot on the clock, about whatever they blather on about, and
  • playing tunes off of a homogenized rotation decided upon by some mega-conglomerate, (I'm talking about you ClearChannel,)
  • while the radio station marketing department struggles to sell as much of their air-time out from under them, (its the old 1,440 minutes per day dilemma, some of those minutes have to pay for the other minutes; the maximum profitability is to get 1,440 ad minutes paying for no content, like QVC or the Home Shopping Network, [How often do you want to hear about how these "beautiful "cubic zirconia" stones can change your life"? Right...])
you can
  • download this show, "whenever", and
  • listen to me blather on about whatever I blather on about, usually things related to having and coping with MS, "whenever", and
  • playing a selection of tunes around a theme, unless I'm infatuated with a genre or an artist for that episode,
  • while not having to be bothered by ads unless you have a specific need for that product, good or service (except for "reminder" spots which go in their very own segment).
Now, I'll readily admit I have a face made for radio and a voice made for painting, but until this idea takes off and I can hire someone to take my place at the mike, I seem to be the "only" game in town; nobody else seem to be stepping up to the plate on our behalf.

---- "Podcasting is the new Revolution" by: "M.C. Pretty Cruel Hype"

Outro

msb-0149 Crazy Stuff, Just for Fun

msb-0149 Crazy Stuff, Just for Fun

intro

----"Someone Is Crazy " by: "Jonathan Coulton" http://www.jonathancoulton.com/

Feedback comes first, so...

Its quiet. ... Real quiet. ... Preternaturally quiet. ("Mommy, I'm scared!" :-)

Okay, maybe not that quiet.

I heard back from "TyT", who's a "Nerdcore" artist, "cum" new rage, (not "new age" but "newrage") rapper.

Its driving me crazy; hence this shows' selections.

---- "Crazy " by: "EsGi" http://www.esgi.co.uk/

Feed Forward comes next, so...

Say something to the other MSers.

Write me: charles (at) MSBPodcast.com, or better yet say your piece on the widget on the left hand side of the page at MSBPodcast.com.

---- "Crazy In The Morning" by: "BReNe WiLSON" http://www.brenewilson.com/

Feed Me comes third, so...

Do you have a therapy, product, good or service that is of interest to MSers?

Consider advertising on this podcast.

Reminders on this segment only cost $0.03 per reminder per download of an episode. (A $30CPM targeted at MSers.)

It can/should lead to a full ad, in text, audio or video, which costs $3.00 per download.

That sounds expensive until you do the math and realize that if nobody downloads it it costs you nothing, unlike print, where you often can't even get an ad in to the specialized journals, or radio or TV where you'd just be wasting your money with the 0.0833% MSers rate of return. (That's about six times "below" the level of "statistical noise".)

But MSBPodcast is 100% in your market, and you only pay per download of your material.

No play, no pay.

Reach the MSers who would buy your therapy, product, good or service, with-out having to waste your advertising money on anyone who is "not" interested...

Send me an email at: charles (at) MSBPodcast.com

---- "CRAZY" by: "Whitney Steele" http://www.myspace.com/whitneysteele

Main Topic: Crazy Stuff, Just for Fun

Check it out, man, I'm crazy, nuts, gaga, loopy, gonzo.

I'm just DeeJay-ing today just for fun.

---- "Something Crazy " by: "The Stirring" http://www.thestirring.com/

Main Topic, part deux:

But I am not quite "that" crazy.

---- "Tom Cruise Crazy" by: "Jonathan Coulton" http://www.jonathancoulton.com/

Outro

Thursday, May 10, 2007

msb-0148 (In)Visibility

msb-0148 (In)Visibility

intro

I have noticed more visitors to my site from Quebec.

Would any of you happen to be Francophone?

Would any of you be interested in joining MSBPodcast.com and having a French podcast for you and yours?

"Envoyez mois un courriel: Chales a MSBPodcast.com"

"

----"Invisible" by: "Nefrit El-Or" http://nefritel-or.com/

Feedback comes first, so...

"Herrad" has been in touch.

She'll be busy with moving until the end of the month.

She making her way into a new, and far more accessible, apartment.

I wish her the best in her new place and to get back to her podcasts as soon as possible. (When I get some for feedback her, I will forward that to her and maybe she will respond...)

---- "Invisible Monsters" by: "Ryan Boud" http://ryanboud.com/

Feed Forward comes next, so...

[... again with the cricket chrips ...]

C'mon folks.

You must have something to say to the other MSers.

So write me: charles (at) MSBPodcast.com, or better yet say your piece on the widget on the left hand side of the page at MSBPodcast.com

---- "Invisible Man" by: "Ronnie" http://www.ronnierecords.com/

Feed Me comes third, so...

Do you have a therapy, product, good or service that is of interest to MSers?

Consider advertising on this podcast.

Reminders on this segment only cost $0.03 per reminder per download of an episode. (A $30CPM targeted at MSers.)

It can/should lead to a full ad, in text, audio or video, which costs $3.00 per download.

That sounds expensive until you do the math and realize that if nobody downloads it it costs you nothing, unlike print, where you often can't even get an ad in to the specialized journals, or radio or TV where you'd just be wasting your money with the 0.0833% MSers rate of return. (That's about six times "below" the level of "statistical noise".)

But MSBPodcast is 100% in your market, and you only pay per download of your material.

No play, no pay.

Reach the MSers who would buy your therapy, product, good or service, with-out having to waste your advertising money on anyone who is "not" interested...

Send me an email at: charles (at) MSBPodcast.com

---- "Invisible Man " by: "The Alice Project" http://thealiceproject.com/

Main Topic: (In)Visibility

Visibility, in some form or other, is key to being noticed.

Invisibility, just shutting up, trying to be small and discreet, will get us nowhere and will get us nothing.

The sad fact is that we have to stand up and stand out.

[insert name of deity here] knows that we didn't ask for this disease, but we got it.

It was a so-far-as-we-know random selection that decreed that our immune system would end up attacking us.

If it becomes a known and preventable mechanism that out immune system responded to, then we will help stomp out this disease so that no new cases of MS are ever again discovered.

But that doesn't do anything for us, the MSers who are here and now.

To do more than suffer in silence and "offer our suffering to Christ" we need to achieve visibility.

Otherwise, we're relegated to the dark corners of the world; at the mercy of all who lurk there.

---- "Invisible Man " by: "The Puffins" http://www.thepuffins.com/

Main Topic, part deux:

I've been struck by the revelation, blinded by the light, like Paul of Tarsus on the road to Damascus, that all diseases are demographic oddities in the mass market.

We MSers make up only 0.0833% or one in twelve hundred, six times below the level of statistical noise, but we represent up to five million people on the self-selecting market known as the internet.

All of the metrics that are used to quantify MSers in the mass market just dismiss us as insignificant. And if you're selling widgets to the mass market, we "are" insignificant.

It is also extremely inefficient for people who are interested in us to try to use the mass market to try to reach us.

Once again, the internet come to our rescue.

That it does so at all is incidental to its existence, but we MSers can take advantage of its aggregating capabilities to be united into a cohesive group despite being separated by geography, language and other circumstances.

Now companies don't advertise their competition. That would be stupid. You don't earn a doctorate, or even an MBA, being stupid. So one company's website isn't enough. The competitive imperative won't allow for more than one though, well one at a time.

So we need an aggregator, that's my role here, I'm aggregating, (not aggravating, aggregating, :-) bringing advertising for the therapies, medication, goods and services that we MSers need.

Face it there aren't that many drugs out there, but there are a lot of clinical trials that we're likely never going to hear about unless we happen to be in the MS Clinic at that time and we'd be interested at that very moment (and I know that when I go there, as rarely as humanly possible, I'm not interested in palaver, I'm looking for relief.)

And there are lots of other products, a slowly changing, evolving, panoply of other stuff for us.

They, the producers, can put it for free, and pay for the downloads, by the download; while MSBPodcast.com plays podsafe tunes and has the occasional review, interview and generally keeps out of the advertiser's way.

They'll be pretty much invisible to me (apart from the mention on the "Feed Me" segment with links to their full ads or to their websites, [like we have now the images and links to the bands,]) with and I'll be pretty much invisible to them.

---- "Invisible Man" by: "Mercury Sol" http://www.mercurysol.net/

Outro

Tuesday, May 08, 2007

msb-0147 To-morrow, and to-morrow, and to-morrow,

msb-0147 To-morrow, and to-morrow and to-morrow,

"To-morrow, and to-morrow, and to-morrow,
Creeps in this petty pace from day to day,
To the last syllable of recorded time;
And all our yesterdays have lighted fools
The way to dusty death. Out, out, brief candle!
Life's but a walking shadow; a poor player,
That struts and frets his hour upon the stage,
And then is heard no more: it is a tale
Told by an idiot, full of sound and fury,
Signifying nothing."

--Shakespeare, from Macbeth (V, v, 19)

intro

----"Tomorrows Memories " by: "Marius Kahan" http://www.jacana.org.uk/djc/djc007.htm

Feedback comes first, so...

There is none.

---- "Lonely for Tomorrow " by: "Dust" http://www.dust.smokingruins.com/

Feed Forward comes next, so...

[... again with the cricket chrips ...]

C'mon folks.

You must have something to say to the other MSers.

So write me: charles (at) MSBPodcast.com, or better yet say your piece on the widget on the left hand side of the page at MSBPodcast.com

---- "Tomorrow " by: "Mike Andersen Band" http://www.black-and-tan.com/

Feed Me comes third, so...

Do you have a therapy, product, good or service that is of interest to MSers?

Consider advertising on this podcast.

Reminders on this segment only cost $0.03 per reminder per download of an episode. (A $30CPM targeted at MSers.)

It can/should lead to a full ad, in text, audio or video, which costs $3.00 per download.

That sounds expensive until you do the math and realize that if nobody downloads it it costs you nothing, unlike print, where you often can't even get an ad in to the specialized journals, or radio or TV where you'd just be wasting your money with the 0.0833% MSers rate of return. (That's about six times "below" the level of "statistical noise".)

But MSBPodcast is 100% in your market, and you only pay per download of your material.

No play, no pay.

Reach the MSers who would buy your therapy, product, good or service, with-out having to waste your advertising money on anyone who is "not" interested...

Send me an email at: charles (at) MSBPodcast.com

---- "Tomorrow Night " by: "Johnny Nicholas" http://topcatrecords.com/

Main Topic: Tomorrow, and tomorrow and tomorrow,

We MSers have to be a patient lot; forever waiting on people, things, and our own bodies, to catch up to the speed of our thoughts.

I have never been patient, but I am dogged; like a terrier digging through a pile of hay after a rat.

Once on the trail, I don't give up until I can back up with the prize in my teeth.

This blog and podcast will be a success because I'm not giving up on either them or on us.

We "will" make a difference.

We "will" be able to entertain ourselves with some podsafe music, get information about our disease, and be able to find information, via ads from the drug companies, health care providers and makers of goods and services, delivered when "we" want them.

No more hunkering down in scared silence, wishing that MS would just disappear from our lives as suddenly as it appeared in a dreadful diagnosis that named the disease but explained "nothing".

---- "Tomorrow" by: "Gum" http://www.choosegum.com/

Main Topic, part deux:

It doesn't take a genius to see that ignorance is the real enemy; it just takes somebody who's been through the mill like me, and has a little money, a little equipment, a little know-how and is tired of denying what happened to me (and to three hundred thousand other people in North America [and to five million other people world-wide.])

We have been hit by a bus with the license plates "M.S."

Now we need help getting on with our lives, as surely as if some suicidal fool had blown himself up next to our humvee.

We are "all" victims of random acts which have done violence to our bodies, to our lives.

The internet, born out of a military conflict, the cold war, is giving us all a way to communicate with each other; through emails, web-sites, blogs and podcasts.

We just have to be willing to learn how to use it.

This new media is placing the tools in our hands.

No longer do we have to cower in ignorance and be ignored by the broadcast media.

Their imperative is squeezing as much money from advertisers (we, the audience, don't "matter," they'd play reruns forever) for access to the scarce and geographically limited commodity known as bandwidth.

Podcasting breaks all of the old rules of media.

None of the metrics apply except reaching a self selecting market.

All of the expense, the money and effort wasted shouting in the wilderness, becomes unnecessary.

Advertisers, people who make things for us MSers, can now get the word out about their therapies, products, good and services without wasting a cent.

I feel like a butterfly flapping its wings and causing a hurricane.


---- "Mandelbrot Set " by: "Jonathan Coulton" http://www.jonathancoulton.com/

By the way, the Butterfly referred to in the song (and by me,) is something called the Lorenz Attractor [http://mathworld.wolfram.com/LorenzAttractor.html]
Outro

Sunday, May 06, 2007

msb-0146 Brains, which is what we're really all about

msb-0146 Brains, which is what we're really all about



intro

----"Re Your Brains" by: "Jonathan Coulton" http://www.jonathancoulton.com/

Feedback comes first, so...

"Welcome back indeed Miss Chris!"

I loved the comments you left on my blog.

It sparked some good thoughts, and some good thinking, on my part.

I've got some from "Herrad" too.

We're working to promote her show too.

And I've heard back from "insideMS".

The ad will be running in the November/December issue.

I'll see if there is any uptake in the number of visitors and/or downloads (and maybe some feedback :-)

It points out the glacial pace of the print media versus the lightning pace of podcasting.

It also points out the competitive race for 'placement space' in something with an editorial budget (the space available to run ads, where content is at odds with advertisers paying for and competing with each other for some area on a limited paper plane. [The economics of an artificial scarcity.])

I'd just have make my shows a little longer to run "reminder ads" on my shows, and it doesn't detract in any way from having people download the full "evergreen ads" from my server when "they" want/need to see them (not necessarily when the advertisers get the space on my server to host them.)

This is podcasting. This is new media... The audience is in control.

We make up our advertising budgets from a virtually infinite page spread.

We're not tied to any stinkin' clock 'cause the internet don't need no stinkin' transmitters.

---- "Deep in the Brain " by: "Steffen Coonan" http://www.steffencoonan.com/

Feed Forward comes next, so...

[... again with cricket chrips ...]

C'mon folks.

You must have something to say to the other MSers.

So write me: charles (at) MSBPodcast.com, or better yet say your piece on the widget on the left hand side of the page at MSBPodcast.com

Meanwhile, I have found out friggin' tasty Bison can taste in my wife's very capable cooks hands. (There is a market on 14th street in Manhattan witch is absolutely fabulous. I can't say enough good things about it. Yes its too expensive, but this is "Noo Yo'k". Everything is too expensive.)

I knew it was good from eating it before (I used to have it, on rare occasions, at "Geronimo's" in "Montreal, Quebec Canada", [along with mustang steak,]) but tonight (Sunday, May 5, 2007) I had the best meal I have ever had.

Fuck-a-duck, (and knowing how I feel about duck, that's actually saying something,) I ate like I had never eaten before in my life. Oh my holy Jeez, it was good. If I was a dog and had a tail I'd be wagging it right now. (We won't go into what a cat would demand. :-)

Bison steak, carrots, miniature brown and blue potatoes, asparagus tips, sorrel and love.

Its was just the best best meal I've ever eaten.

Strike that! (No! I'll save this culinary feast for next time, but I'll tell you that my wife also bought some chicken as well. Ghlarghh!! It was incredible, amazing, stupendous... [Well it was sixteen bucks, but it was actually "worth it!" {Anybody remember the "Satisfiers of Alpha Blue"? Well it was better than watching "Tracy Lords" in that incredible dinner scene. ;-}])

---- "Hamster Brain" by: "Tom Smith" http://www.tomsmithonline.com/

[...squeak!...]

Feed Me comes third, so...

Do you have a therapy, product, good or service that is of interest to MSers?

Consider advertising on this podcast.

Reminders on this segment only cost $0.03 per reminder per download of an episode. (A $30CPM targeted at MSers.)

It can/should lead to a full ad, in text, audio or video, which costs $3.00 per download.

That sounds expensive until you do the math and realize that if nobody downloads it it costs you nothing, unlike print, where you often can't even get an ad in to the specialized journals, or radio or TV where you'd just be wasting your money with the 0.0833% MSers rate of return. (That's about six times "below" the level of "statistical noise".)

But MSBPodcast is 100% in your market, and you only pay per download of your material.

No play, no pay.

Reach the MSers who would buy your therapy, product, good or service, with-out having to waste your advertising money on anyone who is "not" interested...

Send me an email at: charles (at) MSBPodcast.com

---- "Enemy in My Brain" by: "Tragedy Kings" http://www.tragedykings.com/

Main Topic: Brains, which is what we're really about.

Well it is, isn't it.

Face it, I haven't felt "eternal" since I was sixteen (and even then, I'd already had my first MS attack.)

Our bodies go through changes, some good, plenty bad, and some downright awful (and since you're reading my blog and/or listening to my podcast, shit has probably happened to you.)

But we are still "us" uh, "we," regardless of what happened to the shell, we are.

We still "are".

We exist, we live, we grow.

We smile, laugh, scowl, weep.

We are and we won't be shut up nor will we just shut up.

---- "Fixing My Brain by: "Brad Sucks" http://www.bradsucks.net/

Main Topic, part deux:

Okay. I'm going through some existential crisis; from tears through laughter and back again.

I feel shitty, physically, but I feel great, intellectually.

I feel useless, unemployable and underused, but at the same time I feel on the cusp of realizing my true potential.

Yeah... My body's wiring's a frigging mess, but my mind feels like a jewel that I'm just starting to dig out of the soil.

I am on the verge ... I "am"...

---- "brainsbodyboth" by: "George Hrab" http://www.geologicrecords.net/

Outro

Friday, May 04, 2007

msb-0145 My Body Is Changing, In Weird Ways

msb-0145 My Body Is Changing, In Weird Ways

intro

----"Don't Forget Yourself" by: "2012" http://www.twentytwelverecords.com/

Feedback comes first, so...

"Welcome back Miss Chris!"

I missed reading your comments on my blog. [ http://multiplesclerosisblog.blogspot.com/ ]

Glad to hear you're still walking amongst the living. :-)

---- "Unforgettable" by: "Dream Real" http://enigmastation.com/

Feed Forward comes next, so...

[... cricket chrips ...]

C'mon folks.

You must have something to say to the other MSers.

So write me: charles (at) MSBPodcast.com, or better yet say your piece on the widget on the left hand side of the page at MSBPodcast.com

---- "Never forget" by: "Freedom Folks" http://www.freedomfolks.com/

Feed Me comes third, so...

Do you have a therapy, product, good or service that is of interest to MSers?

Consider advertising on this podcast.

Reminders on this segment only cost $0.03 per reminder per download of an episode. (A $30CPM targeted at MSers.)

It can/should lead to a full ad, in text, audio or video, which costs $3.00 per download.

That sounds expensive until you do the math and realize that if nobody downloads it it costs you nothing, unlike print, where you often can't even get an ad in to the specialized journals, or radio or TV where you'd just be wasting your money with the 0.0833% MSers rate of return. (That's about six times "below" the level of "statistical noise".)

But MSBPodcast is 100% in your market, and you only pay per download of your material.

No play, no pay.

Reach the MSers who would buy your therapy, product, good or service, with-out having to waste your advertising money on anyone who is "not" interested...

Send me an email at: charles (at) MSBPodcast.com

---- "Try to Forget " by: "Jen Elliott and Bluestruck" http://www.jenelliott.com

Main Topic: My Body Is Changing, In Weird Ways.

No, I'm not in need of uh, "slightly irregular," jackets (The ons with a third arm.)

Nor do I need to buy a "second" hat to stay dry in the rain...

But, I've noticed that my legs don't, uh, feel the same. (I could do an entire podcast on the subjectiveness of the word "feel". Maybe next time...)

Like everybody else I've squatted in front of the refrigerator; just peering in at the larder; trying trying to decide on weather I should have the cheese or the, whatever, its not important.

My legs feel different, specially when I squat.

Then they feel like they're made of wood.

I can squat there for hours, far longer that it takes me to pick out something to eat.

My legs have felt weird since my last MS attack in 1995.

Since then, my feet "always" feel like I'm standing in a bucket of cold water, (that's from the somatic sense) but when I touch them they're as warm as the rest of me (that's a sensory invalidation of the somatic sense.)

I've had moderate difficulty walking. Its not that my legs don't work, (I still take stairs two at a time, [but now I need to hold the handrail, my balance is definitely "not" what it used to be {well my balance is (sensor nerves) but my ability to balance isn't (effector nerves), and the why has more to do with what's happening to me in the next sentence.}])

Walking forward is difficult, its like "forward" is one direction that my body no longer responds to. I sometimes get stuck just trying to will my body to move.

Its like my legs are locked in a cataleptic pose while actually being awake and fully awake and aware.

Luckily that only ever lasts a few seconds and then I'm back to shuffling along with my cane. (Part of the training as a dancer is that you always make sure of where of your feet are; and part of being an MSer is that I never trust my somatic sense anyway. [It has spared me a great many falls. :-])

---- "Forget About the world" by: "Jeremy Gratton" http://www.jeremygratton.com/

Main Topic, part deux:

My response to "Miss Chris" dealt with cognitive symptoms of MS.

Or rather it didn't deal with them since I have so far ("knock wood") never experienced any. (Or maybe I have but don't know it. Can you imagine how much more annoying I'd be. :-))

I asked her to share any, uh, experiential information, she has with me.

I'm not talking about mere "brain farts", like not remembering where you put your keys, or where you put your glasses ("they're on your forehead dummy".)

Not even the annoying, "I know I came into this room for a reason. Now what the hell was it?" (My wife gets that sometimes and its not an MS related symptom; its an age related symptom. Basically as you age you lose some of your operational stack [the short term memory you devote to your, uh, short term memory {its between six or seven items and ... "Lethe" {the mythical river whose waters conferred memories to oblivion.}])

Since I haven't experienced it, that I know of, I can't talk about it myself.

But the next song is about something I do all the time.

---- "Forget My Name" by: "Katie Turner" http://www.katieturner.info/

Forgetting people's names has been, is, and forever will be to my shame and to my detriment. (Names are history; you're you. What can I say? When we talk, I'm talking with you, not your history. [That's a very Amerind attitude, I know. But there it is.])

Outro

Thursday, May 03, 2007

msb-0144 Get a Cluj

msb-0144 Get a Cluj

intro

---- "Words and Clues" by: "The Giles Gooden Band" http://www.myspace.com/gilesgoodenband

Feedback comes first, so...

I've had some but I'm keeping this under my hat.

Basically, I don't want to curse it by even whispering it.

But I can tell you that the ad is on its way, along with my hard earned money.

---- "Died Clueless" by: "Radio Orphans" http://music.podshow.com/music/listeners/artistdetails.php?BandHash=dbd9c7f5c48f499764688cc5b43372e1

Feed Forward comes next, so...

[... cricket chrips ...]

---- "You're Clueless" by: "Pudge" http://pudge.net/tunes/

Feed Me comes third, so...

Do you have a therapy, product, good or service that is of interest to MSers?

Consider advertising on this podcast.

Reminders on this segment only cost $0.03 per reminder per download of an episode. (A $30CPM targeted at MSers.)

It can/should lead to a full ad, in text, audio or video, which costs $3.00 per download.

That sounds expensive until you do the math and realize that if nobody downloads it it costs you nothing, unlike print, where you often can't even get an ad in to the specialized journals, or radio or TV where you'd just be wasting your money with the 0.0833% MSers rate of return. (That's about six times "below" the level of "statistical noise".)

But MSBPodcast is 100% in your market, and you only pay per download of your material.

No play, no pay.

Reach the MSers who would buy your therapy, product, good or service, with-out having to waste your advertising money on anyone who is "not" interested...

Send me an email at: charles (at) MSBPodcast.com

---- "Leave a clue" by: "Peter Rooney" http://www.indiestore.com/peterrooney

Main Topic: Get a Cluj.

I had a visitor to my blog or podcast from there and it sparked this "blast from my past" of a show.

Cluj is a decent sized town in Romania.

By coincidence, its population is about the same as the number of MSers in the United states: 340,000.

I found it notable, once, actually quite a while back, because one of its four star hotels is called the "Agape" which is a Greek term used to represent divine, unconditional, self-sacrificing, volitional, thoughtful love.

The use of the word in English does not do it justice. English is such a poor language for expressing it in all its forms and this is surprising because English is such a, uh, word borrower.

(Told you I was a "weird kid". Between Reading "Simenon" and "les bande dessinee," I used to scour dictionaries and encyclopedias for anything that caught my eye and sparked a connection. [I was either truly awesome or truly annoying. {I loved to lie on my stomach on the carpet with the "Rand McNally International Atlas", (it didn't matter that I was "French", a place's name is a place's name,) a couple of dictionary (usually the Robert,) and the "Petit Robert" and the "Columbia Encyclopedia" and just leaf through them all. :-} ] )

---- "You Dont Have A Clue " by: "Ken Dirschl" http://www.planforconquest.com/

Main Topic, part deux:

And in case you thought I hadn't noticed that this is episode 144, the next song is my way of , uh, cluing you in that I did.

---- "Let's Get Gross" by: "The Jim-Jims" http://www.weerockrecords.com/jimjims.html

Outro

Tuesday, May 01, 2007

msb-0143 Oh my achin' head

msb-0143 Oh my achin' head

intro

---- "Headache " by: "Splitsville" http://www.splitsville.com/

Feedback comes first, so...

I got some feedback this morning on one of the episodes (but Blogger doesn't tell me which one! [I didn't know that] and with almost 120 written to date its hard to tell which. The 143 refers to my podcasts but I didn't write them all so there are, uh, "holes".

[But there's more than one way to skin a cat.

"Holy moley!"

Its from "msb-0002a -An Answer For Mark Yashimoto Nemcoff"

Wow! That's an episode that's from last February. This person started from, or was that ended at, the very beginning! That's dedication, in either direction. ] :-)

It was a decent sized comment on the blog from somebody who's Grandmother had Huntington's and it was very touching.

"Wow, I am blown away by your description of MS. I happened to kinda stumble onto this site and I am really glad I did. What you wrote was compelling to read, thank you.

MS sounds similar to Huntington's Chorea which my family carries in their genes. Thankfully my Grandmother is the last one in my immediate family to have the gene, my cousin's not so lucky.

In the end my Grandma's body was moving so much from the "crossed wires effect" she was burning energy at the same level that an elite athlete would during training.

I remember watching her eat a single grape. The force of will and concentration required to bite down at the right opportunity to release the grape juice and she only ate the one grape!... gee... that really drove home how lucky I am that the gene stopped with her.

Well I really just wanted to tell you your writing was great. :)"

No; thank "you" for the praise.

And you wrote a short but pithy description of your grandmother's own struggles with Huntington's.

---- "Toothache" by: "The Coggs" http://www.thecoggs.com/

Feed Forward comes next, so...

But there's nothing to report on any contributions from thee to thee.

---- "Heartache" by: "Minerva Child" http://www.podshow.com/music/?artist_id=3699

Feed Me comes third, so...

Do you have a therapy, product, good or service that is of interest to MSers?

Consider advertising on this podcast.

Reminders on this segment only cost $0.03 per reminder per download of an episode. (A $30CPM targeted at MSers.)

It can/should lead to a full ad, in text, audio or video, which costs $3.00 per download.

That sounds expensive until you do the math and realize that if nobody downloads it it costs you nothing, unlike print, where you often can't even get an ad in to the specialized journals, or radio or TV where you'd just be wasting your money with the 0.0833% MSers rate of return. (That's about six times "below" the level of "statistical noise".)

But MSBPodcast is 100% in your market, and you only pay per download of your material.

No play, no pay.

Reach the MSers who would buy your therapy, product, good or service, with-out having to waste your advertising money on anyone who is "not" interested...

Send me an email at: charles (at) MSBPodcast.com

---- "Heartache Son" by: "Todd Stephen" http://www.toddstephen.com/

Main Topic: Oh my achin' head.

Part of this is the wine I had with dinner yesterday. ( ...hic!... :-)

Part of this is that I just had another look at my MRI's today.

I'm applying for a "Disabled Parking Spot" in front of my building to go along with the "Disability Tag."

While the tag is pretty easy to get, I only need my GP to vouch for my disability, the spot in front of the apartment building is something else all together.

I'm going to have to furnish them with a set of MRIs less than one year old.

Mine are two years old so they wont do. Now I've got to find out if the insurance is going cover it or if I'm the one who's going to get stuck with the 3+ thousand dollar bill.

How often will they want these anyway? (Like, I really don't expect to be miraculously cured and it would be a major P.I.T.A. and P.I.T.Wallet to fo for an MRI every year just to not lose a good parking spot.)

I also want the scans back.

I have a certain morbid fascination with the state of my own head.

---- "Digital Headache" by: "Toby Dylan" http://www.tobydylan.com/

Main Topic, part deux:

There are all kinds of cognitive problems that arise when your brain finally adapts to the fact that it can't trust the signals its getting. (That's if it ever does settle down to the uncertainty of living a life where it is always looking [a poor choice of words, I'll admit,] for confirmation of the sensations its, uh, sensing.)

I'm scanning the rear-view mirror, the instruments, the road ahead and on either side, and a quick look at my feet to make sure that the somatic sense of the position of my feet is accurate.

Also I don't listen to the radio or talk when driving because I definitely don't need or want distraction.

Those sensory difficulties are further compounded by the problems of piss-poor coordination.

But I figure, in Noo Joyzee, I'll drive just like the average distracted driver. :-)

---- "Headache " by" "Boo Boo Davis" http://www.black-and-tan.com/

Outro