Thursday, May 10, 2007

msb-0148 (In)Visibility

msb-0148 (In)Visibility


I have noticed more visitors to my site from Quebec.

Would any of you happen to be Francophone?

Would any of you be interested in joining and having a French podcast for you and yours?

"Envoyez mois un courriel: Chales a"


----"Invisible" by: "Nefrit El-Or"

Feedback comes first, so...

"Herrad" has been in touch.

She'll be busy with moving until the end of the month.

She making her way into a new, and far more accessible, apartment.

I wish her the best in her new place and to get back to her podcasts as soon as possible. (When I get some for feedback her, I will forward that to her and maybe she will respond...)

---- "Invisible Monsters" by: "Ryan Boud"

Feed Forward comes next, so...

[... again with the cricket chrips ...]

C'mon folks.

You must have something to say to the other MSers.

So write me: charles (at), or better yet say your piece on the widget on the left hand side of the page at

---- "Invisible Man" by: "Ronnie"

Feed Me comes third, so...

Do you have a therapy, product, good or service that is of interest to MSers?

Consider advertising on this podcast.

Reminders on this segment only cost $0.03 per reminder per download of an episode. (A $30CPM targeted at MSers.)

It can/should lead to a full ad, in text, audio or video, which costs $3.00 per download.

That sounds expensive until you do the math and realize that if nobody downloads it it costs you nothing, unlike print, where you often can't even get an ad in to the specialized journals, or radio or TV where you'd just be wasting your money with the 0.0833% MSers rate of return. (That's about six times "below" the level of "statistical noise".)

But MSBPodcast is 100% in your market, and you only pay per download of your material.

No play, no pay.

Reach the MSers who would buy your therapy, product, good or service, with-out having to waste your advertising money on anyone who is "not" interested...

Send me an email at: charles (at)

---- "Invisible Man " by: "The Alice Project"

Main Topic: (In)Visibility

Visibility, in some form or other, is key to being noticed.

Invisibility, just shutting up, trying to be small and discreet, will get us nowhere and will get us nothing.

The sad fact is that we have to stand up and stand out.

[insert name of deity here] knows that we didn't ask for this disease, but we got it.

It was a so-far-as-we-know random selection that decreed that our immune system would end up attacking us.

If it becomes a known and preventable mechanism that out immune system responded to, then we will help stomp out this disease so that no new cases of MS are ever again discovered.

But that doesn't do anything for us, the MSers who are here and now.

To do more than suffer in silence and "offer our suffering to Christ" we need to achieve visibility.

Otherwise, we're relegated to the dark corners of the world; at the mercy of all who lurk there.

---- "Invisible Man " by: "The Puffins"

Main Topic, part deux:

I've been struck by the revelation, blinded by the light, like Paul of Tarsus on the road to Damascus, that all diseases are demographic oddities in the mass market.

We MSers make up only 0.0833% or one in twelve hundred, six times below the level of statistical noise, but we represent up to five million people on the self-selecting market known as the internet.

All of the metrics that are used to quantify MSers in the mass market just dismiss us as insignificant. And if you're selling widgets to the mass market, we "are" insignificant.

It is also extremely inefficient for people who are interested in us to try to use the mass market to try to reach us.

Once again, the internet come to our rescue.

That it does so at all is incidental to its existence, but we MSers can take advantage of its aggregating capabilities to be united into a cohesive group despite being separated by geography, language and other circumstances.

Now companies don't advertise their competition. That would be stupid. You don't earn a doctorate, or even an MBA, being stupid. So one company's website isn't enough. The competitive imperative won't allow for more than one though, well one at a time.

So we need an aggregator, that's my role here, I'm aggregating, (not aggravating, aggregating, :-) bringing advertising for the therapies, medication, goods and services that we MSers need.

Face it there aren't that many drugs out there, but there are a lot of clinical trials that we're likely never going to hear about unless we happen to be in the MS Clinic at that time and we'd be interested at that very moment (and I know that when I go there, as rarely as humanly possible, I'm not interested in palaver, I'm looking for relief.)

And there are lots of other products, a slowly changing, evolving, panoply of other stuff for us.

They, the producers, can put it for free, and pay for the downloads, by the download; while plays podsafe tunes and has the occasional review, interview and generally keeps out of the advertiser's way.

They'll be pretty much invisible to me (apart from the mention on the "Feed Me" segment with links to their full ads or to their websites, [like we have now the images and links to the bands,]) with and I'll be pretty much invisible to them.

---- "Invisible Man" by: "Mercury Sol"


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